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Author Topic: Last Post Loves IHD The Most!  (Read 1930257 times)
Sugarlump
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10 years on and off dialysis
« Reply #26150 on: May 14, 2011, 04:55:40 AM »
All this discussion about my bikini and where it is going!!!!
well its raining in England this morning no bikinis here....jeans and a USA t-shirt this morning!!!
But we desperately need rain the ground is parched.

Galvo I just do not believe Australia can get that cold.... 8)  8)  8)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
YLGuy
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« Reply #26151 on: May 14, 2011, 01:15:41 PM »
 :popcorn;
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Chris
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« Reply #26152 on: May 14, 2011, 02:40:25 PM »
What did I learn yesterday? Never take Norco on an empty empty stomach and without having enough fluids. Although I did get a little loopy and made a great sleeping pill for many hours yet did not help pain.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
galvo
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« Reply #26153 on: May 14, 2011, 04:12:47 PM »
Minus bloody 7 last night! Roll on winter!!
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Galvo
Chris
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« Reply #26154 on: May 14, 2011, 04:55:46 PM »
Naaah Galvo, you can keep it for a little longer. ;D
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26155 on: May 15, 2011, 11:11:07 PM »
 8)
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Chris
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« Reply #26156 on: May 15, 2011, 11:45:53 PM »
24 hour plus of being on top, not bad I say ;D
« Last Edit: May 16, 2011, 05:16:04 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #26157 on: May 16, 2011, 01:22:29 AM »
Don't post that often anymore, doesn't mean I still don't love the site or the people  :cuddle;
Logged
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Chris
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« Reply #26158 on: May 16, 2011, 05:16:56 AM »
 :waving;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26159 on: May 16, 2011, 07:22:06 AM »
 :waving;
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Chris
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« Reply #26160 on: May 16, 2011, 08:25:56 AM »
Day's like this makes me wonder "Why did I have oatmeal?" like as if it taste good at the time!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26161 on: May 16, 2011, 08:37:12 AM »
 :P
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #26162 on: May 16, 2011, 09:02:47 AM »
I love oatmeal....but not this time of year.....  when the sun is shinning like it is today.... I was something fruity..

Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Sugarlump
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10 years on and off dialysis
« Reply #26163 on: May 16, 2011, 11:46:29 AM »
or something SUGARY ????  ;D
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #26164 on: May 16, 2011, 04:57:26 PM »
Quote from: tyefly on May 16, 2011, 09:02:47 AM
I love oatmeal....but not this time of year.....  when the sun is shinning like it is today.... I was something fruity..

Well it was fruity, it was the strawberry and cream variety.
Went to buy clothes today and the mens selection is getting smaller and smaller and less dress variety. I do not want t-shirts with kiddie designs on it, I'm an adult, I don't want all polo shirts or golf clothes. I just want something respectable without having to buy a suit which they also had less of. Heck, even the pant selection was barely there and in a mess. All that was available where Kaki's and Chinos all mixed up between pleated and flat front and finding a size, grrrrrr! I should have gone to the better store instead of local
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26165 on: May 16, 2011, 05:10:22 PM »
Today they implemented new security procedures.  They took off the doorbell we used to ring to go from the lobby to the treatment floor.  They also made us sign in.  They said it was in case of emergency they needed to know who was in the building.

When one of the nephrologists came in for rounds I called over the FA and asked him if he made the neph sign in.  I asked him what if there was an earthquake and everyone got out except the neph how would we account for him?  He could be buried under the rubble and nobody would be looking for him.  The FA knew I was just busting his chops.

Just before I left one of the patients came in without waiting to be called.   This patient is a tiny little old man.  I stopped at the front and informed them that there was a security breach on chair #23, 3rd shift! They cracked up because they know what a smart a$$ I can be. 
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Chris
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« Reply #26166 on: May 16, 2011, 07:21:28 PM »
Also goes to show that there security protocols are worthless. If they are not going to have everyone follow them, what good is it to just have a few? I think you made a valid point if they are going to have these new procedures. My first center I went to (that I really hated) had a door that was locked by a security code to get in. You had to wait to be called in by a tech, but could leave without having to be leaded out to the waiting area if you could call 2 chairs a wait area. The thing I hate is the sign in sheet. I don't want everyone coming in to see my name since the person behind the desk maybe to lazy to cross my name off with a black marker which doesn't really help since it is a different type of ink and a ball point pen is used to sign in so there is a ghost image of signature. To me this is a HIPPA violation. :rant;
 
Guess today is a vent day for me :urcrazy;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26167 on: May 18, 2011, 11:06:18 PM »
 :waving;
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kristina
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« Reply #26168 on: May 19, 2011, 04:05:10 AM »

I had some good news this month, my Creatinine seems to be improving,
my kidney function has gone up to 12.3%.
Mind you, it has only improved a little bit, but every little bit helps.
I find it very encouraging because it gives me hope
that my boring diet might be worth the bother after all.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
galvo
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« Reply #26169 on: May 19, 2011, 05:59:41 AM »
Good news is always welcome, kristina!
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Galvo
natnnnat
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« Reply #26170 on: May 19, 2011, 06:10:13 AM »
Well done Kristina, I know you take great care with your diet.  I would find that really challenging.  It must feel great to see a positive change and its well worth celebrating.  Must make all the effort while.
« Last Edit: May 22, 2011, 09:33:19 PM by natnnnat » Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
kristina
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« Reply #26171 on: May 19, 2011, 07:00:36 AM »
Thanks for your kind thoughts, galvo and natnnat.
Yes, it is very hard, very challenging and extremely boring,
to eat every day the same food...
I do hope my diet brings me good luck
and I can keep the two little fighters
for as long as possible "pre-D".
Thanks again from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
YLGuy
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« Reply #26172 on: May 20, 2011, 08:36:05 AM »
 :waving;
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Chris
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« Reply #26173 on: May 23, 2011, 12:23:15 PM »
Wow, notmuh to catch up on while I was away.
That is good new Kristina, can totally understand the whole diet issue of the same food that becomes to so blaaah!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
looneytunes
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Wishin' I was Fishin'
« Reply #26174 on: May 24, 2011, 07:28:07 PM »
 :waving;
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"The key to being patient is having something to do in the meantime" AU
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