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Author Topic: not my best  (Read 3001 times)
twirl
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« on: June 28, 2008, 06:36:13 AM »

well, I could not sleep last night
Kitkatz was also up
my tummy felt weird
so I do the only sensible thing
I drank 8 ounces of Pepsi    -----   three times
it is only 8:32 am and hot as hell in Texas
and I need to be out with Bubba today buying Aggie memorabilia

do you ever start your day in the negative
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kitkatz
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« Reply #1 on: June 28, 2008, 06:45:17 AM »

Yes, I have started my day with a negative.
This morning at 6 a.m the dialysis center woke me up.
They want me in at 9:30 today. *Sigh*

The three Pepsis should have an interesting time in your system.  Enjoy!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
twirl
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« Reply #2 on: June 28, 2008, 06:49:19 AM »

I have so much enegy :rofl;
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kitkatz
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« Reply #3 on: June 28, 2008, 06:50:25 AM »

I bet you do! Three pepsis will do that to you!    A crash and burn is waiting in the wings.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile

« Reply #4 on: June 28, 2008, 06:53:15 AM »

I think Twirl is a keeper for sure but it sounds like she also needs a keeper, to keep her out of trouble. :rofl; :rofl; Any volunteers?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #5 on: June 28, 2008, 06:53:47 AM »

Not me. She scares me!  :rofl; :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile

« Reply #6 on: June 28, 2008, 06:55:02 AM »

Yeah, I know what you mean.  But as her keeper you get to carry a whip AND your big stick.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #7 on: June 28, 2008, 06:56:08 AM »

I have to carry things?  I don't think I can do that and run after her, too.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile

« Reply #8 on: June 28, 2008, 06:58:29 AM »

You're quite right.  Taming Twirl would need an entire team plus back-up.  Well watching her run amok is entertaining (albeit somewhat concerning) so we'll leave her be.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #9 on: June 28, 2008, 07:00:15 AM »

Three pepsis and we have Twirl running amuck.  :bunny:
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #10 on: June 28, 2008, 02:01:33 PM »

Can apply for the position? I like Dt Pepsi?  ;)
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monrein
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Might as well smile

« Reply #11 on: June 28, 2008, 02:40:39 PM »

Aha, you devil Sluffy, you want to contribute to her delinquency.  This will not do at all.  I may just need to contact Sir Ken and banish you somewhere without dt pepsi.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #12 on: June 28, 2008, 08:36:17 PM »

How much does this job pay?  :)
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thegrammalady
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« Reply #13 on: June 28, 2008, 10:33:35 PM »

did she remember her binders????  pepsi has phosphors. and i don't have enough energy to chase her.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
KT0930
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« Reply #14 on: June 29, 2008, 07:12:37 AM »

uggh, pepsi and binders, that would be enough to make me sick, maybe it'd do the same to her and we wouldn't have to chase her, just strap her down to keep her out of trouble.  ;)
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
twirl
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« Reply #15 on: July 18, 2008, 10:33:32 PM »

not a good day
could not go to D this early morning
went at 3:00pm
I was gagging, sweating and basically sick as a dog
Dialysis called my doctor
and I have no calcium in my blood or very little
they increased my calcium in treatment and I have to take more Oscal

so I said some bad things in D
do not tell Sluff
I am not proud
and I did surprise everyone
usually I am quiet
an older lady by me asked to go to the restroom
the techs tried to talk her out of it and she said she could not wait
one tech told her to use a blue pad like her dogs do
I said, "She is not a f-ing dog, let her go to the GD bathroom!"   
needless to say, they let her go
I am not proud
I felt really sick
and it was pitiful to hear that patient be talked down too
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thegrammalady
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« Reply #16 on: July 18, 2008, 10:43:01 PM »

sorry to hear you're feeling so bad twirl, feel better soon.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
LadyStardust89
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Best darnest bowie fan dialysis patient ever...

WWW
« Reply #17 on: July 18, 2008, 11:14:16 PM »

I cannot believe nurses say these things... :urcrazy; thats crazy... Maybe its a because I'm at a pediatric unit.. but still our nurses are awesome.. they let us use the bathroom.. although they rather have u go before hand.. but they also have a curtains for privacy... and they help you.. I just can't believe that... All these things make me scared to go to any other place but mine... But our nurses will always help you...
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Bowie fan,llama fanatic... dialysis patient. Wicked.
rose1999
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« Reply #18 on: July 18, 2008, 11:18:42 PM »

Twirl you should be proud of yourself for sticking up for that lady   :clap; - I cant believe they think they can treat someone like that.  I'm sure Sluff won't be cross with you for swearing in D but I bet he'll be damn mad about those techs.  I hope you never have such a bad day again.   :cuddle; here, have a special bunny  :bunny:
Good for you for speaking up  :2thumbsup;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: July 19, 2008, 12:19:22 AM »


I agree, you should be proud of yourself for backing up that lady.
Makes me so angry. Let the tech sit in urine for an hour. Sheesh.
I hope you have better days than bad ones twirl.
Do you get copies of all your labs?
Here's a big {{{HUG}}} for you.
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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Stopping to smell the bluebonnets

« Reply #20 on: July 19, 2008, 12:32:34 AM »

:boxing;  I'm so proud you stood up for that lady!

 :cuddle; Hope tomorrow is a better day. No D!

And, I know about husbands. Mine can be insensitive too sometimes.
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Cadaver transplant April 29, 2007
monrein
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Might as well smile

« Reply #21 on: July 19, 2008, 03:55:49 AM »

 :grouphug; I bet that lady was also glad you stood up for her.  Sorry you had such a bad day and hope your weekend is way better. :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
David13
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A meow massages the heart.

« Reply #22 on: July 19, 2008, 04:48:18 AM »

I am very proud of you, Twirl.  No one deserves to be treated like that woman was treated, and she was fortunate to have you near her.

I hope you are feeling better today.   :cuddle;

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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
pelagia
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« Reply #23 on: July 19, 2008, 06:08:03 AM »

The very first impression I had when my husband started going to dialysis was that it's a culture all it's own.  Everyone on staff seemed just ever so slightly defensive when we were setting things up.  All the questions were like "Oh, he'll be going to xxx clinic.  Is that where he wanted to go?" and "Oh, we're sorry, we only have a spot of the T,Th, S afternoon shift." And after dialysis started, I made the mistake of calling the nephs office about something and was told by the receptionist that "I am not allowed to call them directly. The clinic will call us directly when there is a problem."  Well I can tell you that the biggest mistake anyone can make with me is to tell me, and especially in that tone of voice, that I am not allowed to do something that is completely reasonable.  My husband was having an allergic reaction to something and he was itching like mad, to the verge of tears.  I called our PCP and had my husband in his office 1 hour later.

Don't stop being an advocate for what is right Twirl.  It's empowering to advocate for others and for yourself.  :boxing; As far as strategy goes, hopefully you have woken them up to a new message of "don't mess with Twirl."  It might be sufficient now to "Walk softly, but carry a big stick" (I think Kitkatz has one you can borrow!)
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #24 on: July 19, 2008, 06:30:24 AM »

 :bow;     TWIRL, YOU ARE THE WOMAN.  Good for you.  We all need to take a page out of your book, but then I guess you wouldn't know how the story ends huh?  Ok I'll shut up now.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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