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Author Topic: OMG...I got a transplant  (Read 12724 times)
Laurie
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May 13, 2008
« Reply #25 on: May 17, 2008, 08:13:09 PM »
 :yahoo; I'm home. I was released today at 1:30. It feels soooo great to be home again. Everything happened so fast, I think I'm still in shock.
Today has been pretty rough for me. I was so excited about leaving the hospital, but at the same time, all I could think about was my donor and their family.
It's so hard to comprehend that I have a part of someone else in me. I plan on writing my donor family, so maybe that will give me some peace.

To all those on the list, don't give up. The call will come when you least expect it.  :cuddle;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
okarol
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« Reply #26 on: May 17, 2008, 08:50:00 PM »
 :clap; Take care Laurie!
Drink your water and get some rest!
I am happy you are home!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BigSky
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« Reply #27 on: May 17, 2008, 09:07:00 PM »
 :clap;
Congratulations.
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Laurie
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May 13, 2008
« Reply #28 on: May 21, 2008, 08:04:25 PM »
Well, I ran into a little bump in the road. When I was released from the hospital my creatnine was 1.3. On Monday at clinic it was 1.6, so they stopped my diuretic thinking maybe I was getting dehydrated. Today at clinic it was 2.0. So, they decided to send me for a sonogram and biopsy. I will get the results in the morning. My prograf levels were a little low today, so they increased it. I'm hoping that's the cause of the elevated creatnine and not the early stage of rejection. I knew things were going too good. I just hope this gets resolved quickly.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Sunny
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Sunny
« Reply #29 on: May 21, 2008, 08:14:40 PM »
Hope it's just a minor glitch and things work out well for you.
Get better soon.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Rerun
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Going through life tied to a chair!
« Reply #30 on: May 21, 2008, 08:21:21 PM »
Congratulations Laurie!!!   Things will be up and down for the first year until you figure out your meds.  You'll be fine.

It is VERY weird thinking about your donor.  But, write the letter and the family will be so glad that part of their loved one lives on.  You may always wonder about them.  After time goes by you may want to write to them again and up date them on your progress.  Yes, it is a debt that you don't feel like you have earned, but it is a gift to you so cherish it and enjoy it.  If God were to tell that person that it was time to go home would they leave their kidney to help someone else they would say "yes".
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Laurie
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May 13, 2008
« Reply #31 on: May 22, 2008, 06:59:44 PM »
Well, it's official. I'm in the early stages of rejection. I will be admitted to the hospital tomorrow morning to start IV meds. I will be in for 3 - 5 days.
Please send some postive energy my way.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Sunny
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Sunny
« Reply #32 on: May 22, 2008, 08:43:14 PM »
Hoping things go your way.
I will be thinking of you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
MIbarra
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Stopping to smell the bluebonnets
« Reply #33 on: May 22, 2008, 08:44:41 PM »
I'm thinking positive kidney thoughts for you.
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Cadaver transplant April 29, 2007
xtrememoosetrax
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« Reply #34 on: May 23, 2008, 06:25:06 AM »
Wow, Laurie, that's scary. I hope they get this turned around quickly. I'm sending caring thoughts and positive vibes your way. Hang in there, okay?  :cuddle; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
willieandwinnie
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« Reply #35 on: May 23, 2008, 06:42:58 AM »
Laurie  :cuddle; I'll be thinking and praying for you. Please keep us posted.   :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Chris
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« Reply #36 on: May 23, 2008, 06:14:27 PM »
Sorry for reading this late, but luckily I am replying after reading all the post. So congradulations on one end and sorry to hear what has happened to you on the other end. I hope they can help stop the kidney from rejecting so you can stay off dialysis for as long as possible.
Take Care
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #37 on: May 23, 2008, 09:37:45 PM »


I hope they take good care of you and turn this around. Praying for you Laurie!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #38 on: May 24, 2008, 11:24:13 AM »
 :grouphug; Sending good thoughts your way.
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kimcanada
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« Reply #39 on: May 24, 2008, 05:33:59 PM »
Laurie, heres to positive thoughts coming your way
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #40 on: May 24, 2008, 06:06:13 PM »
Hoping and praying all gets resolved quickly and you get back on track where you belong  :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Laurie
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May 13, 2008
« Reply #41 on: May 24, 2008, 06:28:13 PM »
I had my first treatment last night and ended up having a bad reaction to it. With the help of some other drugs, I made it through it. I am currently getting my second dose. It's going good so far. They gave me some meds beforehand to help with the reaction. My creatnine was down to 1.4 today, so that's a good sign.
Logged
March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #42 on: May 24, 2008, 07:42:50 PM »
  :thumbdown; :thumbdown;  :thumbdown;


this is not the thumbs down just giving creatinine the sign where to go
Logged
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #43 on: May 25, 2008, 06:40:22 PM »
Congrats! Sorry I'm so late. I hope things continue to get better.  :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
G
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Let's go steal some pic-nic baskets Boo-Boo
« Reply #44 on: May 25, 2008, 07:08:11 PM »
You're a trooper Laurie!  :bow;   My family is pulling for you and yours!
G
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No kidneys
No spleen
No parathyroid
On list as of 10/07
Still fun
MyRenalRomance
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« Reply #45 on: May 25, 2008, 09:13:20 PM »
  :yahoo; Belated congratulations on your new kidney!  So sorry to hear of the complications.  My thoughts are with you, and hoping the best for you!  :bestwishes;
Logged
Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
Chris
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« Reply #46 on: May 25, 2008, 10:59:49 PM »
Hopefully your creat stays lows. Glad it is taking a turn for the better.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cambonesegirl
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« Reply #47 on: May 26, 2008, 11:20:24 AM »
Congratulations! :yahoo; :bandance;

Yeah your creatinine will continue to go down. I'm two months post transplant and mine is 0.8.

Enjoy your new kidney and drink lots!
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kitkatz
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« Reply #48 on: May 27, 2008, 05:00:45 PM »
I hope all is going well for you while you are in the hospital.  Make sure they feed you and give you things to drink once in a while.  Take care of you!  :grouphug;
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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Lori1851
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This is me Lori , Dustin's mom
« Reply #49 on: May 27, 2008, 06:45:03 PM »
 Praise The Lord!!!! :yahoo;

So glad you got your transplant!!!!!!!!! I am so HAPPPPYYYYYY for you!!!!

Lori/Indiana
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