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Author Topic: Last Post Loves IHD The Most!  (Read 1834384 times)
YLGuy
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« Reply #20200 on: October 08, 2009, 09:20:11 PM »
Hey Chris!  :beer1;
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kitkatz
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« Reply #20201 on: October 09, 2009, 06:30:34 AM »
I am off to a busy day of math and writing narrative essays. Good morning!




I WIN!   :bandance; :bandance; :2thumbsup; :2thumbsup; :rofl; :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
dwcrawford
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Getting the heck out of town.
« Reply #20202 on: October 09, 2009, 06:34:29 AM »
Chris, you feeling better?  Hurry up!  I'm anxioud to hear more about your dude friend at the hospital.  lol
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

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« Reply #20203 on: October 09, 2009, 06:38:14 AM »
where in Mass? The Berkshires, where our daughter lives.

I'm in a real mental conflict. Our first tx center called and said that they are willing to do a nuclear imaging test on y kidneys that will pinpoint the functioning of each kidney independently. Do I even go in for that? They have been so pissy with us for the past couple of years. It is definitely more convenient for us to do the tx there....

Sigh. Too much to think about.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
keith
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« Reply #20204 on: October 09, 2009, 06:50:27 AM »
sorry that ive not been on in awhile long story but im back :clap;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
willowtreewren
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« Reply #20205 on: October 09, 2009, 06:51:54 AM »
Hey, Keith! Good to see ya!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willowtreewren
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« Reply #20206 on: October 09, 2009, 02:10:13 PM »
Have set a date for the nuclear imaging. October 21. This way I will know exactly how well my kidneys are doing and whether I have two good ones or only one. Hmm. I guess I would have to hang on to it if only one is any good!

Still keeping the other tx center open as an option, though.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.
« Reply #20207 on: October 09, 2009, 02:14:10 PM »
I don't really understand.  If you only have one good kidney then who sould take care of your husband while he's recouperating and what if something happened to your other kidney.  Would be be able to care for each other through all that or do you have other family members to relay on...  Don't mean to be negative, just trying to understand.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
kitkatz
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« Reply #20208 on: October 09, 2009, 03:32:18 PM »
Hey everyone. it was a good day at school. I did two triennial IEPs this afternoon. I am feeling better, too. Made it through the day! :flower; :flower; :flower; :flower; :flower;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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« Reply #20209 on: October 09, 2009, 04:06:55 PM »
Dan,
It will definitely be a stretch for both of us to be out of work for any amount of time, but we have soooo many folks willing and even eager to help.

One of the others who came forward to donate (but was denied by the tx center) wants to come take care of us. Others want to help, too. My brother who lives nearby cannot help because he has an invalid wife. My dad is too old (and in and out of the hospital). Our only daughter lives too far away, so we will be relying on friends.

But for some odd reason, we have many of those, who think we are worth their time and effort.  :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
petey
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« Reply #20210 on: October 09, 2009, 06:26:41 PM »
Aleta,
Friends will be a God-send for you and Carl.  And, if you two are like Marvin and me, Carl will be "up and going" before you are.  I guess it was because of the difference in the incisions (mine was half-way around the stomach, and Marvin's was small and near the very bottom of his abdomen) and the difference in the surgeries (mine was dig through her body to get to the kidney, and Marvin's was just tuck it in and hook it up), but I was soooo sore, and Marvin was "fine" the next day.  My parents stayed with us for a week, but we could have managed okay by ourselves (but try to tell the parents that!).  When Mom and Daddy went home (2 hours away) for the week-end, my mom said, "Who will take care you two while I'm gone?" and Marvin said, "I got it."  And, he did.  It really took me about another week to be 95% back together, but Marvin ... he was ready to go the day after his surgery.  Mom and Daddy came back for another week after the week-end they went home, but we were all getting pretty bored that second week.

You two will be fine.  If you've managed to survive it all this far (especially the home hemo part), the transplant will be a piece of cake!  You'll be surprised at how strong you are!  I'm excited for you.
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willowtreewren
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« Reply #20211 on: October 09, 2009, 07:17:39 PM »
Marsha, you are MY hero!  :clap;

I still worry about whether the test will come out all right. If not, well, there is no reason to pursue the transplant at the other center. But the other one specializes in non-steroid post-tx care and we would prefer that. BUT it is 2 hours away instead of 10 minutes.  :thumbdown;

It is going to be a hard decision if I pass this test.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #20212 on: October 09, 2009, 07:52:58 PM »
Aleta, quick question for you on facebook
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Chris
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« Reply #20213 on: October 09, 2009, 09:40:18 PM »
Aleta, if they been "pissy" for that amount of time and you do not feel right about them now, maybe it's time to go somewhere else for another opinion beccause of what you might fel about their after care.

Dan, I still do not feel my usual self and arguing with nurse about medications given that caused problems. Have to try to get kidney function back up if that is possible, gt a call today about labs showing kidney function has gone down and suppose to push fluids, but it's a big drop compared to what it has been. Will take another test, maybe a fluke.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #20214 on: October 09, 2009, 10:49:55 PM »
Just got back from visiting kitkatz.  Posted about it. I win
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dwcrawford
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Getting the heck out of town.
« Reply #20215 on: October 10, 2009, 06:22:53 AM »
Damn Chris.  That sucks.  Please feel better soon.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

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« Reply #20216 on: October 10, 2009, 06:29:56 AM »
Chris, please get better soon. This is just not what I want to hear.

And yes, we are very conflicted now about whether to just move to another center or not. If this test shows that I only have one good kidney, the subject is closed. BUT, if it shows that I'm good to go, we will have to make a hard decision.

Marc, I'm so glad I stayed up late last night. You are so very sweet to visit Kitkatz like that. I laughed about the Davita tech! So funny.

Have a wonderful weekend. My dad gets out of the hospital today. I think I have our huge supply snafu fixed. My vacation supplies were NOT delivered yesterday as they were supposed to and will not arrive until after we leave.  :banghead;

My center is so helpful, though. They'll get it worked out to have them shipped to our daughter's.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kitkatz
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« Reply #20217 on: October 10, 2009, 10:02:45 AM »
I am up now.  I win!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #20218 on: October 10, 2009, 10:51:59 AM »
Just dropping in to say  Hello to everyone.....  Had a wonderfull time in NM   watched the hot air balloons....  there are so many.....    My trip down to NM  was great... UT is one of the most beautifull states in the US.......  I love going there.....   I am now back   going to start D again tomorrow.....  and I have decided that when I get my transplant  I am going to travel and live like a gypsy.......   I never want to come home......   My dream when I grow up was to become a  snow bird......   So  thats my goal......
       Read alot of new post here  Looks like alot had gone on over the past week.........   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
dwcrawford
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Getting the heck out of town.
« Reply #20219 on: October 10, 2009, 11:01:53 AM »
Welcome home Tyefly...  come into chat tonight and tell us about the trip... if you're not too tired out.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #20220 on: October 10, 2009, 11:05:17 AM »
see you there........   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

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« Reply #20221 on: October 10, 2009, 11:15:10 AM »
Missed you Tyefly.

Glad you are back. I'll try to stay up late tonight, too.  :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #20222 on: October 10, 2009, 03:41:49 PM »
Update on my son's football team.  They won again today.  Their record is now 6-1.  They lost 1 game 8-10.  They have scored a total of 158 points in the 7 games.  Together their opponents have scored a total of 24 points against them in the 7 games.  They have 1 more regular season game left and then it looks like the playoffs.

 :cheer:  :cheer:  :cheer:
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paris
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« Reply #20223 on: October 10, 2009, 04:27:14 PM »
 :cheer:    Way to go YL son's team.    :cheer:    Hard to believe our season is almost over too.  What will we do with our Saturdays? 

Oh yea, I win   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #20224 on: October 10, 2009, 04:52:46 PM »
 :beer1;
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