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Author Topic: Last Post Loves IHD The Most!  (Read 1833150 times)
Sugarlump
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10 years on and off dialysis
« Reply #27275 on: March 23, 2015, 01:31:14 PM »
I think I could very uncheerfully say today and today's dialysis session was one of my worst ever days...
 :Kit n Stik;  :Kit n Stik;  :Kit n Stik;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #27276 on: March 23, 2015, 02:20:08 PM »
Oh my darling I'm so sorry

      :cuddle;


Don't let it ruin your next day.

Love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #27277 on: March 24, 2015, 12:52:36 AM »
 Will try not to  :cuddle;
Am off to Addenbrookes today for check up so we get to drive through Newmarket at the right time to see all the horses and then Drew has promised me lunch somewhere (depending on how long we have to wait to be seen) either Bills, The Gog Madoc farmshop or the hospital baguette shop!!!  :P
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #27278 on: March 24, 2015, 03:32:48 AM »
Hello Sugar,
Good luck at Addenbrookes and hopefully they can assist you to create easier sessions ...
... and hopefully you won't have to wait too long to be seen...
Fingers crossed and best wishes from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis
« Reply #27279 on: May 13, 2015, 09:29:06 AM »
 :ukflag; :ukflag; :ukflag;
This thread has gone awfully quiet

Let's make some noise people!!!!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #27280 on: May 16, 2015, 11:29:34 AM »


     ;D.     True, quiet. Well today the sun is shining, and I'm still recovering from my 9 day holiday in Portugal. (It's the traveling that's the problem) but it was great, lots of sun, every day 30*C. I did forget the connections for the bags, but Nxstage got them out to me in 2 days.


          :ukflag;   :ukflag;
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #27281 on: May 17, 2015, 02:32:05 AM »
We have booked to go to Antibes for 2 weeks in September (honeymoon) after finding it impossible to do NZ from a dialysis viewpoint sadly.
But The South of France beckons, a really nice hotel in Juan-les-pins, trips to Cannes and Monaco and maybe the Italian coast, little trains, glass bottom boat trips, wine tasting tours ...
the sunshine, beach and blue water...Can't wait....  8)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #27282 on: May 17, 2015, 02:51:45 AM »
Quote from: Sugarlump on May 17, 2015, 02:32:05 AM
We have booked to go to Antibes for 2 weeks in September (honeymoon) after finding it impossible to do NZ from a dialysis viewpoint sadly.
But The South of France beckons, a really nice hotel in Juan-les-pins, trips to Cannes and Monaco and maybe the Italian coast, little trains, glass bottom boat trips, wine tasting tours ...
the sunshine, beach and blue water...Can't wait....  8)

Good luck to you both!
Antibes was also my first stop some years ago and later I travelled along the Côte d'Azur to Milano and Venice.
Antibes is such an unforgettable, fascinating place to relax and I do hope it brings you both lots of joy!
September is also a very clever time to travel because the sun is still very warm but not so hot and piercing anymore...
I wish you both a happy journey and lots of good wishes from Kristina.  :grouphug;

P.S. A very inspiring song to listen to is "Charles Trenet - La mer", a very French "hymn to the sea" and the Côte d'Azur ...
« Last Edit: May 17, 2015, 03:48:54 AM by kristina » Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #27283 on: May 17, 2015, 05:05:51 AM »
And it gets a mention in
"Where do you go to my lovely..." song!
I am looking forward to going to the Picasso museum there too.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #27284 on: May 17, 2015, 06:59:31 AM »
Hello Sugar,
I have just listened to "where do you go to my lovely"  mentioning Sacha Distel etc.
... and Nino Ferrer : Le Sud - 1975 is also very suitable if you "go south" in September...
One of my favourite French singers is Serge Reggiani - Ma Liberté ...  :grouphug;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #27285 on: May 19, 2015, 02:50:19 AM »
Sunshine, good food, a spot of travel and good dialysis available in Antibes.... what more could a girl want  8)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #27286 on: June 19, 2015, 12:59:20 AM »
I am still winning  :ukflag; :ukflag; :ukflag;
The sun is shining and am out to lunch today (no dialysis) yippee!!!!!!!!! :bandance; :bandance;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #27287 on: June 19, 2015, 03:38:39 AM »
Sun? Always somewhere down south   ;D

Enjoy your lunch honeybun. I still have 4 hrs to go here so I 'll be thinking of you :P
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #27288 on: June 21, 2015, 01:08:18 AM »
Greek salad and ice cold lemonade (the real stuff from lemons!) was lovely.
Ankle bit sore though  :'(
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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*****
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #27289 on: June 24, 2015, 07:54:56 AM »
More healing vibes for your ankle Sugar. Dry, and some sun outside, so no complaints here. Hosp called: they are going to discuss my fistula in the next MDM (multi discipline meeting?)
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Shaks24
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« Reply #27290 on: June 24, 2015, 06:34:36 PM »
Guess I win! For now. lol
Logged
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Vt Big Rig
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« Reply #27291 on: June 24, 2015, 06:47:50 PM »
Not for long. LOL!
Logged
VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
cassandra
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When all else fails run in circles, shout loudly
« Reply #27292 on: June 25, 2015, 10:25:40 AM »
The sun is shining at last,
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #27293 on: June 25, 2015, 10:41:38 AM »
Summer.....big sigh.
Every seems a little bit better in the sun  :flower;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #27294 on: June 26, 2015, 01:56:02 AM »
Quote from: Sugarlump on June 25, 2015, 10:41:38 AM
Summer.....big sigh.
Every seems a little bit better in the sun  :flower;

How very true Sugar,
... summer makes everything just that little bit more pleasant and "shinier"...
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #27295 on: June 27, 2015, 07:27:24 AM »
Garden looks lovely today.
Have slowly been creating a white garden, with a touch of silver and green, and the occasional stray marigold!
It feels so peaceful, sitting out and only birds in earshot... :flower;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #27296 on: June 28, 2015, 01:20:11 AM »
... sounds very lovely Sugar...
... here there are just parks to go for a walk and listen to the birds ...
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #27297 on: July 08, 2015, 12:05:51 AM »
It's raining today ::)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #27298 on: July 11, 2015, 12:47:14 AM »
 :flower; my sunflowers are growing and tomatoes are ripe - i love summer
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #27299 on: September 24, 2015, 03:00:00 AM »
 :clap; :clap; :clap; Still holding on to the WIN!  :rofl;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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