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Author Topic: Airman Grounded  (Read 5983 times)
American Airman
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« on: July 06, 2008, 07:05:24 AM »
Well,

I'm not quite sure how to start.  I entered the US Air Force in late 2003, and before I got a chance to deploy, I was diagnosed with kidney failure.

So, after spending just over 2 years in the AF, I was medically retired.  I got a job in Northern Virginia as a Government Contractor, where I reside to this day with my wife and daughter.

I am on PD because I swore up and down I'd not sit in one of those blasted chairs again if I could help it.

I've been on the transplant list for just about three years, and have been called as the back up 3 times since the middle of May.

I have expect to get called again this week or next.  And I half expect to pick up the phone and tell Walter Reed Army Medical Center I'm going to hang up the phone, and they are only to call back if I'm the primary. 

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Romona
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« Reply #1 on: July 06, 2008, 07:26:00 AM »
 :welcomesign; You will enjoy this site. Great people with lots of info.
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lola
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I can fly!!!
« Reply #2 on: July 06, 2008, 07:39:54 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
pelagia
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« Reply #3 on: July 06, 2008, 07:48:16 AM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
twirl
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« Reply #4 on: July 06, 2008, 07:49:30 AM »
welcome to our world
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Lori1851
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This is me Lori , Dustin's mom
« Reply #5 on: July 06, 2008, 08:19:48 AM »
Hang in there!!! :) I will keep you in my prayers.

Lori/Indiana
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Razman
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« Reply #6 on: July 06, 2008, 09:00:41 AM »
I'm glad that you have joined the IHD army.  A group of people that fight the kidney disease war together and I can understand your frustration.  Please look around the site and stay in touch.  There are so many people with years of experience and you can share both your joys and frustrations.   :welcomesign;
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Sluff
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« Reply #7 on: July 06, 2008, 11:32:22 AM »
The waiting game is no fun but it is a necessary evil I guess.

Welcome to Ihatedialysis.com, Airman

Thank you for your service to our Country.

I hope you get a kidney soon, there is a lot of information here for you to read, there is some threads that are just plain fun too. Did they ever figure out what type of kidney disease you have or how your kidneys failed?

Thanks for taking the time to introduce yourself.

Sluff/Admin
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donnia
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me and my donor Joyce
« Reply #8 on: July 06, 2008, 02:03:40 PM »
Welcome American Airman!   No, the waiting game is not fun.  I hope you get the call real call soon.  I will keep you in my prayers!

Thank you for your service to our country!   :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
American Airman
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« Reply #9 on: July 06, 2008, 02:11:12 PM »
Quote from: Sluff on July 06, 2008, 11:32:22 AM
The waiting game is no fun but it is a necessary evil I guess.

Welcome to Ihatedialysis.com, Airman

Thank you for your service to our Country.

I hope you get a kidney soon, there is a lot of information here for you to read, there is some threads that are just plain fun too. Did they ever figure out what type of kidney disease you have or how your kidneys failed?

Thanks for taking the time to introduce yourself.

Sluff/Admin

Well,

I'm not sure I understand what exactly caused the failure.  Something do to with my immune system...

Here's the story.  I was recently married and had my wisdom teeth pulled.  It seems that all the medicine I was on was the straw that broke the camels back. 

It's something genetic, carried by the female in the family, but is affects the males.  I've had a great grandfather on my mothers mothers side with kidney failure... but they didn't know what it was at the time.  Two uncles, one dead, one living with a cadaver kidney for over 20 ... maybe close to 30 years.

What the biopsy revealed was FSGS.  The one uncle that died got his ESRD early, some time in his 20's... the other that's still living got his in his 40's.  Medical advances AND how he is very careful with his medications and treatment is what made the difference.  Believe it or not, he's on Prednizone.. but has little if any side effects.

Anyway.  I was in my mid 20's.  I was married in March... diagnosed in April.... by the way-  If you ever get a biopsy, I recommend Diloted... I'm not sure I'm spelling that right... greatest pain killer I've ever taken.  Beats morphine hands down.  I'm not recomending taking anything not given by a doctor!!!   But if I ever have to get another biopsy... that's what I'm asking for...
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: July 06, 2008, 02:14:43 PM »
Dilaudid  :2thumbsup;

My first introduction to that words was when I used to work in a pharmacy and a masked gunman came in asking for it. Later the pharmacist described dilaudid as "synthetic heroin" - good stuff for pain!

Welcome, I hope you meet some nice people here and get your questions answered.


okarol/admin
« Last Edit: July 07, 2008, 11:04:35 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
flip
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« Reply #11 on: July 06, 2008, 02:37:12 PM »
Welcome, Airman. Hopefully you got a good benefits package with your medical discharge.
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That which does not kill me only makes me stronger - Neitzsche
monrein
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Might as well smile
« Reply #12 on: July 06, 2008, 02:51:52 PM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
bolta72
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my best friend
« Reply #13 on: July 06, 2008, 03:09:08 PM »
 :welcomesign; :waving; :usaflag;
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gotta do what I gotta do.. 2 yrs in ctr hemo
keith
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« Reply #14 on: July 06, 2008, 04:03:36 PM »
 :welcomesign;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: July 06, 2008, 04:13:33 PM »
Welcome to our community!  *saluting*  We are glad that you decided to join us.  You are going to have a great time here.  Lots of information, lots of caring, sharing and supportive people, people who understand EXACTLY what you are going through.  We are here for you.  We are waiting along with you and will fully share in your good news when it comes.  Please read as much as you can 'Information is Power!', and post as much as you can.  That way we will really get to know you and know what you are going through.  Please remember, we are family!! :grouphug;


Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
ndl0520
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« Reply #16 on: July 07, 2008, 07:56:32 PM »
Hey Airman,

Welcome to the site.  This site will help you tremendously.  I definitely feel your pain.  I was in the Army when I was about to be deployed when they discovered I had Polycystic Kidney Disease.  After 18 good years in Army, I had to be discharged.   But, its not the end of the world as  you could see from this site.  If I were you, put yourself in a civilian hospital for a kidney transplant.  That way you have two places that you are listed on.  Anyways,  :welcomesign; & hope to read more of your postings.
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Zach
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"Still crazy after all these years."
« Reply #17 on: July 07, 2008, 08:23:20 PM »
Welcome to the community!
 
:beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
lruffner
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« Reply #18 on: July 07, 2008, 08:41:28 PM »
Hey Airman   :welcomesign;

You will find other FSGS folks on here just like yourself, including me. There is a TON of info on here, a lot of personal stories, and fun people who love to have a good time! Post a lot on here so we can get to know you!
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
Ang
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« Reply #19 on: July 08, 2008, 01:11:19 AM »
hey  there  AA

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
napala turki
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Have to plan for living
« Reply #20 on: July 09, 2008, 06:27:09 PM »
Airman - we are the choosen once...

You, me and others in here were been choosen by God. God love us, thats why we were given this gifts.

There are peoples really suffered worst then what we are, I have seen them. We are still free to move around, although limited. Life must go on.
Keep your spirit high.

Regards.
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annabanana
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« Reply #21 on: July 10, 2008, 07:51:46 AM »
 :welcomesign; 
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
rookiegirl
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« Reply #22 on: July 10, 2008, 05:41:42 PM »
 :welcomesign; to the IHD family.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
kitkatz
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« Reply #23 on: July 12, 2008, 03:46:44 PM »
Welcome Airman.   I would not tell Walter Reed anything except yes sir, or no sir.  Otherwise they can tell you are noncompliant and that would suck.  Good luck to you!

kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
devon
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« Reply #24 on: July 18, 2008, 12:09:33 PM »
I hope we can help you nide your time while you wait for the phone call!

--Devon

 :welcomesign;
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