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del
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del and willowtreewren meet

« on: July 06, 2008, 09:12:40 AM »

What does everybody like to do for fun in the summer? One of our favorite activities is boating.  We have 2.  A cabin cruiser and a speed boat.  Hubby build the speed boat (from scratch) the year before he started diaysis and he did the cabin cruiser about 5 or 6 years ago while he was on in center dialysis. We bought the hull for that one and he did the cabin and a few other things.  We are going to launch it either tomorrow or Tuesday for the summer. We usually go out in it whenever the wather is good for at least an hour a day. We usually have it in the salt water (Atlantic Ocean) but we had it in the lake earlier in June looking for the lake monster!!!.  Here are some pictures of the boat. I have some beautiful scenery pictures that I will post later.  I'll take lots more this summer too!!!  I have loads of pictures of the boat but they aren't scanned. I only bought a digital camera this winter. 

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Razman
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« Reply #1 on: July 06, 2008, 09:16:34 AM »

It looks so peaceful .   Wish I were there.
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twirl
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« Reply #2 on: July 06, 2008, 10:51:02 AM »

oh wow
how beautiful
and I will post pictures of my husband nappping on the couch --- a favorite summer time activity----
when I figure out how to post pictures
just looks like a ton of fun
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flip
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« Reply #3 on: July 06, 2008, 12:21:56 PM »

golfing, camping and fishing
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okarol
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« Reply #4 on: July 06, 2008, 01:41:42 PM »



Nice photos del - thanks!

Summer here is going to the beach (but it's about a 30 minute drive) and hanging out by the pool, playing ping pong, gardening, maybe go to some concerts, go to the X-games, eat and sleep.
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Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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« Reply #5 on: July 06, 2008, 04:25:15 PM »

We kayak in the saltwater creek behind our house. I also like to garden and then eat what I grow (yes, I could eat for a hobby...).  My husband plays guitar for a living, and for fun and relaxation, year 'round, day and night if he can.  He's an addict.

Great boat del!  I spent a lot of time on boats in the past, but not so much in recent years, unless you count the kayaks.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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Might as well smile

« Reply #6 on: July 06, 2008, 05:11:38 PM »

Summer here is the cottage.  We go to two very different ones.  My husband's family cottage which is a beautiful place on Lake Simcoe, more like a summer home than a cottage really.  Then our cabin on Eel's Lake, two and a quarter hours from Toronto, with outhouse, no lawn, just woods and deep lake with rocky shore, floating dock, no shower and one of the most peaceful places ever.  Cottages are great but a lot of work and stuff to maintain.  Barbeques, reading, swimming, being lazy, that's the pay off.  However, two cottages is actually one too many.

I also garden a lot both here in the city and at Lake Simcoe.  Also food...summerlicious is on right now, an event during which Toronto restaurants, even some of the very best ones, present special three course menus for fixed prices, usually $20 for lunch and $35 for dinner.  We usually do three or four restarants.  Also the jazz feastival down at the beach.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
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Second trx doing great so far...all lab values in normal ranges
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« Reply #7 on: July 06, 2008, 05:27:34 PM »

I've been to Canada a few times on fishing trips. Everything was always wonderful except for the mosquitos.
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monrein
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« Reply #8 on: July 06, 2008, 05:32:37 PM »

Ah, the mosquitoes...then there are also the blackflies if you go far enough north and then if you go really far north, like to the Arctic, add in noseeums, deer flies, horse flies etc.  One thing about being on dialysis, the mosquitoes don't at all enjoy me so I'm left alone.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
del
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del and willowtreewren meet

« Reply #9 on: July 06, 2008, 05:48:25 PM »

We get all those kinds of flies here in Newfoundland, monrein.  The mosquitos we call "nippers" though. (I wonder why??)  I also like to garden -love it actually.  I have 5 flower beds (big ones) , a rose bed, and I have my rhubarb and onion patch.  We also have apple, pear, cherry, plum trees.  I like to spend time outside during the summer doing whatever (you can usually see my  :sir ken; sticking out of a flower bed. ).  We like to go for walks in the woods on nice windy evenings when there aren't any flies.  I also like to just sit outside on nice quiet evenings.  I have a swing that I like to sit in and read.  I enjoy just being able to relax in my shorts and t shirts.

Monrein the flies love hubby's fistula ( and any other part of him) .  he has lots of fly bites the past couple of days!!!  I think one tried to chew his foot off - there are bites all across the top of his foot!!
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monrein
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« Reply #10 on: July 06, 2008, 05:49:52 PM »

Do the nippers go for him too Del? 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
flip
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« Reply #11 on: July 06, 2008, 05:50:13 PM »

I did not know that. I guess that means I won't need the spray on my camping trips.
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keith
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« Reply #12 on: July 08, 2008, 09:38:21 PM »

mad cook-outs spending as much time wit my family that i can :bow;  :beer1; then a  :bandance; just to be safe








EDITED:Fixed smiley tag error- kitkatz,moderator
« Last Edit: July 09, 2008, 08:23:29 PM by kitkatz » Logged

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del
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del and willowtreewren meet

« Reply #13 on: July 09, 2008, 02:49:48 PM »

Yes monrein the "nippers" do go after him too!!!  They drive him nuts!!  Here's some pictures of some of my flowers that I have fun taking care of in the summer. I told you there were flower beds underneath all thAT snow last winter!!
This is just some of the flowers and shrubs on the front of the house.
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« Reply #14 on: July 09, 2008, 05:21:32 PM »

beautiful
nothing grows for me but my fat behind
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rookiegirl
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« Reply #15 on: July 09, 2008, 07:23:21 PM »

My family and I are leaving for the beach this month for a week.  We normally vacation in Sanibel/Captiva Island, FL.  But this year we are going to Pine Knoll Shores.  Never been but I heard is small and quiet.  We are also going on ferry rides to Carrot Island to see wild horses and Cape Lookout (black/white diamond lighthouse).  I love lighthouses.

This is also my 1st real trip since I started CAPD.  I'm still undecided about swimming even though I was told by my Dr and Nurses I can swim in pools and ocean.  I just don't want to take the risk.  Plus, I'm having difficulty finding Tegaderm large enough to cover my entire exit site.  The catheter takes up so much room.

I hope everything works out.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
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monrein
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Might as well smile

« Reply #16 on: July 09, 2008, 08:52:42 PM »

Del, nice pics.  Is that a clematis beside the daylilies?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #17 on: July 09, 2008, 09:35:19 PM »

My family and I are leaving for the beach this month for a week. We normally vacation in Sanibel/Captiva Island, FL. But this year we are going to Pine Knoll Shores. Never been but I heard is small and quiet. We are also going on ferry rides to Carrot Island to see wild horses and Cape Lookout (black/white diamond lighthouse). I love lighthouses.

This is also my 1st real trip since I started CAPD. I'm still undecided about swimming even though I was told by my Dr and Nurses I can swim in pools and ocean. I just don't want to take the risk. Plus, I'm having difficulty finding Tegaderm large enough to cover my entire exit site. The catheter takes up so much room.

I hope everything works out.

Rookiegirl -- I absolutely LOVE the Outer Banks of NC.  Pine Knoll Shores is good -- make sure you go to the big aquarium there -- it's a touch-and-feel aquarium.  My dad was stationed on Cape Lookout (with US Coast Guard) when I was born, and I go back as often as I can (it's about a three-hour trip for us).  Make sure you take the boat ride over to Lookout.  Also, there's a great museum there at the place where you ride over to Lookout -- it's great if you like history dealing with the sea, ships, lighthouses, etc. (it's that kind of museum).  The best "eats" are at Harker's Island, but watch out!  Those Harker's Island folks speak a totally different language (the accent is so different).  Beaufort also has some pretty good eating places (what's the name of that place I love there?  Is it the Sanitarium?  Strange name, great food!).  While you're that close, you MUST, MUST travel up to Ocracoke (Island), Cape Hatteras, Kill Devil Hills (place the Wright Brothers flew that first time), and Manteo (home of the greatest outdoor drama in the world -- "The Lost Colony" -- a MUST SEE).  I'm so jealous, Rookiegirl.  Can I go with you?  You'll have a ball -- so much to see and do.

(P.S., I'm like you -- I wouldn't risk the swimming.  But, ohhhhhhh, to stick my feet in the ocean at the Outer Banks again...I'd give anything.)
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Bill Peckham
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« Reply #18 on: July 09, 2008, 10:29:21 PM »

For the last few days I've been swimming with the dogs in Lake Washington every afternoon (I've been dog sitting for the last couple weeks). I have a life jacket for Cairny - he stays out as long as I'm out - I use him as a kick board. Swimming with the dog is my favorite summer activity - I think about it in the winter.

I'm growing food this year too - tons of lettuce coming in, snap peas, carrots, pole peas, artichokes, potatoes, corn, spinach and I have one cantaloupe that I started from seed and finally looks promising and both of my tomato plants are thriving but it'll be a month or more before I'm eating fresh tomato (daily nocturnal has its advantages) . I also have an amazing grape vine that is set to produce buckets of grapes - white concords - that were very tasty last year. And my blueberry bush is loaded, they should be ripe in a week or so. 
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« Reply #19 on: July 10, 2008, 02:38:56 AM »

I think we need a thread on growing things.  I am off to start it.  So all of you guys come and let us know what you are growing.  maybe you can give me some advice.
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« Reply #20 on: July 10, 2008, 05:28:59 AM »

I love swimming with Yogi
just do not try to go down the slide
we are going to the coast
which is like so close to us now
but there is a restaurant across from the water that has wonderful fresh seafood
anyone know where in Galveston can I get seafood like in Lousianan  ---- red with oysters and seafood - not the brown roux
hate it with suasage and chicken
I need an off the road place
fancy places do not have it
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« Reply #21 on: July 10, 2008, 08:16:31 AM »

this summer what I like to do and what I can do are two differant things. This summer taking the para-van to the mall or a restaurant and watch the world go by has been fun. Going to Brewer Baseball games has been fun. in fact anytime I get to leave the house has been fun accept when I get dropped at dialysis. The summer of Mark...Boxman
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« Reply #22 on: July 10, 2008, 08:39:58 AM »

I'm heading out for my favorite summer activity.....Dialysis
I feel like the old John Cameron Swayze commercials for Times watches?

"I take a sticking and keep on ticking"

Have a good day all  :beer1;
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rookiegirl
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« Reply #23 on: July 10, 2008, 05:12:55 PM »

My family and I are leaving for the beach this month for a week. We normally vacation in Sanibel/Captiva Island, FL. But this year we are going to Pine Knoll Shores. Never been but I heard is small and quiet. We are also going on ferry rides to Carrot Island to see wild horses and Cape Lookout (black/white diamond lighthouse). I love lighthouses.

This is also my 1st real trip since I started CAPD. I'm still undecided about swimming even though I was told by my Dr and Nurses I can swim in pools and ocean. I just don't want to take the risk. Plus, I'm having difficulty finding Tegaderm large enough to cover my entire exit site. The catheter takes up so much room.

I hope everything works out.

Rookiegirl -- I absolutely LOVE the Outer Banks of NC.  Pine Knoll Shores is good -- make sure you go to the big aquarium there -- it's a touch-and-feel aquarium.  My dad was stationed on Cape Lookout (with US Coast Guard) when I was born, and I go back as often as I can (it's about a three-hour trip for us).  Make sure you take the boat ride over to Lookout.  Also, there's a great museum there at the place where you ride over to Lookout -- it's great if you like history dealing with the sea, ships, lighthouses, etc. (it's that kind of museum).  The best "eats" are at Harker's Island, but watch out!  Those Harker's Island folks speak a totally different language (the accent is so different).  Beaufort also has some pretty good eating places (what's the name of that place I love there?  Is it the Sanitarium?  Strange name, great food!).  While you're that close, you MUST, MUST travel up to Ocracoke (Island), Cape Hatteras, Kill Devil Hills (place the Wright Brothers flew that first time), and Manteo (home of the greatest outdoor drama in the world -- "The Lost Colony" -- a MUST SEE).  I'm so jealous, Rookiegirl.  Can I go with you?  You'll have a ball -- so much to see and do.

(P.S., I'm like you -- I wouldn't risk the swimming.  But, ohhhhhhh, to stick my feet in the ocean at the Outer Banks again...I'd give anything.)

Petey - thanks for all your suggestions.  I will definitely look into doing most of what you mentioned.  I'm really getting excited.  I hope the weather is good that week.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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« Reply #24 on: July 10, 2008, 06:04:16 PM »

Rookiegirl -- I want to hear all about it when you get back.  Pictures would be nice, too.  Have a great time!
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