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Author Topic: Last Post Loves IHD The Most!  (Read 1834293 times)
YLGuy
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« Reply #22300 on: February 16, 2010, 07:03:14 PM »
My grandparents on my mother's side lived in the same small town.  My mother was actually born in the house they lived in.  My grandfather was a poor farmer who worked someone else's land.  They had 6 children and when my uncle found a little boy living at the dump, they took him in too.  I saw them every weekend.  If I did not spend the night at their house, Sunday they came to our house.  I loved my grandma & grandpa very much.  I have some time before I am a grandpa. 
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kitkatz
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« Reply #22301 on: February 16, 2010, 07:11:33 PM »
I am loose on the boards tonight. Beware!
« Last Edit: February 16, 2010, 07:19:53 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
looneytunes
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Wishin' I was Fishin'
« Reply #22302 on: February 16, 2010, 07:25:11 PM »
And I'm right behind you....double beware! 
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"The key to being patient is having something to do in the meantime" AU
willowtreewren
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My two beautifull granddaughters

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« Reply #22303 on: February 17, 2010, 05:53:22 AM »
I am starting to see the light at the end of the tunnel. Have been very, very low lately.

I heard from an old IHD friend's wife...open heart surgery Feb 4....almost did not make it. nother friend with breast cancer. Had the rug pulled out from under me several times in one week, and just found I wasn't coping well.

But I *think* I'm coming back up into the light. Still a bit fragile. See...I'm not a wonder woman.  :bow;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #22304 on: February 17, 2010, 06:58:57 AM »
I am just plain old tired.  Sorry to hear Aleta.  :grouphug;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22305 on: February 17, 2010, 08:28:53 AM »
Yes you are wonder women   Aleta..... just ask anyone         You run circles around most of us.....
and plus have time for IHD...... 

IN the last hour  I have noticed that I am starting to sniffle....  sneeze....  and sniffle somemore......  Yes I think I am getting a cold...... My Nxstage trainer had a cold the last day before I went home  and  she came for a home visit the next day.......Well   I think she left more than just the Nxstage Machine....   I try to be so carefull washing my hands and disinfecting everything all the time.... Boy if I can get a cold this easliy   how am I going to handle and transplant..... 
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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« Reply #22306 on: February 17, 2010, 01:28:04 PM »
Kathy,
Get netti pot and rinse your sinuses twice a day. Keeps the germs OUT! Even helps when you are getting a cold.

 :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue
« Reply #22307 on: February 17, 2010, 01:51:41 PM »
Hey y'all!

Checking in from the machine - not dialysis, but the apheresis machine that's collecting my stem cells. I've been on for almost 5 hours, still have over an hour to go. Gwyn's here, having just completed his run. As soon as I'm off, we grab the bags and race back up to Wisconsin. I'll catch up with everyone when I get a chance. Thanks for the well wishes! We are moving forward!!!  :bandance;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
paris
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« Reply #22308 on: February 17, 2010, 01:57:16 PM »
Cariad, this is all so exciting.   Have a safe drive home.  Looking forward to reading the next step!   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #22309 on: February 17, 2010, 04:08:32 PM »
Vitamin C tyefly!  :cuddle;

 :2thumbsup; Cariad!

Hi paris!  :waving;

I win!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #22310 on: February 17, 2010, 06:31:30 PM »
 :waving;   to you too, Okarol.  Hope Jenna is getting through this infusion ok. Her poor little body must be so tired. 

How is the cold, Tyefly?   Take care of yourself.

Have a nice night everyone.  Good night, Marc     Good night, Chris    Good night, Aleta   Good night, Cariad      (well, you get the point!!)



night,JohnBoy!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #22311 on: February 17, 2010, 06:54:34 PM »
Hello All, forgot what I wanted to comment on from Tyefly, Aleta, Cariad, and aris.
 
Tomorrow is a long day. I have a meeting with Medicaid on why the are screwing me over when I do everything by the book and type my letters so they don't have to quess what someone has written. I have an advocate coming in with me with information at hand. If the caseworker denies appeal and can't show proper paperwork for her decision (we have paperwork that proves her wrong) then we will call dwnstate in her office in front of her. Not gonna be pushed around. She has put this meeting off to long till I complained to downstate. Next in the line of fire is the spend down worker. I haven't had a medical card since November and have been submitting my paperwork  right in their office. I need to get this squared away so I can get surgery squared away without worries.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #22312 on: February 17, 2010, 06:59:58 PM »
Chris, I hope tomorrow is a good day.  Do you need to take kitkatz big stick with you?   Let us know how it all goes.  They have messed with you far too long.   Get some rest so you are ready to fight tomorrow!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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« Reply #22313 on: February 17, 2010, 07:01:08 PM »
Good luck with that, Chris!  :boxing;

I just heard that a friend died. Complications from lung surgery. I thought the really pissy stuff was over. Guess again.  :(

Made a card tonight for the friend who will have a long convalescence from heart surgery. Sent a card to my friend with breast cancer this morning.

Time for some good news.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Pam
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« Reply #22314 on: February 18, 2010, 02:23:33 AM »
Good morning IHD! It's not a "D" day and I'm wide awake. I guess my body has finally adjusted to getting up so early.Now if only the sun would hurry up and come up I'd be happy. Hope everyone has a good day.
Pam
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Slywalker
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« Reply #22315 on: February 18, 2010, 05:34:18 AM »
Morning IHD - just stopping in to win!!!! 

Aleta I'm sorry about your friend. 

 :flower; :flower;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22316 on: February 18, 2010, 08:13:19 AM »
  Yes Its a good morning..... NO more cold...... or at least very slight...  I feel fine....   the sun is shinning......
 and it good to see Slywalker here.......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #22317 on: February 18, 2010, 08:53:22 AM »
 :waving;  Hope everyone is having a good start to their day.   Sun is shining and spring can't be far away now   :2thumbsup;     

Aleta, I am sorry for all the trials and tribulations you are dealing with right now.  I am especially sorry to hear about the loss of your friend.  It seems like we go along and then life hits us in the face.  Tomorrow will be better, then the next day and the next day.........  I hope the sun is shining on you today.    :cuddle;
« Last Edit: February 18, 2010, 11:42:01 AM by paris » Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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My two beautifull granddaughters

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« Reply #22318 on: February 18, 2010, 10:51:40 AM »
More bad news... a long time friend and colleague died yesterday. The news was hard last night, but harder when I got an e-mail from her husband today. Had to leave the classroom for a few minutes to shed some tears. His eulogy was simply heart-wrenching.

But there is sun today. I hope it fills my soul.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #22319 on: February 18, 2010, 02:21:12 PM »
I am sorry, Aleta.  It just seems to keep coming and I know it must be overwhelming.    :cuddle;    May your friend go "rest high on the mountain"  and know there job here was well done.   :pray;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paris
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« Reply #22320 on: February 18, 2010, 07:23:38 PM »
Goodnight all.  Hope everyone gets a good night's sleep.   Tomorrow is another day and another new beginning.  Hope the sun shines down on everyone in the morning.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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« Reply #22321 on: February 18, 2010, 07:40:58 PM »
I wish I could take everyone's troubles away.  :grouphug;
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okarol
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« Reply #22322 on: February 18, 2010, 08:23:23 PM »

Jenna went to the Farmer's Market, just for a short time, but made me feel better that she got out of bed.  :2thumbsup;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22323 on: February 18, 2010, 08:30:25 PM »
Very good  sign.......... :clap;
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
YLGuy
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« Reply #22324 on: February 18, 2010, 09:35:25 PM »
 :waving;
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