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Author Topic: Last Post Loves IHD The Most!  (Read 1833746 times)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21050 on: December 07, 2009, 11:47:05 AM »
    I wish I had a old car..... I just have a old Truck.........  but I always win with my truck.....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
dwcrawford
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Getting the heck out of town.
« Reply #21051 on: December 07, 2009, 02:47:20 PM »
Hanify gave me the bird!!!
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21052 on: December 07, 2009, 02:48:40 PM »
Was that a tweety bird.......     does she have a secret....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

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« Reply #21053 on: December 07, 2009, 04:09:38 PM »
Hanify and Dan, now you be good or you know that Santa will only bring you coal!

My mouth hurts too much to open it to eat much. And I sure can't smile very well!  :(

These new crowns better be worth it.
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21054 on: December 07, 2009, 04:27:52 PM »
I just have an old truck too.  It is just about to turn 190,000 miles. 
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Chris
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« Reply #21055 on: December 07, 2009, 06:23:58 PM »
I never had a vehicle with that may miles before, even the used vehicles I have had. My truck is 9 years old and nowhere close to 27,000 miles yet.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #21056 on: December 07, 2009, 06:44:36 PM »

Is this the car thread?
hehehe
I win!  :thumbup; :thumbup; :thumbup;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
dwcrawford
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Getting the heck out of town.
« Reply #21057 on: December 07, 2009, 06:49:26 PM »
It was a Kiwi bird... squeeze toy.  It's on my tree.
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
paris
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« Reply #21058 on: December 07, 2009, 07:54:03 PM »
I feel like winning for awhile!   :2thumbsup;    :yahoo;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Des
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« Reply #21059 on: December 07, 2009, 09:18:39 PM »
Quote from: willowtreewren on December 07, 2009, 04:09:38 PM
Hanify and Dan, now you be good or you know that Santa will only bring you coal!

My mouth hurts too much to open it to eat much. And I sure can't smile very well!  :(

These new crowns better be worth it.

OUch!! rinse with saltwater.... It helped me..... Hope you feel better soon. :flower;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Chris
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« Reply #21060 on: December 07, 2009, 09:23:19 PM »
Had an odd day today dropping of  medical forms at eye doc and gp's ofice. Went to eye doc, no patients there and I get a secretary who seems angry because she has to help someone. I say I need these forms filled out by my doctor to see if I qualify for a guide dog. She replies "Are you qualified for a guide dog?" I said that's why I am here, to find out with these forms I have to turn in. And she said it in a pisy mood, like excuse me for interrupting you from either yaking or playing solitaire on the pc.

Second doc, I asked if I can drop these forms off or wait till my apointment later this month since it is a few pages long. She then rudely says that it will cst me out of pocket $25 for the doctor to do the paperwork and do the physical exam. Well I have an appointment this month, what if I bring it then and have him do it while in the room? It's still $25. I never had to pay for a medical history a physical exam paper form cost me other than an ofice visit, this is new to me and a slight shock. Well with her attitude towards me, not like I'm a new patient there or an argumentive patient. So I'll  try my doc in the city to have this done without costing me.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21061 on: December 07, 2009, 09:38:00 PM »
Similar thing happened to me for my son's clearance to play football.  They wanted to charge me for the doctors signature.  I inform the front office girl who I have never seen before that if the doctor does it during the exam they do not charge she insists that they ALWAYS have charged.  I advised her that we have done it for the last 6 years that way and she tells me that I have not.  I just brought them in with me and the doctor signed them for free.

Tomorrow is the big meeting with the transplant surgeon. 
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Chris
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« Reply #21062 on: December 07, 2009, 10:00:18 PM »
Good Luck, keep chin up, and don't take no for an answer if any of these phrases help, please use them Marc  :2thumbsup; :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21063 on: December 07, 2009, 10:58:29 PM »
Thank you Chris.  i don't know what I would do without you.  :sarcasm;

Good morning Des.  :waving;
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Chris
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« Reply #21064 on: December 07, 2009, 11:41:11 PM »
Oh and take notes, use a voice recorder if possible to help take notes  and review answers or concerns.

And Good Morning Des :waving;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21065 on: December 08, 2009, 12:53:06 AM »
Anyone have any good questions I should ask?
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Des
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« Reply #21066 on: December 08, 2009, 01:01:25 AM »
Morning guys!

I don't feel so good today..... If I had a sharp knife I would remove this darn kidney myself today :banghead; It is so sore.......
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Chris
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« Reply #21067 on: December 08, 2009, 07:39:31 AM »
That's a hard question Marc because I don't know what you have asked or have already read here.

Des, sorry to hear your having a bad day and in pain.

I am up early and have to get going early to get labs done due to snow fall.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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Posts: 6928


My two beautifull granddaughters

WWW
« Reply #21068 on: December 08, 2009, 08:02:15 AM »
Note to self: Keep Des away from knives.

Sorry you aren't feeling well!  :thumbdown;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #21069 on: December 08, 2009, 08:54:48 AM »
Des, I am sorry you are having a bad time.  Please only use forks and spoons for awhile!   :rofl;

Marc, good luck with the meeting. I have found that the meetings with the transplant surgeons are the easy ones!  He always feels the area where incision would be, asks many questions about how you are feeling, etc.  Mostly we just talk.  I'll be thinking of you tomorrow. Let us know how it goes.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YLGuy
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« Reply #21070 on: December 08, 2009, 09:22:28 AM »
Hoping all the knives Des has are dull.  I am sorry you are in pain.  :grouphug;
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cariad
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What's past is prologue
« Reply #21071 on: December 08, 2009, 10:07:08 AM »
Oh, Des, take it easy (if possible). I really hate that you have to suffer like this. Hope you start feeling better soon.

Marc, I find that most surgeons have a little prepared speech that they blurt out, and it tends to cover most questions in their realm. Drug protocols are an important one. If they want to give you long-term steroids, ask about options. Often, they are willing to do things if the patient asks, but won't broach these subjects if the patient says nothing. I have found the pressure to use a live donor pretty intense when it comes to surgeons. State what you want clearly, and they should back off.

Sorry, that's all that comes to mind. Oh, but do remember that surgeons are infamous for being socially inept. Try not to take it personally if you run across this problem with yours. Good luck!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
willowtreewren
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My two beautifull granddaughters

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« Reply #21072 on: December 08, 2009, 11:08:08 AM »
ø¤HAPPYº°¨¨°º¤ø °¨¨°º¤ø ¸„ø¤º°¨¨°º¤ø¸HOLIDAYS¤ø ¸„ø¤º°¨¨°º¤ø ø¤º°¨¨¨°º¤ø ¸„ø¤HAPPYº°¨¨°º¤ø ¸„ø¤º°¨¨°º¤ø ¸„ø¤º°¨¨°º¤ø,„HOLIDAYS¤ø ¸„ø¤º°¨¨°º¤ø ø¤º°HAPPY HOLIDAYS!!!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue
« Reply #21073 on: December 08, 2009, 11:33:53 AM »
Oooo, how festive, Aleta! Looks like the snow that has been lightly falling here all morning....  :snowman;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #21074 on: December 08, 2009, 12:46:59 PM »
Quote from: cariad on December 08, 2009, 10:07:08 AM


 Oh, but do remember that surgeons are infamous for being socially inept. Try not to take it personally if you run across this problem with yours. Good luck!

Hmmm, to late for me  :rofl; Pancreas surgeon is a real  :sir ken; but kidney surgeons I have dealt with are far more better. Let's just say the pancreas doc avoids me now due to a confrontation. :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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