NEW CELLCEPT WARNING!!!!

[circleNthedrain]

Hey Angelface, so sorry to hear of your vision problems.  I took cellcept for a couple of years to try and slow the deterioration of my transplanted kidney.  After a couple of years on cellcept, I developed severe diarrhea, only it took over a month of doc visits to diagnose cellcept as the cause...WTF??  I also had severe vision changes, lost most of the vision in my left eye overnight.  Had endless eyetests done with no answers.  This forum is the first place that makes the connection between CC and vision changes.  I also have many of the symptoms described in okarols report on PML.  Severe weakness in my legs, speech difficulty, and very limited use of my hands.  Is this the result of cellcept use??  I don't think I will ever know, and it really doesn't matter now.  As anybody knows who has embarked on this transplant journey, you just gotta role the dice!

[Chris]

After a couple of years on cellcept, I developed severe diarrhea, only it took over a month of doc visits to diagnose cellcept as the cause...WTF?? 

What an idiot doctor. CellCept is a given for Diarrhea. If he prescribed it and didn't know that, what a dumb When they switch my dose up at times when I am sick (they stop my Prograf), it is always going to happenwith me. Or if you eat after taking the med or shortly before.

[angelface2008]

I have had lupus for a very long time. and since my switch from cellcept to immuran my kidney again is acting up.my doctor thinkgs it was a very bad idea to make the switch of the meds, but he is not in my shoes. my doctor suggests a kidney biopsy to see what the heck is going on in there (my body). i am on prednisone, immuran, cozaar,lipitor,actonal, diovan, and other supplements. i hope i don't have to go thru this S__T!! again. i want to give up on my kidneys sometimes, but other times i hang in there by a thread (a very skinny thread). this immuran better kick in soon or my prednisone will go up and i will end up needing cytoxin therapy again. and to make matters worse school statrs soon (Aug. 23) i don't want to be eating the stupid 20mg of prednisone. i hate the way i feel and honestly look!! take care guys!!
love angelface

[Sugarlump]

Having just read this thread i'm now really worried ... had transplant feb 08 episode of CMV and mild rejection April ...then acute rejection last week. Now on cellcept 750mg a day??? My creatinine is stuck in 600's and feeling pretty ruff. I'm finding emotional turmoil of transplant hard to handle ...up and down like yo-yo ... drugs don't help either 

[MelissaJean]

Having just read this thread i'm now really worried ... had transplant feb 08 episode of CMV and mild rejection April ...then acute rejection last week. Now on cellcept 750mg a day??? My creatinine is stuck in 600's and feeling pretty ruff. I'm finding emotional turmoil of transplant hard to handle ...up and down like yo-yo ... drugs don't help either 

I have been on 1000mg/day of cellcept for 4 years now (received a double lung transplant in '01) and I talked to my doctors today.  They said no worries because the study was done on a small focus group.  If you are really concerned I would definitely talk to your doctor to see what they have to say.   

I agree the turmoils of post transplant are super rough.  After getting my transplant I encountered a lot of new problems (and still do.. including kidney failure), and sometimes I wish I would go back to having my old disease because I knew how to deal with it.  Hope the emotional turmoil gets better.. don't know how long you have had your transplant but it gets better!