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Author Topic: 6 month biopsy today  (Read 9253 times)
keith
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« on: June 16, 2008, 09:31:25 PM »

does anyone else get nervous on da day dat ur getting ur biopsy  i need to leave my house @ 5:30 and b n in Philly by 8:00 it's now 12:30 and i can't sleep  just needed to  :rant;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
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okarol
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« Reply #1 on: June 16, 2008, 10:31:55 PM »



I hope all goes well - be sure you get local anesthesia. Take it easy afterwards - please let us know how you're doing. Go to bed!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
stauffenberg
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« Reply #2 on: June 17, 2008, 10:49:44 AM »

Is there any particular reason why they are doing a biopsy?  Most centers don't perform biopsies as a routine matter, given the injury they can cause to the kidney.
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angela515
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« Reply #3 on: June 17, 2008, 10:51:02 AM »

I never get nervous before a biopsy, but then again I don't allow them to a transplanted working kidney. Good luck.
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
MIbarra
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« Reply #4 on: June 17, 2008, 06:23:51 PM »

They have never asked me to do a kidney biopsy and it's been a bit over a year since the transplant.
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Cadaver transplant April 29, 2007
MIbarra
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Stopping to smell the bluebonnets

« Reply #5 on: June 17, 2008, 06:28:08 PM »

I hope everything goes well, Keith. Keep us informed!
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Cadaver transplant April 29, 2007
kimcanada
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« Reply #6 on: June 17, 2008, 07:14:26 PM »

I get nervous Keith, but I get nervous about everything :S
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keith
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« Reply #7 on: June 18, 2008, 08:44:23 PM »

Thanks everyone!!!! no everything is fine i guess dat Hahnemann does a biopsy on all transplant patients @ ur first 3months then@6months and @ur one yrs anniversary and every yr afterwards  but none da less I'm good  and again  :thx;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
okarol
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« Reply #8 on: June 18, 2008, 09:25:34 PM »


Jenna had a biopsy at 1 month, and 6 months and a year. They said they can spot early rejection much earlier, before serious damage has taken place. Makes treatment more effective. We opted out of a second needle biopsy each time for a research study, one seemed more than enough.

Happy to hear yours went ok keith!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #9 on: June 19, 2008, 04:34:23 AM »

Glad things went well. Good news is always great to hear.  :2thumbsup;
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rose1999
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« Reply #10 on: June 19, 2008, 01:36:19 PM »

Hey Keith glad it all went well  :thumbup;
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kidney4traci
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« Reply #11 on: June 19, 2008, 06:03:30 PM »

Glad all is well Keith!  I didn't realize they did a biopsy on transplanted kidneys - thought they would be more protective. 
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
stauffenberg
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« Reply #12 on: June 19, 2008, 07:27:37 PM »

One of the stupidest habits of modern medicine is its willingness to take huge risks with the patient's health by performing highly invasive and destructive medical testing just to achieve a tiny gain in diagnostic accuracy.  I swear the average doctor would saw the patient's head off if he felt it would improve his diagnosis of the state of jugular veins by 1%!  Just look at all the people who wind up on dialysis because some medical idiot injected a nephrotoxic contrast dye into them just to improve the accuracy of the diagnosis.
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monrein
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« Reply #13 on: June 26, 2008, 01:38:13 PM »

I had two biopsies of my transplanted kidney in 23 years and never did I feel that they were totally unnecessary.  Both times it was because my creatinine was rising inexplicably and my neph wanted the biopsy to determine whether it was a case of rejection which would require one course of treatment or cyclosporine toxicity which would require another.  Both times, my neph asked me how I felt about having the biopsy and my question both times was "How will what we learn from it change what we're doing now?"  Both times I was told that if it were acute rejection or a lingering rejection we'd treat it aggressively with anti-rejection drugs but if it were toxicity we'd switch the immunosuppressive regimen.  That made sense to me.  The first biopsy resulted in a switch from cyclosporine to cellcept and the second showed that the kidney was no longer functionning very well and we started making plans for vascular access surgery and a return to dialysis.

Of course there are bad doctors out there who just want to be right, perhaps at a patient's expense but that has not been my personal experience at all.  We also owe a duty of care to ourselves to take the information provided by our doctors and research the benefits and the downsides just as we would in any consumer situation.  Only more so.   My first question is always "I need to know exactly why this is a good idea, what are the risks compared to the benefits and how many times have you personally had experience with this situation?"  When I fail to do this it is ME that I get most mad at.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #14 on: June 26, 2008, 02:30:28 PM »

This is a very helpful discussion that I will try to remember.  My husband pretty much hates to ask questions and I pretty much have to know details.  Sometimes he thinks I come over as too pushy (who me :sarcasm;).  I like the way monrein simply stated the important questions.

"I need to know exactly why this is a good idea, what are the risks compared to the benefits and how many times have you personally had experience with this situation?" 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #15 on: June 26, 2008, 02:44:40 PM »

keith          miss you when you do not post much             :bandance;  - you , always dancin'and happy
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MyRenalRomance
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« Reply #16 on: August 08, 2008, 11:42:06 PM »

Glad I noticed this thread.  Stanford just called me, today, and informed me that yesterday's labwork showed that my creatinine was 1.2 for a second week in a row.  (7 weeks ago I was discharged from the hospital w/ .7. One week later it was .86.   My creatinine has been slowly rising ever since my transplant).

Doctor increased my Prograf, today.  I go back to the hospital on Tuesday to repeat labs.  If creatinine has improved, I'll get to go home.  If creatinine has not improved by then, a kidney biopsy will be performed.  I was in a bit of a shock when the nurse informed me that the test was to determine if I was suffering from possible rejection.  I think I will call back on Monday morning and ask a lot of questions!

I'm not nervous, but I do think I need to be better informed about this procedure.
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
Chris
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« Reply #17 on: August 09, 2008, 12:11:45 AM »

Glad I noticed this thread.  Stanford just called me, today, and informed me that yesterday's labwork showed that my creatinine was 1.2 for a second week in a row.  (7 weeks ago I was discharged from the hospital w/ .7. One week later it was .86.   My creatinine has been slowly rising ever since my transplant).

Doctor increased my Prograf, today.  I go back to the hospital on Tuesday to repeat labs.  If creatinine has improved, I'll get to go home.  If creatinine has not improved by then, a kidney biopsy will be performed.  I was in a bit of a shock when the nurse informed me that the test was to determine if I was suffering from possible rejection.  I think I will call back on Monday morning and ask a lot of questions!

I'm not nervous, but I do think I need to be better informed about this procedure.

Ask to be out, not awake. Best that you do not know what is going on around you if you do not like loud noises, pressure where kidney is, and the device they use. A scene from The Matrix Comes to mind when it comes to biopsies.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #18 on: August 09, 2008, 01:19:31 AM »



Jenna was awake, they did a little lidocaine injection before the biopsy. It was painless. The difficulty is laying flat for the 2 hours afterwards.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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« Reply #19 on: August 09, 2008, 08:35:43 AM »

Glad it went well for you Keith!

I've never been knocked out for biopsies, always just local lidocaine or something similar. It feels later like a painful bruise, but not unbearable. The worst was when they got too close to the edge of the kidney and didn't get a useful sample, so they had to re-do it the next day. Like the others, it was being used each time to determine exactly why my creatnine was rising. I have not had one done to the transplant I got in January, and I have not heard the possibility mentioned yet, but my creatnine has remained between .7 and .9 since about a week post-transplant.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
monrein
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« Reply #20 on: August 09, 2008, 08:46:14 AM »

Biopsies to my transplanted kidney have never been painful.  I just had a little local anesthetic, and felt a slight pushing on the kidney.  Not a big deal at all.  Now, I don't know what it would be like with native kidneys since I never had one done.
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #21 on: August 09, 2008, 11:10:07 AM »

Glad it went well for you Keith!

I've never been knocked out for biopsies, always just local lidocaine or something similar. It feels later like a painful bruise, but not unbearable. The worst was when they got too close to the edge of the kidney and didn't get a useful sample, so they had to re-do it the next day. Like the others, it was being used each time to determine exactly why my creatnine was rising. I have not had one done to the transplant I got in January, and I have not heard the possibility mentioned yet, but my creatnine has remained between .7 and .9 since about a week post-transplant.

My transplant center is the same. They will only do it if utterly necessary. My first one was on my liver when I had CMV. I was in pain already and they had to poke me 4 times to get a good sample. All the previous tries did not get enough tissue. No one explained the procedure which may or may not have helped. I wish I was out tough for that one. The one they did for my kidney, I was out though since I was already in the hospital. I am also sensitive in the abdomen. I do not like being touched or pressed in that area. My local doctors know that by heart and will only do it if necessary thank god.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MyRenalRomance
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« Reply #22 on: August 11, 2008, 12:01:35 PM »

I've been told that they will use a local anesthetic (lidocaine?) and that I won't feel anything.  Afterwards, they'll keep me in the hospital to lie flat for 4-6 hours, but as long as I can bring my ipods, I won't have a problem!   ;musicalnote; 

Local anesthetic injections work well for me.  When I had my stent removed, I didn't feel a thing!  Like KT0930 said, it just felt like a bruise or something afterwards - no biggie!

Chris:  Is the device they use loud?
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
Chris
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« Reply #23 on: August 11, 2008, 12:54:52 PM »

Trying to think of an ofice product to compare it to.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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******
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Gender: Female
Posts: 8323


Might as well smile

« Reply #24 on: August 11, 2008, 04:55:31 PM »

How about a hole punch??
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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