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Author Topic: Nocturnal  (Read 39291 times)
flip
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« Reply #100 on: September 24, 2008, 04:38:01 PM »
The numbers look real good, Kit. Although at my center, if your hemoglobin drops under 12, you have to take the epo shots until it comes back up.
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That which does not kill me only makes me stronger - Neitzsche
pelagia
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« Reply #101 on: September 24, 2008, 06:42:08 PM »
This is wonderful  :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #102 on: September 24, 2008, 07:55:37 PM »

Yay to feeling better! That's very good news Kit!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #103 on: September 25, 2008, 05:23:35 PM »
It was as low as 9 at one time.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #104 on: October 07, 2008, 04:25:22 PM »
 I have decided to keep my nocturnal schedule for now instead of going to home dialysis. My husband and I discussed to pros and cons of it and decided together we just could not do it. He did not want it in the house and was worried we would do something wrong and hurt me.  If the partner cannot or is unwilling why drag him into it?  Plus I am not technologically oriented and would probably throw the machine through a window when it acted up.  (See school laptop!) It looks like I am going to the other Nocturnal Babe on this sight.

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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile
« Reply #105 on: October 07, 2008, 06:40:28 PM »
Sounds like the best choice for you and Victor and that's great Kit.  All the best.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
vandie
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« Reply #106 on: October 07, 2008, 06:46:24 PM »
Kit, I am so proud of you.   You and Victor are such an inspiration on so many levels.
xoxo
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #107 on: October 08, 2008, 07:43:03 PM »

Night Stalker - with a big stick!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boxman55
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« Reply #108 on: October 08, 2008, 07:51:39 PM »
I am locking my doors...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
jbeany
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Cattitude
« Reply #109 on: October 08, 2008, 10:17:57 PM »
I'm all for home hemo - but I do know it doesn't work for everyone.  It sounds to me like nocturnal is working pretty well for you, and that's the important thing.   :cuddle;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Rerun
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« Reply #110 on: October 08, 2008, 10:23:20 PM »
Am I the other Nocturnal Babe on this site??

                                                                             ???
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kitkatz
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« Reply #111 on: October 09, 2008, 07:56:53 PM »
Quote from: Rerun on October 08, 2008, 10:23:20 PM
Am I the other Nocturnal Babe on this site??

                                                                             ???

YES BABE, YOU ARE!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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