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Author Topic: Last Post Loves IHD The Most!  (Read 1833828 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22175 on: February 07, 2010, 11:13:21 PM »
 :thx; :thx; :thx; You guys sure know how to make me feel better!
Made it down here, now have to unwind so I can get to sleep, labs at 6:45 am - ugh!
Night!  :waving;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #22176 on: February 07, 2010, 11:25:46 PM »
Wish I had something useful, intellectual to say Karol, but the only thing that comes to mind is for you to get some rest and relax.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Slywalker
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« Reply #22177 on: February 08, 2010, 06:21:20 AM »
Morning IHD - Monday - just stopping by to say Hi and, of course, to win for today!!!! 
(Karol When will Jenna's lab results be available?)

 :bunny:  :snowman; :snowman;
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fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22178 on: February 08, 2010, 06:26:23 AM »
    Good morning everyone   :waving;   

      :pray;   for Karol and Jenna.   Hope all goes well.   

       Tyefly, hope your fistula is ok. 

       Did anyone else watch "Puppy Bowl VI" last night on Animal Planet?   

       
« Last Edit: February 08, 2010, 07:09:08 AM by fc2821 » Logged
In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
willowtreewren
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My two beautifull granddaughters

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« Reply #22179 on: February 08, 2010, 07:40:51 AM »
Kathy, did your vascular surgeon give you any weight restrictions on your fistula arm? Girl, I'm worried about you!

Karol, healing thoughts, healing thoughts.

Busy today.
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22180 on: February 08, 2010, 08:13:09 AM »
Yes  I know..... not lifting......   alot   he did tell me that I could lift what ever I was use to..... I guess I forgot to tell him that I go buy these things and   yes I try to do it all my self......  Hey  did I tell you I have had two hernia operations......   anyway  guess I over did it......   my fistula is fine....purring away...as its up in my upper arm  and my arm pain is in my lower....... live and learn.......   Ok    I am an old lady now...... have to ask for help..... Hate that stuff.......   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

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« Reply #22181 on: February 08, 2010, 08:54:54 AM »
I LOVE your frog avatar!  :rofl; :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
HubbysPartner
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Our first New's Year's together - A new beginning
« Reply #22182 on: February 08, 2010, 09:15:39 AM »
Welcome to the club, Tyefly.  I don't think my brain has gotten the message that my body can't do that stuff anymore!   :rofl;  :rofl;

Love the frog!

Karol, praying for you and Jenna.  Hope all goes well.
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Caregiver to husband, Lou, diagnosed 2/2008
4/2009 - Fistula
10/2009 - Started NxStage training
112009 - Finished training; at home with nxstage

Our family - husband, Lou; me, Marge; sons, Marc & Keith; daughter, Liz
Be still and know that I am God. - Psalm 46:10
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22183 on: February 08, 2010, 09:49:09 AM »
Quote from: willowtreewren on February 08, 2010, 08:54:54 AM
I LOVE your frog avatar!  :rofl; :rofl; :rofl;

   Me too!   :2thumbsup; :2thumbsup; :2thumbsup;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
willowtreewren
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« Reply #22184 on: February 08, 2010, 04:03:44 PM »
As hard as I worked today I should have worked my butt off, but.....it's still there!  :rofl; :rofl; :rofl;

I'm ready for the audit tomorrow, though. And now they are calling for snow tonight and tomorrow.

All my evenings are booked this week. Tonight I have to get the minutes and agenda ready for an iChat meeting on Wednesday. Tomorrow night I will be getting the Valentine's done for school. Then that meeting on Wednesday. Thursday night we have "off" from dialysis so we are taking my computer in for its fix. Whew! I'm tired just thinking about it all.  :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #22185 on: February 08, 2010, 06:01:48 PM »

Thanks for holding me a spot here!
Jenna's white blood cell count is good - actually too good - now she's overshot the mark (can she do anything in a moderate way??) But the good news is there is no bone marrow biopsy needed - and they were able to do her kidney biopsy and cytogam infusion, so in a couple of days we will know more about how her kidney has weathered all the rejection and torture she's been through the last 3 weeks.
When I came out of the hospital, Jenna was weak and had been unable to walk more that 25 feet without resting, so we get to the car and guess what...? The battery was dead. Thank God for Auto Club, they put a rush on and they were there in 20 minutes. $140.00 later I left with a new battery.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #22186 on: February 08, 2010, 06:03:44 PM »
Sounds good Karol.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kitkatz
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« Reply #22187 on: February 08, 2010, 06:06:50 PM »
I swear Karol, cars know when to quit, don't they!   
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
aharris2
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Volcan Pacaya, Guatemala
« Reply #22188 on: February 08, 2010, 06:15:52 PM »
Let's hope Jenna's kidney is as tough and determined as Jenna's mom (and tell that immune system to back off a little). Okarol, I am looking forward to you sharing some good news with us in a couple of days and I hope Jenna regains her strength quickly.

 :cuddle;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22189 on: February 08, 2010, 09:46:25 PM »
      whos winning now........    :cheer:       
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Des
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« Reply #22190 on: February 08, 2010, 11:10:32 PM »
 :flower; Morning all.
I had a rough night last night.... pain and very little sleep.. but I am ok this morning.

Karol I am holding thumbs that all is well. :grouphug;

Tyefly... I know the feeling. I am really battling to get stuff done after the operations. But I keep on trying though.

I hope you all have a fantastic day. :cheer:
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22191 on: February 09, 2010, 09:19:38 AM »
    Good day everyone,  :waving;.  Hope all is going well for you all today. I'm typing one handed from dialysis again, today.

    Des sorry to hear about the pain.  Hope things get better

    Karol, that's how things work sometimes. But on the bright side, you were able to get going.   :pray; Jenna's kidney comes out ok.  You guys have sure been through a lot.   :grouphug;

    Aleta, glad you didn't work your uh-you know, off.   :rofl; :rofl; :rofl; :rofl;  You might need it, they come in handy.  :rofl; :rofl;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
cariad
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What's past is prologue
« Reply #22192 on: February 09, 2010, 09:57:24 AM »
 :waving; I am here and not in Chicago. Waiting for the snow to leave. Come on, spring....  :flower;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
willowtreewren
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« Reply #22193 on: February 09, 2010, 12:27:37 PM »
Well, the two guys from the state were here for about an hour and a half. Very pleasant and apologized profusely for the big hoo doo they caused last year when they came one day when I was absent! Then the fire marshal showed up this afternoon. Such a nice man. He didn't even want to see our list of fire drills because he said ours is always such a good school to visit. LOL. We DID have a fire drill yesterday and cleared the building in 17 seconds!

But I'm exhausted by the change in routine! Whew!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue
« Reply #22194 on: February 09, 2010, 01:29:04 PM »
I think I know why I've been feeling so sick lately. I received my labs, and my creatinine jumped to 4.06, roughly GFR of 12. I had been at 3.79 2 months ago, and actually felt OK much of the time. My HGB is only at 9.4, but my GP does not want me to order more Aranesp. I only have one dose left to get me through to the transplant, March 18.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
willowtreewren
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« Reply #22195 on: February 09, 2010, 01:55:44 PM »
Oh, Cariad,

You are going to feel like   :puke;

 :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #22196 on: February 09, 2010, 06:06:53 PM »
 :waving;
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paris
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« Reply #22197 on: February 09, 2010, 06:31:07 PM »
Right back at you, Marc    :waving;    :waving;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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« Reply #22198 on: February 09, 2010, 08:01:15 PM »
I am just saying that there are a lot of aspects of ESRD that truly suck.  Just putting that out there.  No special reason.   
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #22199 on: February 10, 2010, 01:10:01 AM »
Hang in there Cariad - not too far away now.  What dosage arasnep do you take?  I'll send you one of mine if you like hee hee  - we don't have to tell anyone!  Oh yeah, it mightn't look too good on the customs form.  Could I put secret santa gift???  :rofl;
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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