Otto's going to try Nxstage

[G-Ma]

Oh man...hope the next week goes better for Otto...I had trouble with needles and of course the accompanying alarms and today just feel like yesterdays run didn't clean me out because I have that "taste" in my mouth so will be extra vigilant about tomorrows needles and run.  Some days I am so very close to calling and saying "OK I'll go back in center"...just get me out of this mess.  It might be easier if I had someone else to stick me more often but I hate to call my daughter in law away from her job etc just to give me a break as she gets the sticks done so well.   

[monrein]

G-Ma, this may be totally out to lunch but is your granddaughter with you for every treatment?  Does and can she help by holding the vein?  Would/ could she ever do the sticks?  Would you be confident in her?
I'm guessing that the answer is no but was wondering about all that. 

[G-Ma]

Hi....yes gdtr is here for all treatments and does hold my vein very well....I think she would be fine sticking me but I want to do as much as possible on my own...she was not happy today as I wanted to do everything and had her just hold the vein....but it too shall pass...I need to know all this so I can dialyze if I go on a trip or she goes on a trip and I need other help.  I just had my dtr in law trained to cannulate me in case I get the flu or something and just feel like    so to keep in practice she likes to stick every couple of weeks generally on a Saturday, so that's my vacation day ha ha.  Sarah "corrals" the vein and even tells me where it feels strongest etc so we are a good team.
Ann

[monrein]

Makes sense.  I was just thinking like a backup for days you have trouble, but absolutely you should do as much of the sticking as possible yourself. 

[G-Ma]

Yes...dtr in law would stick me if I have trouble but I don't want to get into that sort of rut....it would be just to easy to have trouble all the time I'm thinking....ha ha.....

[lola]

Otto is just getting back on Wall-e and it is breaking my heart, I just hope it goes ok with no problems

[xtrememoosetrax]

Poor Otto, and poor you. I'm so sorry; this must be very hard.  I'm sending hugs to both of you and hoping things go okay. 

[willieandwinnie]

Lola, my heart is breaking for you and Otto. You continue to be in my thoughts and prayers. 

[pelagia]

So sorry Amy. I hope that you can just take it day by day. 

[monrein]

Sending hugs and wishes for smooth runs, Amy.   

[lola]

Today It took forever to get Otto on Wall-e as he didn't wanna play well he got done and when he pulled the 1st needle he told me to come look at his arm and the top was like a balloon so I called our nurse who said to get him in asap, well that took another hour of begging and once there they did an ultrasound and said there is narrowing and made an appt to see surgeon in am. Well Otto's treatment plan is a little diffrent NO surgeon NO dialysis I'm praying he will get a good nights sleep and change his mind in the morning.

[G-Ma]

I hope he will feel better in the morning...my narrowing just took about 5 seconds to fix and it is working great.  I hope he tries it.  Prayers to you both.
Ann

[jbeany]

 

I hope he changes his mind, too, Lola.

[okarol]

  Poor guy.

[monrein]

 

[lola]

Thanks G-ma, I wish someone would have explained this to Otto as he's thinking he needs major surgery.

[lola]

Otto has agreed to go in at 2:30

[paris]

I'm hoping they can fix this without any major surgery.   Poor Otto, he has dealt with too much.  You two just keep getting through each day.  You are amazing!   Sending good wishes to both of you 

[Sunny]

I'm sure the last thing Otto wants to do is have a surgery of any kind. Hopefully he will feel a little better in a few days so he can go ahead with it. This one should go far easier.
Good luck.

[lola]

We just got home a little bit ago and we are waiting till Monday, the Dr also thinks Otto has an aneurysm in the top of his fistula and they could not get him in today and the only way to put him on tomorrow's schedule was to put him in the Hospital tonight and Otto was not doing that.

[okarol]

Damn! 

[okarol]

Here's info, maybe you read it already:
http://ihatedialysis.com/forum/index.php?topic=4287.0 Fistulagram/Fistulaplasty

[G-Ma]

We are thinking positive..he will be fine.  I was more afraid of the lidocaine than anything else.  Monday will give you more info.
Ann

[cherpep]

Lola, I am praying that he can have dialysis soon.  I can't imagine the struggles, pain, and frustration you and your family are going through right now.  I am praying for patience and strength for you all.  Did his hiccups ever stop?  Do they know what was the cause?  My family and I think about your family often, and they all want me to tell you that their hearts are with you.

[pelagia]