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Author Topic: Nocturnal  (Read 39294 times)
Rerun
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Going through life tied to a chair!
« Reply #75 on: August 16, 2008, 09:26:38 PM »
That's true and it may suit you just fine.  Best of luck and keep us posted.  I know you will!

                                      :cuddle;
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kellyt
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« Reply #76 on: August 17, 2008, 02:51:47 PM »
Quote from: Rerun on August 16, 2008, 05:49:38 PM
Kit, just remember with home hemo you have to set up the machine and tear it down and do monthly maintenance.  You have to order supplies and make sure you have room for all of it.  You also live with the machine 24/7.  A constant reminder.  I didn't like it.

I want to go and get in my chair and get up and go home.

Just keep this in mind when you go to the "sales" meeting.

It never occured to me the "set up and tear down" and "mainteance" of the equipment, but the #1 and #2 reasons I haven't considered home hemo was 1) I don't know if I or my husband could stick me and 2) I don't want to have to see it all everyday.  Nor do I want my husband to have to see it all everyday.  I would prefer he just know that I go away and come home hopefully feeling better.  When/If I should die during all of this I don't want him to dwell on what I went through on dialysis.

Now, I haven't started dialysis yet and I have nothing to compare it to, but just from what all have said here at IHD I think incenter regular or preferably nocturnal would be best for me.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #77 on: August 17, 2008, 04:57:03 PM »
Kitkatz, I am so glad nocturnal is allowing you to feel better.  You deserve a break!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #78 on: August 21, 2008, 07:10:06 PM »
The doc says the sweating is my body's way of getting together and pushing more toxins out through the skin. He says it is a very good thing.  I need this T-shirt now.


Nocturnal Dialysis
It is not the toxins anymore..
I really am a bitch!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
twirl
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« Reply #79 on: August 22, 2008, 11:23:56 AM »
don't go talking about being hot and sweaty and hooked up to a machine
you know what that does to RichardMel
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kitkatz
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« Reply #80 on: August 30, 2008, 05:15:58 PM »
Holey schlamolies! I got blood work results after one night on nocturnal my 1.4 Kt/v went to 2.8.  No wonder I feel better!  I have to cut down on one more blood pressure med because my blood pressure whacked out last night.  I was waiting for a signal before I took the Atenelol out of my daily routine.  I have already dropped the Plendil out.  I do not like it when the blood pressure plays hide and seek while on a long dialysis run.  They also poked a nerve last night and had to poke me again for a new spot.  I was pretty miserable last night between ten and two then I fell asleep and was sleepy when I left the premises.  Tried to sleep today but ten oclock was it. Body wants up. Hubby is not sleeping well these days.

November is training month for NX stage for me!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
del
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« Reply #81 on: August 30, 2008, 06:19:41 PM »
 :2thumbsup; :clap;  Great that your bloodwork was better Kit!!! Nocturnal or short daily treatments are a LOT better than 3 times a week.
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pelagia
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« Reply #82 on: August 30, 2008, 06:32:25 PM »
Love reading these posts.  It is so exciting to hear about how well it is going.  Thanks for sharing it with us.  :yahoo;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Zach
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"Still crazy after all these years."
« Reply #83 on: August 30, 2008, 08:47:32 PM »
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Mimi
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For any who do not like me I use - prayer.
« Reply #84 on: August 30, 2008, 10:51:07 PM »
Glad everything is going so well for you Kit, especially the numbers.  That benadryl will
work everytime.  Hope things continue to go good.

Love, Mimi
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lola
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I can fly!!!
« Reply #85 on: August 31, 2008, 03:36:07 PM »
Kit glad things are going good for you :flower;
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twirl
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« Reply #86 on: September 01, 2008, 02:39:46 PM »
kitkatz
how do you feel after waking and then having a full day at school?
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kitkatz
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« Reply #87 on: September 04, 2008, 07:35:41 PM »
Some days I am a little sleepy but I feel good all day at school and all the way into the next day.  Wow!  I am nicer and less moody. I am able to do more things and am not stressing over all of the extra work this year. 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #88 on: September 04, 2008, 10:25:12 PM »
November = NxStage!  How exciting.  You have worked hard to make this happen.   Epoman would be very excited.
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Treasure
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« Reply #89 on: September 04, 2008, 10:40:04 PM »
Hey Kitty Kitty Kitty! I attended an In-Center Nocturnal Introduction tonight...and I was trying to remember all the things you have brought up as you have shared your experiences.  I have done 8 hour treatments before-- but during the day, so other than chair issues, I couldn't really think of other problems I might encounter.

If you had to do it all over again, what would you have changed about your nocturnal sessions?


I'd also like to get an idea of all the places everryone knows about that offer In-Center Noct...

 :flower;
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You may worship me anytime you like... go ahead...bow down.  Now! Ok, I'm hungry, go get the grapes.  What? They're not chilled. You're useless! Ok...I'll forgive you...this time hehehe
twirl
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« Reply #90 on: September 05, 2008, 01:30:11 PM »
Quote from: kitkatz on September 04, 2008, 07:35:41 PM
Some days I am a little sleepy but I feel good all day at school and all the way into the next day.  Wow!  I am nicer and less moody. I am able to do more things and am not stressing over all of the extra work this year. 

so will we soon see flowers again
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kitkatz
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« Reply #91 on: September 05, 2008, 06:27:37 PM »
No, the stick is back for the seventh graders I am teaching this year!  :rofl;



What would I change about nocturnal... The chair is not the most comfortable thing to sleep in.  I bought an egg crate mattress cover to go on it and that helps.  Thanks to Rerun for the idea.  I am still adjusting to it all.  But I feel better and it got me onto the home hemo list for training.  God does work in mysterious ways, even if I throw rocks his way.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kellyt
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« Reply #92 on: September 06, 2008, 01:39:01 PM »
Quote from: kitkatz on September 05, 2008, 06:27:37 PM
No, the stick is back for the seventh graders I am teaching this year!  :rofl;



What would I change about nocturnal... The chair is not the most comfortable thing to sleep in.  I bought an egg crate mattress cover to go on it and that helps.  Thanks to Rerun for the idea.  I am still adjusting to it all.  But I feel better and it got me onto the home hemo list for training.  God does work in mysterious ways, even if I throw rocks his way.

Amen!   I'm happy for you, Kit!   :yahoo;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
del
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del and willowtreewren meet
« Reply #93 on: September 06, 2008, 06:00:29 PM »
 :2thumbsup;
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Don't take your organs to heaven.  Heaven knows we need them here.
kitkatz
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« Reply #94 on: September 06, 2008, 09:11:23 PM »
I am hitting my dry weight target regularly now.  I have also come off of three blood pressure pills.   I am no longer taking Minoxidil, plendil or atenelol.  Hurray. I am just on Cozaar for the heart.  It is supposed to be good for the heart.  My blood pressure seldom crashes during dialysis now. I do not have the worn out headache after dialysis.  I feel pretty good, sleepy but pretty good.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jbeany
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Cattitude
« Reply #95 on: September 06, 2008, 09:36:51 PM »
Makes you wonder how much longer we're all going to have to beat the docs over the head with the big stick to make them see that standard 3 day a week dialysis is just not enough!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kellyt
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« Reply #96 on: September 07, 2008, 06:06:53 AM »
Kit, when you get off the machine do you go home for a few hours before going to work and if so do you lay down and nap/sleep or do you feel awake and functioning right away?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kitkatz
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« Reply #97 on: September 07, 2008, 03:59:57 PM »
I go home and nap from 4:45 to 5:45 then get up and start the day.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #98 on: September 24, 2008, 04:15:06 PM »
The blood work for my first month on nocturnal is back!

The KT/V is 3.09. I have never had it so high!

The phosphorous is 5.1 with me forgetting binders quite a bit. SHHH. Don't tell.
Calcium is 9.7. Up a little. I thin it is the tums.
PTH is 321. Up a little from six months ago.
Albumin is 4.1
nPCR 1.36
Hemoglobin is 11.3
Iron saturation is 23%
Ferritin is 545
CAxPhos corrected is 49.5
Potassium is 5.2

My water weight gains are okay. I was came off two kilos heavy the other day and am fighting to get those plus off now. 

So nocturnal is helping me feel better.  Hurray!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
David13
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« Reply #99 on: September 24, 2008, 04:19:28 PM »
Yay Kitkatz!  I know it has been an adjustment for you, but it truly seems to be worth it!  Congratulations!   :yahoo;
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