Otto's going to try Nxstage

[jbeany]

They are starting trials of "extended" with NxStage.  (They aren't allowed to call it nocturnal yet, for some reason.  As if anyone would agree to be hooked to it for 8 hours straight without being able to sleep thru it.)  The biggest issue with that is that it's not set up for gradual dosing of heparin, and you need a separate pump for it.

I'm not sure of the reasons behind not doing it on the 4 hour, 3 day schedule. 

[terry3004]

When I started on NxStage, I was on a 6 day per week schedule.  After a few months, I asked about going to 5 days.  My clinic deferred to my neph.  My neph said that 5 a week is ok as long as the two days off are not back to back.

I had to take two days off back to back because of some problems with my access after my day off and I fely horrible after the two days off.  I will never do that again if I can help it.

From what I understand, everyone starts on 6 days, and then after a couple of months the schedule can be backed off if everything is good.  The best thing is to ask questions, especially the "Why?" question.

[Wallyz]

As to the size issue-  It's more a function of Muscle mass and activity level.. So 100kilos could be okay with 5 treatments if you are not producing a lot of Acid from anaerobic muscle activity. 

[lola]

 :clap;after 2 days off Otto's blunt's went in on the 1st try. Everything went so nice today.

[Gram2Twinz]

  So glad to hear that the nxstage is working for ya.....if you need any supplies, let us know- we did nxstage for 8 months and now have a transplant- so ya need anything? Step righ tup..the price is right.....

[lola]

We did have to go buy a plastic mat for under Wall-E Otto forgot to clamp when he was coming off and got blood ALL over the carpet now it will wipe up with no problem. Otto is doing D in the living room so he can watch everything that is going on. Most supplies are in the basement

[lola]

Today was Otto's 1st day using the pureflow and must have done something wrong because the next thing he knew it looked like his saline bag was going to burst he's just redoing everything so if you don't hear from me again he blew up the house (hehehe)

[cherpep]

I can't imagine what he did.  When he figures it out, let us know.  I never heard of that happening.

[Meinuk]

Sounds like he forgot to hook the drain line to the Pureflow - so the machine drained back to the saline bag.  (he is not alone in this mistake!  Even seasoned pro's have been known to do that recently....)

[G-Ma]

Wow...my grandaughter asked the other day what would happen if fluid backed up into the saline bag and nurse said "oh that can never happen".  oops.

[Wallyz]

happens often.  Yellow line needs to be disconnected from saline bag and connected to a drain.

[jbeany]

We did have to go buy a plastic mat for under Wall-E Otto forgot to clamp when he was coming off and got blood ALL over the carpet now it will wipe up with no problem. Otto is doing D in the living room so he can watch everything that is going on. Most supplies are in the basement

Hydrogen peroxide works miracles - as someone with a cream colored chair for my dialysis room, I know this well!

[G-Ma]

yes it does.  I always have a bowl of it soaking something.

[lola]

We did have to go buy a plastic mat for under Wall-E Otto forgot to clamp when he was coming off and got blood ALL over the carpet now it will wipe up with no problem. Otto is doing D in the living room so he can watch everything that is going on. Most supplies are in the basement

Hydrogen peroxide works miracles - as someone with a cream colored chair for my dialysis room, I know this well!

Thanks I'll have to remember that.

[cherpep]

My dialysis chair at home is red - best decision I ever made!!!!

[jbeany]

It wasn't a choice I would have made on my own!  It just happened to be the only recliner in the house.  It was purchased second hand, so the color choice was never my favorite.

[G-Ma]

REDDDDD ...would love it.....whoo hoooo...well, mine for now is a wooden rocker and I'll get a footstool...my couch set has recliners on it, however it's all microfiber and new so I hate to ruin it with my gusher once in awhile unless I put plastic over it while I dialyse, however the nurse today said the rocker is ok if comfortable so think I'll go with that and a corner of the living rm will be hm to R2D2.

[cherpep]

My clinic actually provided me with a chair - ordered it from Gardner White, I got to pick the color.

[cherpep]

My nurse actually thought I was crazy when I kept saying red.  Then he thought about it and thought it was a good idea.  Actually, it being the same color as blood never even occurred to me.  I just wanted RED because it would be in my RED WING basement, LOL!!  It matches the decor.

[G-Ma]

crazy info from clinic again...they told me I was responsible for my chair........gotta love them.

[lola]

My clinic actually provided me with a chair - ordered it from Gardner White, I got to pick the color.

W H A T!!!! I wish they would give us a chair

[silverhead]

A couple of month's ago Sharon had a gusher from under the  seals after finishing a treatment, quite a bit went into the cream colored carpet and onto her green recliner, cleaned it up right away and used a lot of Hydrogen Peroxide, but the next day after the area dried I could see where every drop had been, so I mixed up a solution of Oxylean and soaked it well, I have one of the "little green machines" to extract it after soaking a little while and when it dried no more stains......
Tom

[lola]

Today Otto had his 1st labs to be done at home and he did great . Today he also had to do things with out me since I had a start up meeting for the bus company. Anybody who is thinking about doing home-hemo GO FOR IT!!! Otto for the last 18 years has had me doing everything when it comes to his health and him doing this on his own was VERY scary but he did it and it's the best thing, he feels so much better and his labs are also liking home-hemo

[okarol]

      

I am so happy it's going well!

[G-Ma]

Cheers for you two.......way to go.