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Author Topic: Last Post Loves IHD The Most!  (Read 1839336 times)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21150 on: December 13, 2009, 12:36:29 PM »
     Well I stayed up late last night and watched a movie on TV....    I dont do that much at all......  still waiting for snow..... just ice......  I watch   War of the Worlds ...... Tom Cruise...... I had never seen that movie.....   and Well I had to go under the blanket several times..... very scary.......

   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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« Reply #21151 on: December 13, 2009, 06:21:49 PM »
I stayed up all night trying to solve a pc problem so I can have a dual boot of Vista and Windows 7. Apparently my problem is comon with Vista and their own software is useless. I have to create a partition and Windows will not allow me to do that. Will have to try 3rd party work around later. Other than that, getting all my stuf ready to bring to my doctors office in the city for Monday from lab results, guide dog forms, med listing, ect. I have to get up at 3 am to get ready because I am going in with my dad who drives to work in the city instead of driving in the dark to get the train.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #21152 on: December 13, 2009, 06:22:15 PM »
I am having a Babylon 5 first season weekend.

Wrapping gifts.  Getting things ready to mail. I need to go get ribbon.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

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« Reply #21153 on: December 13, 2009, 06:31:35 PM »
Chris, I'm glad you're not driving in the dark and the rain!

So, here's the funny. We went into Knoxville early for our book club because we needed to pick up a few things for school at the craft store near the mall. then Carl says (20 minutes before the book club is supposed to start), "I want to run in the Apple store at the mall." OMG, in holiday crowds??

Believe it or not he was back in the car in 10 minutes with a new wireless keyboard. He has wanted one for a long time to use during dialysis.

When we got home tonight he set it up to try it out. My comment.....

"That thing in your lap is tiny!"  :rofl; :rofl; :rofl;

His reply, "But it's good for 30 feet!"   :clap; :clap;

Gotta laugh. Makes life a lot more interesting!

Hope everyone had a great weekend.
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21154 on: December 13, 2009, 07:30:56 PM »
 :popcorn;
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Chris
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« Reply #21155 on: December 13, 2009, 07:56:12 PM »
 :cookie; :cookie; :popcorn; :popcorn; :santahat;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
looneytunes
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Wishin' I was Fishin'
« Reply #21156 on: December 13, 2009, 08:16:46 PM »
Ok...i'm trying to sneak one in...I win!   :clap;
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"The key to being patient is having something to do in the meantime" AU
YLGuy
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« Reply #21157 on: December 13, 2009, 08:17:20 PM »
 :snowman;
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kitkatz
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« Reply #21158 on: December 13, 2009, 08:43:42 PM »
Hey ya'all here I am.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #21159 on: December 13, 2009, 08:54:20 PM »
G'night, Kitkatz!!   I am winning   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #21160 on: December 13, 2009, 09:18:51 PM »
Here I am also
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #21161 on: December 13, 2009, 09:44:18 PM »
Morning,

I am dog tired!!!! and for once I am very happy to be at work..... (to have some peace)

My daughter jumped from a plane at 11000 ft. Now I was like a mother chicken raising a duck. I was running and clacking just like a chicken does when her chick falls into the water. All went well! (thank goodness)

And My sister -in law is visiting!!!! she is not the nicests  person on earth... I had to bite my toung so many times , I think I might have to see the doc when she goes, just to make sure my toung is ok. :banghead;

I walked alot this weekend so it feels like my feet and legs are jelly this morning.... AM I GLAD TO BE AT WORK TODAY.... to rest  :rofl; :rofl; :rofl; :rofl;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Chris
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« Reply #21162 on: December 13, 2009, 10:28:19 PM »
Good Morning Des. I have a very good idea what you feel
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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Posts: 6928


My two beautifull granddaughters

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« Reply #21163 on: December 14, 2009, 06:27:30 AM »
Des, it must have been grim for you to be glad to be at work.

 :rofl; :rofl;

I'm a bit stressed about trying to find yet another person to work as support staff. Sigh.

But the rest of the staff are great and pulling together to help.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21164 on: December 14, 2009, 06:51:33 AM »
Good morning all.  I win!
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willowtreewren
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My two beautifull granddaughters

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« Reply #21165 on: December 14, 2009, 07:38:44 AM »
We are ALL winners, Marc.

But, I am the one who loves IHD the most.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Slywalker
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« Reply #21166 on: December 14, 2009, 09:13:49 AM »
WOOHOO - it's Monday and it is not snowing.  I was fortunate enough to have to work all weekend  :sarcasm; so it is a joy to be here again almost like I never left. 

Have a super duper day IHD.

(Maybe Aleta's at lunch so I can win for an hour or soooooooooo).   :snowman;
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Des
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« Reply #21167 on: December 14, 2009, 10:12:12 AM »
Quote from: willowtreewren on December 14, 2009, 06:27:30 AM
Des, it must have been grim for you to be glad to be at work.

 :rofl; :rofl;

I'm a bit stressed about trying to find yet another person to work as support staff. Sigh.

But the rest of the staff are great and pulling together to help.

Aleta

Not so grim but... she is a very difficult person to get along with. It is just so draining.

She is flying back to Cape Town on Thursday. Yeah for Thursday.! Then it is another year or two before I have to go through this again.
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Chris
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« Reply #21168 on: December 14, 2009, 11:40:32 AM »
I walked in and walked back out

Just got home from the city adventure with docs, but hae to clean first and get garbage out first before I can rest.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cariad
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Posts: 4208


What's past is prologue
« Reply #21169 on: December 14, 2009, 11:46:47 AM »
We have our gigantic tree almost decorated. My three year old wanted to help this year, so there have been quite a few ornament casualties already. I love the way little kids find that one spot on the tree and then try to hang a dozen ornaments there.

Sorry to hear about the staffing and crown troubles, Aleta. :( I hope things fall into place for you. Oh, Des, just hang on until Thursday. You can make it!  :cheer:

I'm off to clean up after the tree decorating. This will take a while....  :waving;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21170 on: December 14, 2009, 12:08:10 PM »
    Good afternoon everyone...... no snow   just rain now..... the usual stuff.....      guess we had our chance but now it gone......   no white Christmas here....

     And my dogs   ( sib huskies ) personally told me that they were dissappointed more than I was .....
             
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
renalpenguin
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« Reply #21171 on: December 14, 2009, 12:17:29 PM »
Hi everyone!  :bandance;
Logged
August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
willowtreewren
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My two beautifull granddaughters

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« Reply #21172 on: December 14, 2009, 01:14:07 PM »
Hey, Kathy,
Come with me to Massachusetts next week! They have snow on the grownd which isn't melting!  :clap;

And it is supposed to get down to 8 degrees on Thursday night.  :o

I'm so glad I have a new full length down coat to wear up there! Brrrrr!

I saw in another thread that you aren't feeling too great. Hang in there. Once you get that dry weight figured out and/or go home where you can make you own determination about how much to take off, you should start to feel better. AND it might be your hemoglobin, too.

I'm hoping it all settles down for you soon.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #21173 on: December 14, 2009, 03:03:01 PM »
For those who gave me their address/phone for the guide dog organization, I found out from MandaMe that the organization has sent a questionaire in the mail containing about 10 to 15 questions. Ask me questions if you ned help. Thank You. :bow;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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Posts: 17042
« Reply #21174 on: December 14, 2009, 03:37:30 PM »
Research Papers and fractions.  Good Lord!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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