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Author Topic: Last Post Loves IHD The Most!  (Read 1833549 times)
MandaMe1986
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« Reply #21450 on: January 01, 2010, 09:43:43 AM »
Know I have been awall for a bit. but wanted to wish everyone a happy new year!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
dwcrawford
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Getting the heck out of town.
« Reply #21451 on: January 01, 2010, 09:45:43 AM »
2010 doesn't suck.  yet.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
YLGuy
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« Reply #21452 on: January 01, 2010, 10:26:50 AM »
Now that's the spirit!  :rofl;
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dwcrawford
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Getting the heck out of town.
« Reply #21453 on: January 01, 2010, 10:33:08 AM »
Hey Mark.  It was funny talking to you in chat last night.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
YLGuy
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« Reply #21454 on: January 01, 2010, 11:25:19 AM »
That was great.  What a great idea Dan.  Did you ever get more than 13 in there after I left?
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dwcrawford
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Getting the heck out of town.
« Reply #21455 on: January 01, 2010, 11:40:48 AM »
Hehe. I meant to write "fun" in the last post.  not "funny"  excuse.

I think 13 and down.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Slywalker
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« Reply #21456 on: January 01, 2010, 11:46:55 AM »
Happy New Year Everyone.   :bandance;

 

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paris
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« Reply #21457 on: January 01, 2010, 04:38:00 PM »
MandaMe, Happy New Year to you and those sweet twins!  You have been missed   :cuddle;

Happy New Year to you, too, Slywalker   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #21458 on: January 01, 2010, 05:44:25 PM »
It IS 2010 and I have watched Looney Tunes all day. Now out to dinner with hubby.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

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« Reply #21459 on: January 01, 2010, 05:50:48 PM »
My brother and I moved some furniture for my dad. Then we had lunch together at my brother's. Nice day.

Good to hear from you Manda. Miss you.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.
« Reply #21460 on: January 01, 2010, 06:57:03 PM »
I had a long delighful talk with Mandy (MandaMe) on the phone this morning.  It made my days but I can't find the daily positive thread.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Chris
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WWW
« Reply #21461 on: January 01, 2010, 09:47:46 PM »
I thought I posted in here last night before midnight. I know I was in chat though.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21462 on: January 01, 2010, 10:27:22 PM »
  Sneaking in here after a whole house of company that just left today......    I am back to normal........  and I missed my computer...... and all of you ........
 
                       So   In case I have said it yet.......Happy  New Year....... :clap;
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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WWW
« Reply #21463 on: January 01, 2010, 10:57:13 PM »
Can the tree be taken down yet and the lights?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #21464 on: January 02, 2010, 12:24:13 AM »
Quote from: dwcrawford on January 01, 2010, 11:40:48 AM
Hehe. I meant to write "fun" in the last post.  not "funny"  excuse.


You can always go back and hit "modify" if you want to ever correct something.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #21465 on: January 02, 2010, 12:58:11 AM »
Where do you find modify?  Ah ha!  I found it.  I never knew that.  Thanks.
« Last Edit: January 02, 2010, 12:59:14 AM by Hanify » Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willowtreewren
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My two beautifull granddaughters

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« Reply #21466 on: January 02, 2010, 08:21:51 AM »
Quiet in here today. Maybe I'll win for a long time....

 :2thumbsup;

Bought a lottery ticket, and planning how to spend the winnings....  :rofl; :rofl;

Nothing more fun than pretending that money is no problem.  :yahoo;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21467 on: January 02, 2010, 08:30:28 AM »
 :)
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Des
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« Reply #21468 on: January 02, 2010, 08:50:09 AM »
 :bandance; :yahoo;  :clap;

Hello all you wonderful people!   :flower;

I am back and I want to say I hope all of you had a fabulous Christmas and that you all have the most blessed 2010.

I had a great time... I will put pics up later on.

 :cheer:
I can't believe how much I missed all of you!!!!
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #21469 on: January 02, 2010, 08:57:03 AM »
I sure missed you, too, Des. I'm glad you had a great trip. Would love to see those pics.  :pics;

Happy New year to you, too. You missed a great New Year's Eve party hosted by Dan in the chat room. But I'm sure you were having a blast anyway!  :2thumbsup;

Welcome back!
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #21470 on: January 02, 2010, 09:03:19 AM »
Oh my... that party sounds nice. So sorry I missed it Dan (the man).

We went to a live concert in an open arena (outside under the stars under a full moon and millions of stars) we boogy'ed until way after 12.  I was hurting all over the next morning , I think maybe the chat room party might have been nicer  :rofl;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
cariad
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What's past is prologue
« Reply #21471 on: January 02, 2010, 11:27:16 AM »
Des! So glad to see you back and hear a bit about your trip, you party girl, you! Let's see those :pics;

I would very much appreciate advice on a delicate issue, if anyone has any to spare. I received a letter this morning from a psychiatrist I had been seeing for a few months. She canceled an appointment with me in early October, and I never bothered to reschedule. The letter informed all of her patients that she will not be returning to practice - she is dying of cancer. She never mentioned a thing about this to me (sign of her professionalism) and the letter was written in a tone of acceptance and gratitude for the life she has lived.

I wanted to send her a card - I was thinking of a thank you card. She also always expressed interest in the transplant and clinical trial, so I was thinking about giving her a very brief update on where I am in the process - this will also serve to remind her which patient I am. Do you think this is appropriate, or tacky? Any thoughts on how to handle writing a goodbye to someone who is dying and whom you do not know outside of a clinical setting?
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
willowtreewren
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My two beautifull granddaughters

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« Reply #21472 on: January 02, 2010, 11:46:11 AM »
Cariad, I think it would be most appropriate to send a card like what you described. In fact, because this therapist opened the door with her own letter of explanation, I would think she would very much appreciate hearing from you. It sounds like she is tidying up her life and knowing that she was of help to someone helps with closure, I think.

I am not in the same situation (dying), but I know how I feel when  former student or parent lets me know how I have affected them.

Best wishes for you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #21473 on: January 02, 2010, 01:31:16 PM »
I think it is a lovely idea, Cariad.  Wouldn't we all like to know we touched another's life or helped someone?  I would rather get a lovely note now instead of my family getting a sympathy card after I die.   I think she will be very touched.   And good for you for thinking of this nice gesture
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #21474 on: January 02, 2010, 03:03:44 PM »
Definitely a good idea Cariad.  Speaking a s person who has cancer I know I am happiest if people still do the things they would have always done - if you know what I mean. I don't like if when people shy away from the topic.  it's a lovely idea and she'll love to hear how you're doing.
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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