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Author Topic: Transplant Games Next Weekend!!!!!  (Read 11606 times)
Romona
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« on: July 04, 2008, 01:10:04 PM »
I would love to meet up with anyone at the Games. Team Pittsburgh is registering and having pictures done on Sat. If anyone is going and wants to try to meet up, PM me.



EDITED: Fixed spelling error in subject line - okarol/admin
« Last Edit: July 04, 2008, 01:23:32 PM by okarol » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: July 04, 2008, 01:25:02 PM »


I wish we could have made it there this year. Jenna is registered but we just couldn't get it together with also going to Colorado and Chicago - hopefully next time!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #2 on: July 09, 2008, 01:46:16 AM »
Wish they would have it closer, within a days driving distance. As long as I can make it home while the sun is still up I could do it. But there are no plans to bring it to the surrounding area I was told last year.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
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     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

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flip
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« Reply #3 on: July 09, 2008, 04:35:42 AM »
I think they also need to have Dialysis Games.
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Romona
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« Reply #4 on: July 09, 2008, 04:44:02 AM »
I think so too. The Kidney Foundation hopes to raise awareness for organ donation. There needs to be awareness of kidney disease and the importance of detection and treatment.
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Zach
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« Reply #5 on: July 09, 2008, 04:49:56 AM »
Quote from: flip on July 09, 2008, 04:35:42 AM
I think they also need to have Dialysis Games.

Quote from: Romona on July 09, 2008, 04:44:02 AM

I think so too. The Kidney Foundation hopes to raise awareness for organ donation. There needs to be awareness of kidney disease and the importance of detection and treatment.


5th EUROPEAN TRANSPLANT AND DIALYSIS GAMES
AUGUST 31TH – SEPTEMBER 7TH, 2008
Würzburg, Germany

A warm welcome to all visitors at this homepage of the 5th EUROPEAN TRANSPLANT AND DIALYSIS GAMES.
We want to invite all transplanted and dialysis patients from Europe coming to Würzburg.

One week of international get together, sports, exchange of information and experiences as well as refreshing existing friendships and establishing new ones. And of course one week in a beautiful town at the river main filled with fun and joy.

There are still some months up to the Opening Ceremony on August 31th in 2008. Here at this homepage you'll find all relevant and current information. We'll add news regularly.

http://www.etdg2008.com/5th-european-transplant-and-dialysis-games.html



To all the nay-sayers:  Yes we can!
 
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
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No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
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Just the facts: 70.0 kgs. (about 154 lbs.)
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flip
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« Reply #6 on: July 09, 2008, 08:10:06 AM »
I had thought about organizing some dialysis activities such as golf and bowling (or other sports). They would probably need to be on a regional basis due to limited travel for many patients. I'm gonna run it by my local NKF chapter and see what they think. Surely some of the major dialysis companies would pitch in with sponsorship.
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Romona
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« Reply #7 on: July 09, 2008, 02:20:07 PM »
I know our region has many golf fund raisers. I think it is a great idea to approach them.
Zack are you participating?
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« Reply #8 on: July 09, 2008, 02:48:50 PM »
Our does too but they are for regular golfers who have formed their own team. I'd like to see a tournament restricted to dialysis patients. I think it would open a lot of eyes about life on dialysis.
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That which does not kill me only makes me stronger - Neitzsche
Zach
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« Reply #9 on: July 09, 2008, 03:12:20 PM »
Quote from: Romona on July 09, 2008, 02:20:07 PM

Zack are you participating?


No, I'm not.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
angela515
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« Reply #10 on: July 10, 2008, 11:39:48 AM »
I leave for Pittsburgh tonight. Go Team Iowa!!!! I will be checking into my hotel around 3:00pm tomorrow.

Ramona- What sports are you going to be doing?

I will be doing Bowling Singles, and Bowling Doubles.

I will be PM you my cell number, and check back with this post throughout the day to see if you replied or not. Maybe we will be able to meet for a few. Either way, enjoy the games!  :yahoo;
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Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
okarol
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« Reply #11 on: July 10, 2008, 11:43:14 AM »


Yay Angela, so glad you are going! If you can get me a program, I would appreciate it. Jenna and I are registered and wish we could pick it up ourselves, but too much going on for us to go. There's a tribute to Patrice in the program. Thanks, don't worry if you can't get it.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angela515
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« Reply #12 on: July 10, 2008, 11:45:28 AM »
I will definately grab one for you once I find out where they are handing them out at. I wish you both could of made it, I would of loved to meet you guys! That means I will definately have to make a meeting next year. :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
paris
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« Reply #13 on: July 10, 2008, 12:05:55 PM »
Maybe next year, some of us could go as the cheering section.  I want to meet Romona!!  And Angela!!   If I visited my sister in New Concord, Ohio I it wouldn't too far.  Hmmm, I will really think about that.   

Have a marvelous time--take lots of pictures.   And show everyone what you can do with a transplant! :yahoo; :clap;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
angela515
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« Reply #14 on: July 10, 2008, 12:48:46 PM »
The next Transplant Games is 2010
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
paris
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« Reply #15 on: July 11, 2008, 02:14:31 PM »
Lots of time to plan!!  :rofl; Maybe I will have a transplant by then!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
pelagia
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« Reply #16 on: July 11, 2008, 02:32:54 PM »
If they had a hiking competition my husband would do this!  He is not a team sports kind of guy.  It sure sounds like fun though.  And I would like to meet Angela and Romona too!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
angela515
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« Reply #17 on: July 11, 2008, 06:58:54 PM »
I got here (Pittsburgh) today around 3-3:30pm. That was a LONG 18 hr ride. I don't know if Romona is bowling in the doubles event or just the singles, so I will definately meet her Tuesday for the singles bowling either way. I look forward to it!  :clap;

Everyone is so nice here and treat you as if they have known you forever. It's wonderful. It's really nice to meet so many people who have got the gift of life as well, and who also know what your going through prior to transplant and post-transplant. So many things to do and go, it's crazy! I wish I would of had someone to come with me, next time I will, but I am still having a blast and everyone is making me feel welcome and part of the team.

 :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Sluff
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« Reply #18 on: July 11, 2008, 07:19:47 PM »
Thats awesome Angela.. :thumbup;
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pelagia
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« Reply #19 on: July 11, 2008, 07:25:40 PM »
Sounds really great. :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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« Reply #20 on: July 11, 2008, 07:47:09 PM »
Nice Angela.  Have fun and say hi to Romona. :waving;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
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(2 1/2 hours X 5 weekly)
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okarol
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« Reply #21 on: July 11, 2008, 09:12:50 PM »
 :pics; PHOTOS! I hope you take some!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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« Reply #22 on: July 12, 2008, 01:21:06 PM »
After my clinic appointment Thursday, I was listening to the radio, and one of the ladies on the morning radio show said that she was headed out to the Transplant Games this weekend. This is the #1 top 40 station in Atlanta, and one of the top 3 morning shows in the area  :2thumbsup;

I did a little research and found out that she received a kidney from her cousin in 2002. She's running the 100 meter for Team Georgia.
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
pelagia
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« Reply #23 on: July 12, 2008, 03:15:36 PM »
Someone like that is in the position to influence many people.  :thumbup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
angela515
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« Reply #24 on: July 12, 2008, 07:44:42 PM »
So far, I have not found out what or where this program is, but I will keep hunting. I meet Romona tomorrow at bowling, we have talked on the phone a couple times and she sounds like a sweetheart! :)

I will make sure we get pictures!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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