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Author Topic: G Ma will try NxStage  (Read 26613 times)
G-Ma
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« Reply #150 on: September 23, 2008, 07:31:57 AM »
today, first day on new cycler....2 min into treatment got a red 60...and pink tinge in wasteline so stopped treatment...initially had trouble sticking arterial..I'm dehydrated so will not try again today, but have to tomorrow....I will get a gallon of wine and get hydrated.  yahooooo.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #151 on: September 23, 2008, 10:13:33 PM »


Red wine.. red tinge..? Coincidence??
Ha! Just kidding.
I hope tomorrow goes better!  :thumbup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #152 on: September 23, 2008, 10:35:25 PM »
yes, there are so many co ink i dinks in life aren't there?  I went to the competitor, great place, patients looked happy, fantastic home hemo nurse, does real training.  We sat for a few min while she was training another couple...we will need to come back to training for a few days but I welcome that as she makes you do hands on training with colored dye running through the machine so you can see everything...new experience for us..we found this place by going into nxstage and looking under centers on their site. yeah nxstage.   :cheer:
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
G-Ma
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« Reply #153 on: September 24, 2008, 07:31:52 PM »
Good run today finally... Talked to the competitor nurse today at RAI which is where I am switching to...she is hot that they already have me using a 15 ga needle and 500 speed on my new fistula..this gal worked at Wake Forest in dialysis for several years so will be interesting..she drives in a ways from Charlotte every day...Davita also told me they can't give me my KT/V numbers because I have missed a day a week through no fault of my own and she said that is so not true..interesting...anyhow she thinks she can start with me on Oct 7 if all the paperwork is done..she faxed request to Davita yesterday morning..nothing yet..so I called them this afternoon and supposedly secretary is in another office today..I adv not my problem, how long does it take this request to be done?....the Dir from H had answered the phone herself and was so friendly until I said RAI faxed and I could feel the ice on the lines..so I again asked how long and she said "Well it's just a fax" and I said it needs to be done, thank you and disconnected.  If nothing by Friday I have clinic and will speak with the nephrologist..I believe they are both in the same group.  Lord I don't want to go to clinic there....  :Kit n Stik;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #154 on: September 25, 2008, 04:45:56 PM »
happy to hear about the good run.  As far as the rest of it goes, what ever happened to the grrrrrrr emoticon?
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #155 on: September 25, 2008, 04:57:15 PM »
Quote from: pelagia on September 25, 2008, 04:45:56 PM
happy to hear about the good run.  As far as the rest of it goes, what ever happened to the grrrrrrr emoticon?

Will this do
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #156 on: September 25, 2008, 04:59:43 PM »
oh that's good...can we have it added to the emoticons????
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
G-Ma
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« Reply #157 on: September 27, 2008, 07:19:51 PM »
Had my first clinic yesterday and Dr said I can cut back to 5 days a week dialysis..said I'm his first dialyzer this new with in home that he has allowed this..siad my kt/v is 2.11..so I was pleased with that at least.  He also gave me some more sticking hints..he used to be a middle school, then hs teacher, then went on to medical school to be a professor, then decided to go on to be a Dr and now a nephrologist..is very good, not a pill pusher but wants to educate patients.  It was a good experience.   :cheer:
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
jbeany
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Cattitude
« Reply #158 on: September 27, 2008, 08:12:59 PM »
5 days will be much nicer.  Are you doing the 3-1, 3-1 rotating schedule or a 3-1, 2-1 schedule?  I started with the 3-1,3-1, and when I switched to the regular 5 days, I went from doing 20 L every time to 25 L on the days I only do 2 in a row.  My numbers are actually better than they were before.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
lola
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I can fly!!!
« Reply #159 on: September 27, 2008, 08:20:58 PM »
 :cheer:  So glad things are going well. :cheer:  :flower;






Edited: Fixed smiley error - paris, Moderator
« Last Edit: October 21, 2008, 06:10:48 PM by paris » Logged
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G-Ma
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« Reply #160 on: September 27, 2008, 08:39:02 PM »
thanks jb and lola...I asked if I could do 3 on and 1 off but Dr said no for some reason so I'm taking Sunday and Wednesday off and am so looking forward to that and enjoy at as long as I keep doing well.   :2thumbsup;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #161 on: September 28, 2008, 06:38:13 AM »
so happy to hear that it has been a good week  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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Posts: 2191
« Reply #162 on: September 28, 2008, 07:22:50 PM »
 :)
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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