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Author Topic: Transplant Games Next Weekend!!!!!  (Read 11599 times)
angela515
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« Reply #25 on: July 12, 2008, 07:47:35 PM »

Wish they would have it closer, within a days driving distance. As long as I can make it home while the sun is still up I could do it. But there are no plans to bring it to the surrounding area I was told last year.

Why do you need to drive home every night to be able to go to the games? Why can't you go to the games and stay with your team at the hotel and take the shuttles everywhere you go? It would be nice to have you come to the next one and be able to meet you and have you help promote transplants. :)

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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
angela515
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« Reply #26 on: July 13, 2008, 01:10:57 PM »

I met Romona today at the bowling doubles event. She is a sweetheart! He kids are lovely as well and are adorable.

Me and my partner won a Silver Medal in our division, and I am proud to lose the gold to....  Romona and her partner.  :clap;

I look forward to Tuesday to aim for the gold in my division and I hope Romona wins gold in her division!  :2thumbsup;

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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
okarol
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« Reply #27 on: July 13, 2008, 01:16:33 PM »

 :bow; You guys are great!

Congratulations Angela and Romona! :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #28 on: July 13, 2008, 01:36:55 PM »

 :clap; Well done Angela & Romona, don't forget the pics of you with your medals.  Good luck to you both for Tuesday  :2thumbsup;
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paris
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« Reply #29 on: July 13, 2008, 01:48:59 PM »

How exciting!! :2thumbsup;  Great job Angela and Romona!   :clap;  Now we want to see pictures. 
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« Reply #30 on: July 13, 2008, 02:15:58 PM »

I love Angela!  :cuddle; The Transplant Games are amazing. The emotional roller coaster is something that can not be described! The donor families and living donors are incredible. The opening ceremonies are just amazing. If the games ever get to a city near you, go. Even if you don't have a transplant the atmosphere of courage and hope is something you will never forget. I could have spent hours looking at the quilt panels. Each square is so beautiful. The families that put the squares together are so creative and capture the spirit of the loved ones they have lost. The living donor and donor families are such hereos.
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monrein
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« Reply #31 on: July 13, 2008, 03:19:00 PM »

Congrats, Angela and Romona.  Sounds like a great time, wonderful people and how nice that you got to meet each other.   :clap; :clap; :clap;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
angela515
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« Reply #32 on: July 13, 2008, 03:25:42 PM »

The people in charge of my team are putting all the pictures from this years games onto a CD for each person on our team, and they are trying to get them to us Tuesday night/Wednesday morning, so if Romona hasn't been able to get a copy of the medal pics by the time I get home Wednesday night, then I shall post them then.

Unfortunately they were 14 medals short for team bowling, so we didn't get to walk around wearing a medal to show we won, awww :( :lol;. We did get to walk up when they called our names and get medals put on us and so forth but after they took pictures we had to give them back because they just borrowed those medals for us to take pics.

Romona is right, these games are AMAZING and WONDERFUL and an emotional rollercoaster. The opening ceremony was something I cannot describe... it was an amazing experience and to hear your team be called and walk in.. everyone cheering for you like your some kind of hero... makes a person cry. I think the hero's are the Living Donors and Donor Family's who allow us to even be able to be on this earth still. I am glad that the Donor Family's and Living Donor's got recognized by themselves and not just as part of the recipients team, they deserve their own recognition.

I really wish I could of came with my mom... even though the kidney I have working now is from a cadaver, she still deserves that recognition for saving my life by giving me a part of her. I hope one of these future games we can go together.

OK I am just going on and on, :lol;.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
okarol
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« Reply #33 on: July 14, 2008, 11:16:53 AM »



Altruistic non-directed kidney donor Fr. Pat Sullivan placed first in his group in the 5K run yesterday morning!

Here's his story if you want to know more http://www.livingdonorsonline.org/experiences/fatherpat.htm
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #34 on: July 14, 2008, 12:06:36 PM »

Glad you had such an amazing time. 

Fr. Pat is an incredible person. I always look for anything written or posted by him.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
pelagia
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« Reply #35 on: July 14, 2008, 02:29:16 PM »

 :yahoo; for Angela and Romona. Can't wait to see some pictures.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
angela515
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« Reply #36 on: July 15, 2008, 11:31:12 AM »

I won a Gold medal in bowling singles. I will have more pictures later, like the ones with me and the silver and bronze winners all together on the stands. So for now, I just used my cell phone and a mirror to show you it.
« Last Edit: July 15, 2008, 11:39:21 AM by angela515 » Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
thegrammalady
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« Reply #37 on: July 15, 2008, 11:41:24 AM »

 :clap;
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« Reply #38 on: July 15, 2008, 11:53:05 AM »

Wow, Angela! :yahoo; A gold medal! :clap; Thanks to you and Romona for representing IHD at the Transplant Games and making us all proud!  :thumbup;
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angela515
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« Reply #39 on: July 15, 2008, 12:08:58 PM »

Well... I represented Transplants and organ and tissue donation... not IHD... but ty.  :lol;
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Live Donor Transplant From My Mom 12/14/1999
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« Reply #40 on: July 15, 2008, 12:12:39 PM »

 :yahoo; I am so proud of you :yahoo;
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Chris
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« Reply #41 on: July 15, 2008, 05:53:28 PM »

Wish they would have it closer, within a days driving distance. As long as I can make it home while the sun is still up I could do it. But there are no plans to bring it to the surrounding area I was told last year.

Why do you need to drive home every night to be able to go to the games? Why can't you go to the games and stay with your team at the hotel and take the shuttles everywhere you go? It would be nice to have you come to the next one and be able to meet you and have you help promote transplants. :)


I'm independent, I rely on myself and can't afford to take an airline and a hotel stay for few days. I just need to attend and be able to drive back while it is still light out. Like a hospital stay, I like having my own room.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
angela515
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« Reply #42 on: July 15, 2008, 07:55:17 PM »

Wish they would have it closer, within a days driving distance. As long as I can make it home while the sun is still up I could do it. But there are no plans to bring it to the surrounding area I was told last year.

Why do you need to drive home every night to be able to go to the games? Why can't you go to the games and stay with your team at the hotel and take the shuttles everywhere you go? It would be nice to have you come to the next one and be able to meet you and have you help promote transplants. :)


I'm independent, I rely on myself and can't afford to take an airline and a hotel stay for few days. I just need to attend and be able to drive back while it is still light out. Like a hospital stay, I like having my own room.

We are independant also. We also don't pay for our hotel rooms, and we also get our own rooms. We also didn't take n airlanes, and we didn't pay for the bus we did take. So, now you can go. :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Chris
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« Reply #43 on: July 15, 2008, 08:10:50 PM »

I don't like buses. If I have to ride for long periods of time, I better be doing some driving. It is not convenient either for me compared to taking a plane or driving myself. A plane, 2 to 3 hour trip and your there, driving self, speeding, stopping when I want and where I want. I just have a thing about buses and will never take one again. So don't plan seeing my happy but self there anytime soon. :rofl;

Not into the fundraising stuff the team does either, that's can be done by someone else who like to sell stuff.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #44 on: July 15, 2008, 10:05:37 PM »



The next U.S. Games will be in Madison, Wisconsin, beginning July 30, 2010.  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #45 on: July 16, 2008, 05:05:19 AM »

Angela took another gold in bowling!!!! Way to go!  :clap;



If you live close enough to attend the next games, start making plans now. It is an incredible experience.  :bandance;
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paris
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« Reply #46 on: July 16, 2008, 08:35:45 AM »

You represented the IHD family by your participation and sharing the experience with us.  For those who may never get a transplant, it is good to live vicariously through you and Romona.  We also honor all those who have donated life.   Thank you both for letting us share your journey. :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
angela515
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« Reply #47 on: July 18, 2008, 03:01:42 PM »

Alrighty Chris...   :Kit n Stik;




« Last Edit: July 18, 2008, 03:09:22 PM by angela515 » Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
angela515
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« Reply #48 on: July 18, 2008, 03:14:22 PM »

Didn't know where else to post this pic, so figured this would be the right place.

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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Chris
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« Reply #49 on: July 18, 2008, 05:09:41 PM »

Alrighty Chris...   :Kit n Stik;






 :rofl; :rofl;
Sure your not using that bowling ball? :rofl; ;D
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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