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Author Topic: Last Post Loves IHD The Most!  (Read 1839522 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23675 on: September 20, 2010, 11:33:25 AM »

Yes ME is!!!  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #23676 on: September 20, 2010, 06:47:34 PM »
Tried to post on iPhone but still can't do that yet. earlier today.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #23677 on: September 20, 2010, 07:18:58 PM »
Hey Chris.  How u doin'?
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Chris
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« Reply #23678 on: September 20, 2010, 09:11:33 PM »
Somewhat better and somewhat worse depending on part of body Marc. Problem that anit rejection meds caused is getting better, but side effects I would like to go away especially with vision.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
galvo
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« Reply #23679 on: September 20, 2010, 09:35:58 PM »
God bless us all!
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Galvo
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« Reply #23680 on: September 20, 2010, 10:08:26 PM »
It is good seeing you post here again Chris.  I hope things get better for you soon.
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Genlando
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« Reply #23681 on: September 20, 2010, 11:15:42 PM »
And to all, a good night!
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3/9/2010--Diagnosed with ESRD
3/24/2010--Fitted with catheter, and began hemodialysis
4/2010--First fistula attempt--clotted up and failed
6/2010--Second fistula attempt--didn't clot, but slow development
11/2010--3rd fistula surgery--fistula now developing
1/2011--fistula ready for H/D!
6/2011--Started using NxStage at home
8/2012--Switched to PD using Liberty Cycler
ChickenLittle56
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Chickenlittle and Maria
« Reply #23682 on: September 20, 2010, 11:38:44 PM »
Nobody's here, another sleepless night.
Logged
As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23683 on: September 21, 2010, 05:45:29 PM »
 :flower; I'm Baaaaaack!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #23684 on: September 21, 2010, 06:06:09 PM »
not for long!
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Galvo
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23685 on: September 21, 2010, 11:18:26 PM »
 :bow; thanks for saving my spot lol
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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Posts: 4901
« Reply #23686 on: September 22, 2010, 12:47:10 AM »
Just got home from the Further concert!
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Genlando
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« Reply #23687 on: September 22, 2010, 02:57:31 AM »
Starting a new day! :flower; :flower; :flower; :flower;  :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
Logged
3/9/2010--Diagnosed with ESRD
3/24/2010--Fitted with catheter, and began hemodialysis
4/2010--First fistula attempt--clotted up and failed
6/2010--Second fistula attempt--didn't clot, but slow development
11/2010--3rd fistula surgery--fistula now developing
1/2011--fistula ready for H/D!
6/2011--Started using NxStage at home
8/2012--Switched to PD using Liberty Cycler
kitkatz
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« Reply #23688 on: September 22, 2010, 05:52:20 AM »
I am up for a new day of work.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #23689 on: September 22, 2010, 08:11:19 PM »
Stopping by and going tobed soon to get up early for another round of doctor visits in the city. 3 days of blood draws, no responce from transplant clinic yet on follow up after med switch = I don't fel like getting up early and going downtown.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
galvo
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« Reply #23690 on: September 22, 2010, 08:24:50 PM »
Pyjamas day, to-day.
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Galvo
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« Reply #23691 on: September 22, 2010, 10:10:23 PM »
Good luck tomorrow Chris.  Keep us posted.
 I sprang a leak today just as I was walking out the door after dialysis.  :o I felt something funny and looked down.  There was blood everywhere. The floor, the door, my keys, my shirt, my pants, my sandals and feet.  I grabbed my arm but could not stop it.  Some of the patients waiting got the attention of a tech and they ran me inside.  We got it stopped.  This only happened 1 other time.  Oxyclean got the blood completely out of my clothes.  I was impressed.
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #23692 on: September 22, 2010, 10:51:17 PM »
Hope you get some coffee on the way in Chris.  :thumbup;
galvo, I am always hoping for a pajama day - maybe Sunday!
YLGuy, I am glad you weren't at the market or something when you starting leaking!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Member for Life
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #23693 on: September 22, 2010, 10:51:40 PM »
 :thx; for the win!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
ChickenLittle56
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Posts: 637


Chickenlittle and Maria
« Reply #23694 on: September 23, 2010, 04:43:10 AM »
Waking up to a beautiful morning after a night of rain :2thumbsup;
Logged
As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
okarol
Administrator
Member for Life
*****
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #23695 on: September 23, 2010, 08:15:07 AM »
 :flower; Good Morning Sunshine!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #23696 on: September 23, 2010, 02:09:06 PM »
And a good morning to you.
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Galvo
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« Reply #23697 on: September 23, 2010, 02:39:36 PM »
Good afternoon.  Here comes the heat.  The first weekend of fall and it is supposed to get close to 100 here.
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Pam
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« Reply #23698 on: September 23, 2010, 05:39:47 PM »
First day of fall and it was 83 in Michigan
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Chris
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« Reply #23699 on: September 23, 2010, 06:26:45 PM »
I was here. P.T. now 3 days a wek which I'm not happy with for this month due to med cost and running low on gas for vehicle with what money I have left over. October I can plan around, but still will be either at p.t. or some sort of doc's office. I will be getting my vision checked by my vision impairment doctor for the guide dog instead of my opthalmologist this time the first week of October to keep my file open at Leader Dogs.
 
Sorry to hear you sprang a leak Marc
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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