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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #22150 on: February 06, 2010, 01:51:47 AM »
I win tonight cos I am an idiot!  Paul is off at stock car races, and Molly is at a cousins and I am all alone.  I have been out to a party though.  Anyway, I don't know whether it was because I got my own bags up and was out of sinc or what, but I connected the set on the machine without closing the clamps, then attached the bags and forgot the extraneal one all together!  How bizarre is that!  I do this every night!!!! Luckily the machine just beeped at me during the priming and I fixed both things ha ha.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willowtreewren
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My two beautifull granddaughters

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« Reply #22151 on: February 06, 2010, 06:59:59 AM »
Beep, Beep! We are all idiots. Or is that: we are all insane???

Only Dan could answer a question like that!  :rofl; :rofl;

On to the weekend.  :clap;

As I said to Carl yesterday...
We have the whole weekend stretching before us...
Well we have the whole Saturday stretching before us (Sunday is completely booked)
Well, we have bits and pieces of Saturday stretching before us. (Grocery shopping, laundry and dialysis)

 :rofl; :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22152 on: February 06, 2010, 10:23:36 AM »
    Good afternoon (or whatever it is where you are)  :waving;
   
    If it's Saturrday., you know I'm coming to you during another exciting ADVENTURE IN DIALYSIS (just imagine that had a professional announcer using an echo  :rofl; :rofl; :rofl;).  Yup here again, and I'm ging to keep coming back too.. :rofl; :rofl; :rofl; :rofl;  Where all the tyoing is one handed and brought to you full of errors for yor amusment.  :rofl; :rofl; :rofl;

   Aleta our weekends are like that too. Use to I never really concerned myself with weekends. I'd work them most of the time.  But now things are different.  I try to do things on weekends, when we're both available, and am up in the day time going places and doing things.  My God look what dialysis has done to me....It's plain awful.   :rofl; :rofl; :rofl;   No seriously, we plan things around those parts of Saturday and Sunday that are "free'.  Seems like there is always more that needs to be done than either time or chances to enjoy the weekend.

    Looks like my wife will not be joining us, and I'm not going to ask her anymore.  Enough said about that subject.  ::)

   Rainy day, damp and cold. At lest it isn't snow like the places North me are getting.  And if you happen to live in those places  :( for you.
   
   
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
dwcrawford
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Getting the heck out of town.
« Reply #22153 on: February 06, 2010, 10:27:59 AM »
Is that garrison keillor from a Minnesota dialysis clinic?
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22154 on: February 06, 2010, 10:34:00 AM »
Quote from: dwcrawford on February 06, 2010, 10:27:59 AM
Is that garrison keillor from a Minnesota dialysis clinic?

    Nope, the guy (this going to sound bad, but I'm silly and will say it anyway) tugging on that mule.   :rofl; :rofl; :rofl;    :waving;

   
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
looneytunes
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Wishin' I was Fishin'
« Reply #22155 on: February 06, 2010, 10:55:38 AM »
Hello all you crazy folks.  Thanks FC and DW and WTW for a good grin today.  And I am winning so far today!   :clap;
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fc2821
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« Reply #22156 on: February 06, 2010, 11:20:48 AM »
Quote from: looneytunes on February 06, 2010, 10:55:38 AM
Hello all you crazy folks.  Thanks FC and DW and WTW for a good grin today.  And I am winning so far today!   :clap;

    You're welcome, and Ah no you're not winning now... :rofl; :rofl; :rofl;

   Well, you deserve to win, take my spot....I'm not really here it is all in you imaginenation this time... :rofl; :rofl; :rofl;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
willowtreewren
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« Reply #22157 on: February 06, 2010, 11:32:08 AM »
Rob, I'm sure glad I don't live near D.C. anymore!  :rofl; :rofl;

It's been spitting snow here. But won't amount to anything. But it sent all those crazy Tennesseans out to the grocery store for milk and bread!  :rofl; :rofl; :rofl;

Made it hard for us "regular" shoppers!  :banghead;

I just have NOT been able to get myself motivated to do all the BORING work I have on my plate for today. I can't imagine why.... :waiting;

So much more fun to be HERE!  :waving;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22158 on: February 06, 2010, 11:34:08 AM »
Quote from: willowtreewren on February 06, 2010, 11:32:08 AM
Rob, I'm sure glad I don't live near D.C. anymore!  :rofl; :rofl;

It's been spitting snow here. But won't amount to anything. But it sent all those crazy Tennesseans out to the grocery store for milk and bread!  :rofl; :rofl; :rofl;

Made it hard for us "regular" shoppers!  :banghead;

I just have NOT been able to get myself motivated to do all the BORING work I have on my plate for today. I can't imagine why.... :waiting;

So much more fun to be HERE!  :waving;


     Yes it is, even if I'm here at dialysis....  :yahoo; :yahoo; :yahoo; :2thumbsup;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
HubbysPartner
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Our first New's Year's together - A new beginning
« Reply #22159 on: February 06, 2010, 01:46:45 PM »
Well, Aleta, that little bit of snow around DC turned out to be a whole lot more!  My daughter said that she got 2 feet in the Harrisburg, PA area.  Yep, I like winter in Atlanta, lots of rain, but no shovels necessary.   :rofl;  :rofl;

We got most of our chores done so I'm relaxing!  I will be making Irish potato leek soup later.  I tasted it last week and it was delicious!  I hope I can make it as well as the soup I tasted.   :2thumbsup;
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Caregiver to husband, Lou, diagnosed 2/2008
4/2009 - Fistula
10/2009 - Started NxStage training
112009 - Finished training; at home with nxstage

Our family - husband, Lou; me, Marge; sons, Marc & Keith; daughter, Liz
Be still and know that I am God. - Psalm 46:10
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #22160 on: February 06, 2010, 02:31:33 PM »
It's Paul's birthday today (7th Feb) so I WIN because for a few months he is 47 nad I am only 46 - so I can make fun of him ha ha ha.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
looneytunes
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Wishin' I was Fishin'
« Reply #22161 on: February 06, 2010, 03:37:23 PM »
Yep, Bern, you are absolutely a winner today! 
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"The key to being patient is having something to do in the meantime" AU
willowtreewren
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« Reply #22162 on: February 06, 2010, 04:19:10 PM »
Happy Birthday, Paul!  :birthday;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue
« Reply #22163 on: February 06, 2010, 04:43:59 PM »
 :birthday; to Paul!

Today has been a really off day for me. I've been feeling nauseous and mentally cloudy and the kidney really hurts. I'm scheduled to have my tunneled line put in a week from Monday, and I may ask the transplant surgeon if I can start dialysis early. He'll probably say 'ask your nephrologist' and I'll have to nod and pretend like I actually have one. Can a GP prescribe dialysis?

Thinking about all of this, the timing is eerie. I was moved to the hospital where I had my transplant in February of '76, and started dialysis shortly after they placed a shunt. I had my transplant in March. It's happening all over again....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
kitkatz
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« Reply #22164 on: February 06, 2010, 06:37:55 PM »
I am here! Ta da!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #22165 on: February 06, 2010, 07:59:56 PM »
Came in to say Hi
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22166 on: February 06, 2010, 08:21:59 PM »
stop in to say    I hurt my arm...... doing something silly.......     I needed a cabinet....to put all this stuff ( med supplies ) in....  so I went to walmart to buy   and    heck its only 69 lbs  and rectangular box ..... not a problem   I will just lift in in and put in into the cart and let in hang over...... Yup .....  sprain my arm   or tore a muscle   not sure which  but it sure hurts....   but I did get it into the back of the truck   and  now  I am going to have to suffer a week or so untill it heals.....  I am glad  its my left arm   ( the fistula arm )  and not my right or I would not be able to do any thing.........  I cant even hold a cup of water with it......   bad choices......   
  Anyway....... I am sure everyones elses weekend is going better than mine..... :stressed;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
looneytunes
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Wishin' I was Fishin'
« Reply #22167 on: February 06, 2010, 08:42:31 PM »
Tye...that's a bummer.  Hope your fistula is ok.  I know how we superwomen are, just think we can do it all!  I sure hope the rest of the weekend is good for you.

We are gonna get hit with another 6 to 12 inches of snow starting Monday...which is the day I am taking hubby to have his chest catheter put in at a hospital 100 miles from home.  With any luck, we'll get there before it starts and I'll be driving home in it.  He says he may cancel the appointment but we'll see.

Stay safe everyone...and.....I'm winning! 
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"The key to being patient is having something to do in the meantime" AU
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22168 on: February 07, 2010, 06:53:38 PM »
Wish  I had some dialysis today.....   but I am winning here   :clap;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
kitkatz
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« Reply #22169 on: February 07, 2010, 07:19:01 PM »
I have decided to win tonight!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22170 on: February 07, 2010, 07:35:36 PM »
Because your at D 
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22171 on: February 07, 2010, 07:50:26 PM »
 :cheer: I win.
Driving to the transplant hospital tonight, early labs for Jenna.
I am feeling down. Please pray for good news...thank you.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22172 on: February 07, 2010, 07:53:12 PM »
Oh yes   Karol......  we are  all with you on this......and yes       you and Jenna will Win........

   ( saving Karol place to win. )      copy this please.....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #22173 on: February 07, 2010, 08:49:38 PM »
Saying lots of prayers for Jenna.     :pray;

This is Karol's spot---she is the winner.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
looneytunes
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Wishin' I was Fishin'
« Reply #22174 on: February 07, 2010, 09:17:58 PM »
 :pray; for Karol and Jenna....and they are winners tonite!
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"The key to being patient is having something to do in the meantime" AU
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