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Author Topic: First time with Fistula  (Read 2512 times)
celtic warrior
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« on: May 29, 2008, 01:40:42 AM »
Well , Maria is at the Dialysis Center today, and it is going to be the first time her Fistula is used.
We are both hoping everythin runs o.k. and then she can stop taking her Warfarin.

Just realised that I forgot to update you about her anti GBM antibodies  :Kit n Stik;
We spoke to the Nephrologist about the rise in the antibody levels,and told him of our concerns.
Telling him that we KNEW they were presently at 225, and that they were at a level of 428 when it damn near killed her.
He assured us that they were going to do a monthly check on the levels (along with her normal bloods) and that they were
fully aware of the situation. However, he did not want to start treatment with Cyclophosphamide and Prednisolone until
he was sure it was absolutely needed,as it is such a powerfull treatment  (as if we did`nt already KNOW that, with Maria going through it before)
So, for the moment we are going to bow to his wishes, but are we gonna JUMP on him if anything starts to go wrong.

Well, thats all for now, sorry it took so long to update you ::)
Tony.
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2_DallasCowboys
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« Reply #1 on: May 29, 2008, 04:28:06 AM »
Hi,

Just wanted to say I will be thinking and
praying for Maria this AM.  I know how scary
the "first time" with the fistula can be.
Sending you and her best thoughts from NJ

Anne
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monrein
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Might as well smile
« Reply #2 on: May 29, 2008, 05:14:57 AM »
Hope it all goes well today for Maria with the fistula and be sure to keep on top of the doctor.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #3 on: May 29, 2008, 06:41:12 AM »
celtic warrior, I'll keep Maria in my thought this morning that the fistula has a perfect run.  :cuddle; Let us know how it went.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
celtic warrior
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« Reply #4 on: May 29, 2008, 07:50:44 AM »
Thank you all for your kind thoughts and prayers.


how did it go?  :yahoo; :2thumbsup; :yahoo; :2thumbsup; :bandance; :bandance; :bandance; ;D
I think the nurse was more nervous than Maria, who tells me she never felt a thing, well, nearly nothing.
Mind you, after the ammount of Emla cream she put on I should`nt think she COULD feel anything ;)

She removed the dressings a few minutes ago,,and it is just possible to see where she was stuck. I was amazed, I expected to see 2
great puncture marks.

see you all later
Tony.
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devon
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« Reply #5 on: May 29, 2008, 08:12:19 AM »
THanks, Tony, for sharing this.   As someone who is just a few steps behind you, it's helpful to "see" someone else going through this process ahead of me.

-Devon
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lola
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I can fly!!!
« Reply #6 on: May 29, 2008, 08:21:22 AM »
Tony so glad everything went so good :bandance;
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rose1999
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« Reply #7 on: May 29, 2008, 08:27:12 AM »
That must be such a relief for both of you................ :yahoo;
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Psim
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« Reply #8 on: May 29, 2008, 08:32:15 AM »
I'm so glad it all went well!
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kellyt
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« Reply #9 on: May 29, 2008, 11:44:30 AM »
 :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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Might as well smile
« Reply #10 on: May 29, 2008, 11:51:48 AM »
That's what we like to hear. :yahoo;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #11 on: May 29, 2008, 12:23:54 PM »
So glad it went well for Maria.  I love to hear all the details because that is how we learn and prepare for when it is our turn.  Thanks for sharing.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Ohio Buckeye
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« Reply #12 on: May 29, 2008, 02:47:57 PM »
Glad it went well for Maria.
Hope it continues to be that way.
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If I must do this to live, I must strive to live
while I am doing this.
kidney4traci
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« Reply #13 on: May 29, 2008, 03:30:31 PM »
Here's to her not being a virgin anymore!  Ha ha ...  Glad it went well!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
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