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charee
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« on: July 16, 2006, 08:19:04 PM »
HI Everyone  I have just found this site hope its ok to join as i have yet to start dialysis but i am not far off . I have polycystic kidney disease and have just started the rounds of deciding which way to go ie home hemo or pd . That is how i stumbled on this great site . Iam 43 and live in Australia .MY 2 sons are 21 and 19 and also have pkd. My husband is in the process of getting blood work done to see if he can give me a kidney so fingers crossed. well i think thats enough about me . Keep up the great work , this is a great site to learn heaps.

Cheers  Charee
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
angieskidney
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« Reply #1 on: July 16, 2006, 08:27:01 PM »
Quote from: charee on July 16, 2006, 08:19:04 PM
HI Everyone  I have just found this site hope its ok to join as i have yet to start dialysis but i am not far off . I have polycystic kidney disease and have just started the rounds of deciding which way to go ie home hemo or pd . That is how i stumbled on this great site . Iam 43 and live in Australia .MY 2 sons are 21 and 19 and also have pkd. My husband is in the process of getting blood work done to see if he can give me a kidney so fingers crossed. well i think thats enough about me . Keep up the great work , this is a great site to learn heaps.

Cheers  Charee
Of course we are glad to have you here :) Glad to have you!!! Hi and welcome! :) Check out the games and the chatroom :)
« Last Edit: July 16, 2006, 11:36:16 PM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
goofynina
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« Reply #2 on: July 16, 2006, 09:40:50 PM »
Hello Charee and welcome to the best website regarding this matter.  We all have one thing in common here and that is dialysis.  In this website you will find more information than just about any other and it is all by patients and families of patients.   Please take your time and read the posts and by all means ask any questions you can think of.  There are so many members here that are willing to listen, answer your questions and share their stories.  Please take the time to read the site rules also.  We Welcome you again and we sure do look forward to your questions comments and concerns...
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....and i think to myself, what a wonderful world....

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Hephs-little-lady
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« Reply #3 on: July 17, 2006, 12:06:11 AM »
Hi Charee,

Welcome to the site.

Take your shoes off, put your feet up and make yourself at home.

It's good to have you here.  :D
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:D Knowledge Is Knowing That A Tomato Is A Fruit, Wisdom Is Not Putting It In A Fruit Salad.
Joe Paul
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« Reply #4 on: July 17, 2006, 01:51:53 AM »
Hello Charee, welcome to the family. Its a shame we have to meet this way, but being here is the best answer to start coping with the situation.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
Bajanne
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« Reply #5 on: July 17, 2006, 02:22:35 AM »
This is the best time for you to join.  This was exactly when I joined.  I was just diagnosed, and starting to freak out, when I came upon this site.  It helped me prepare myself for dialysis.  So read the posts (I know, over 7000!!!), ask some questions of your own, and share your feelings with us.  We are all here for you.
Welcome to our community!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
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« Reply #6 on: July 17, 2006, 08:07:12 AM »
Hi Charee,  Welcome to our site.  I'm sorry that you have PKD and both your sons too.  If you husband doesn't match you, then maybe he will match one of your sons.  Take a look around the site. You can lose yourself for days here.  We also have PM's (Personal Messages).  If you click on one of our names, you can scroll down and send us a PM if you get stuck and need help.
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charee
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« Reply #7 on: July 17, 2006, 03:08:54 PM »
Hi Everyone Thanks for the welcome ,I am reading heaps and learning as i go . Its all getting very  real and alittle frightening .Thanks again

Charee
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Black
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« Reply #8 on: July 17, 2006, 03:51:54 PM »
Hi Charee,

Glad you found us.  This is a great site for support and information.

My husband has PKD, as well as his son and one of his daughters.  He has not started dialysis yet - GFR11.  We were told that PD is not an option for him as his enlarged kidneys do not leave enough room for sufficient solution for effective dialysis.  He had his A/V fistula done the end of January.

If your family is not familiar w/ ways to possibly slow the progression of PKD please check out the yahoo PKD mail list or contact me privately.

Again, welcome!

Lorelle
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Sluff
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« Reply #9 on: July 19, 2006, 07:33:52 PM »
Welcome to the site Charee.

I am a non dialysis kidney patient also but find this site  very well organized, informative and friendly.
You will learn alot about kidney disease and especially dialysis.

I will eventually be on dialysis myself but I hope it is later than sooner.
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