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Author Topic: A setback!  (Read 2683 times)
Ohio Buckeye
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« on: July 26, 2008, 01:43:37 PM »

I think I mentioned in another thread that my son and his wife were having problems.
She went to NY and took my little Tyler with her and I don't get to see him often.
My son went up this weekend to see him.  Anyway I am somewhat depressed and
not so motivated with walking.  I missed therapy last 2 wks.  One day this week I
felt unbelievably bad.  Just say a prayer for me.  Thanks.
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If I must do this to live, I must strive to live
while I am doing this.
G-Ma
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« Reply #1 on: July 26, 2008, 02:00:40 PM »

I am saying many prayers for you and all of us.  Depression can really get to us if we allow it and sometimes I do allow it.  This is one of those weekends...is it something in the water?  Just keep talking to everyone on this site.  Everyone is so good and giving.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: July 26, 2008, 02:09:52 PM »


I hope things improve OB. You need to keep moving but I understand it's tough. I am proud of you for reaching out to welcome new members despite your setback!
Hopefully you will be walking and can visit Tyler before you know it. That's a goal worth working on. Hang in there my friend!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #3 on: July 26, 2008, 02:16:19 PM »

OB, I am so sorry for your heartache right now.  Not seeing Tyler and the worry that goes along with that is depressing.  Remember, you have to keep moving forward with your therapy so you can be stonger and be here as Tyler grows up. He needs you even if you can't be in the same state.  He will be grown all too soon, and he will know that you were always there for him.    How are you doing being at home alone?  Have your friends been over lately?  Wish I could pop over and we could share a Donato's pizza!!   You will be in my prayers.  Love you! :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
boxman55
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« Reply #4 on: July 26, 2008, 04:43:56 PM »

I think I mentioned in another thread that my son and his wife were having problems.
She went to NY and took my little Tyler with her and I don't get to see him often.
My son went up this weekend to see him.  Anyway I am somewhat depressed and
not so motivated with walking.  I missed therapy last 2 wks.  One day this week I
felt unbelievably bad.  Just say a prayer for me.  Thanks.

OB, I can't speak to you for your loss of your grandson, but, please try and find the strength to get back to therapy. Remember your goals, they will come true. You can do it...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kitkatz
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« Reply #5 on: July 26, 2008, 04:49:42 PM »

OB, I know it is hard for you right now.  Just remember we are here anytime you need us.  For support or just to tell you it is going to be okay someday!

Victor goes through days where he is down.  He is going to see a new doctor in August about the leg and this one is to follow him through the city settlement.  V's lawyer let the city know that we are not playing with them and they need to take us seriously when they met two weeks ago.  God help them. Please Lord enough money so we can both retire or liv eon it and disability monies from my work.  It can be very frustrating.

His new leg has had several sleeve changes and fitting snow, just to get it to the point where is doe snot hurt him. He sill uses the practice leg quite a bit just because it is comfortable.  It is a process to walk again.

I know I have not experienced this personally, but as his care taker it has been an arduous process full of frustration and worry. My advice:

Lean into your friends and family.
Give yourself time to heal emotionally and mentally as well as physically.
Let the doctor know you feel depressed.  There are wonderful counselors out there.

Now I am done nagging.  Hugs.  :grouphug;

Kit

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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile

« Reply #6 on: July 26, 2008, 04:51:14 PM »

 :grouphug; OB, I'm so sorry you're having to deal with this sad situation on top of all the rest you have to cope with.  Please know how much we want you to be feeling more like your usual self.  It must be so hard not seeing your grandson.  You're in my thoughts.








EDITED:Fixed smiley tag error-kitkatz,moderator
« Last Edit: July 26, 2008, 05:02:04 PM by kitkatz » Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
del
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del and willowtreewren meet

« Reply #7 on: July 26, 2008, 05:01:29 PM »

 :grouphug; OB. Keep doing your therapy so you can walk again.  I know it is really hard to be motivated sometimes but keep thinking of the end result.  :flower;
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twirl
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« Reply #8 on: July 26, 2008, 06:48:32 PM »

you go on and go to therapy - the day will come when you see Tyler and you want to take him for a walk
"Just grandma and me"
just the two of you----talking grandma stuff
get ready, the day will come and you will be ready
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rose1999
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« Reply #9 on: July 26, 2008, 11:58:44 PM »

OB I am sending love and prayers your way, please go back to the therapy, you will seeTyler sometimes and he will need his grandma to walk with him and play with him then.  In fact the less time you can spend with him the more precous it will be and you will want to be able to make the most of it. We at IHD also want you to walk again so please, please don't give up  :grouphug;
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Sluff
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« Reply #10 on: July 27, 2008, 09:16:20 AM »

OB you have been through worse than this and you came out on top. Keep on keeping on. You will need to be ready when you do see Tyler again.  :grouphug;
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willieandwinnie
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« Reply #11 on: July 27, 2008, 09:30:39 AM »

OB  :cuddle;. Just wanted you to know you are in my prayers. You are a remarkable woman.  :bow;
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lola
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« Reply #12 on: July 27, 2008, 10:16:04 AM »

OB hang in there :grouphug; :flower;
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Romona
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« Reply #13 on: July 28, 2008, 03:51:44 AM »

 :grouphug;
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monrein
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Might as well smile

« Reply #14 on: July 30, 2008, 07:41:12 AM »

How are you doing OB?  I've been thinking about you and hope you're managing OK. :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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