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Author Topic: Last Post Loves IHD The Most!  (Read 1833447 times)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #20100 on: September 29, 2009, 11:28:50 PM »
Quote from: willowtreewren on September 29, 2009, 01:24:10 PM
Finally checking in today! I have been doing my 24-hour urine collection today and already I've had over 2L in output. Woo hoo!

It turned chilly here, for sure. Fall is in the air.

Now I'm not just jealous of your pool ha ha ha ...  :rofl;
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Chris
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« Reply #20101 on: September 29, 2009, 11:38:25 PM »
Pain is way worse than having a transplant. I call the surgeon in the mrning, I won't call the 24 hour line and my local doc becaus I think I will get dehydrated even more.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #20102 on: September 29, 2009, 11:50:50 PM »
Huh?  Why will calling the 24 hr line or Dr make you dehydrated?  Are you sure you shouldn't.  It's sounds a bit bad!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Chris
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« Reply #20103 on: September 30, 2009, 12:16:49 AM »
No, I can't get get enough fluids in. I hate making calls at night, so I'll call in the morning to the oral surgeon and my local doctors office. The swelling and pain make it hard to open mouth and I haven't had much to drink. Was able to get pills in, but if I lay down, then jaw has a throbbing feeling..

Sorry bad writing.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #20104 on: September 30, 2009, 12:19:57 AM »
Boo hiss.  Sounds awful.  Is there someone there with you? 
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Chris
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« Reply #20105 on: September 30, 2009, 12:30:57 AM »
I don't bother my parents especially at 2:30 am  when they have to get up at 5 am for work. I handle my healthcare on my own.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #20106 on: September 30, 2009, 06:51:23 AM »
Oh, Chris,

Tooth pain is the worst kind of pain there is!  :grouphug; :grouphug;

I hope you can get it under control so you can get some fluid in.
I've been drinking enough for both of us, though!  :clap;

Hanify, I take it that your "twisted" mind couldn't resist connecting urine collection and pool water.  :rofl; :rofl; :rofl;

You'll still be welcome in my "ool". Notice there is no "p" in it!  :2thumbsup; :2thumbsup;

I took a jug with 3L in and had my blood drwn this morning. Now the wait begins. I'm trying not to get too optimistic, but it's hard!

Have a lovely day, peeps!
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #20107 on: September 30, 2009, 07:00:41 AM »
Thanx you 2
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Chris
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« Reply #20108 on: September 30, 2009, 07:03:09 AM »
Just waiting for doctors to come in now. Feels like my jaw is more swollen than when I went to bed at 4 am.

I have a taste for ice cream, but that won't help with dry mouth much, I get that syrupy sticky feeling on my tongue and throat. However it would be something to eat. All the soup I have is to hard to manage
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Slywalker
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« Reply #20109 on: September 30, 2009, 11:01:04 AM »
Aleta - fingers crossed - its okay to be optimistic - why not?   fingers still crossed
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kitkatz
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« Reply #20110 on: September 30, 2009, 03:02:03 PM »
Chris I hope things are better this day.



I win again!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

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« Reply #20111 on: September 30, 2009, 03:56:41 PM »
Woo Hee! I am tired tonight! I think the trip to Cincinnati is catching up with me.

But, KK, now I win!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #20112 on: October 01, 2009, 12:32:25 AM »
MORNING!

Chris, hope you feel better soon.

WTW  rest my friend.... rest.

enjoy your day folks.!
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Slywalker
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« Reply #20113 on: October 01, 2009, 05:04:45 AM »
Morning IHD - it is frickin' cold here this morning.  My hands are frozen after walking the dogs.  And, there was a little $%#  :thumbdown;  yesterday in the mountains....... not what we like to hear.

have fun today
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #20114 on: October 01, 2009, 09:04:21 AM »
Morning to everyone......    I am off to Albuqurquie NM with hubby for a week long adventure in the truck.... WE are taking a load and heading to NM going thru Salt lake city and of coarse my favorite  Moab Ut....  what a great place.... I love spending some time there ....this time of year the leaves should be turning lots of colors..... I will be back next thursday   and   I will again start D that following Monday  and hopefully my baby fistula will be a little more grown up...   
     So  I guess I WIN  by going on  a road trip in the semi....... 
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
MandaMe1986
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« Reply #20115 on: October 01, 2009, 10:18:27 AM »
Morning all....

Tyefly you are headed out my way! How fun.  Gonna have some yummy green chile while your here?
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kitkatz
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« Reply #20116 on: October 01, 2009, 02:28:16 PM »
I WIN!!!  :sir ken; :sir ken;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

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« Reply #20117 on: October 01, 2009, 04:13:23 PM »
Boy, this has been a slow thread lately!

 :rofl; :rofl; :rofl;

We are enjoying a rare evening off!  :2thumbsup;

No meetings tonight (I pared down tonight's staff meeting to just one classroom and did it before all the kids went home!) And no dialysis because Thursday is our "off" night. Weeeeeee! :yahoo; :yahoo;

Looked at my "Southern Living" magazine at a leisurely pace.  :clap;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #20118 on: October 01, 2009, 05:34:34 PM »
Good evening, hope everyone is doing well.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
dwcrawford
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Getting the heck out of town.
« Reply #20119 on: October 01, 2009, 05:37:04 PM »
I don't like posting on this thread since David13 is gone.   It doesn't seem as much fun.
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

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« Reply #20120 on: October 01, 2009, 06:00:38 PM »
Yes, I feel David's loss here the most!  :'(

But, Dan, we need you, too!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #20121 on: October 01, 2009, 06:04:40 PM »
Well, Dan, we will have to figure out a way to make it more fun -------  Any ideas?     Tag, you're it!   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YLGuy
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« Reply #20122 on: October 01, 2009, 09:37:28 PM »
Quote from: Des on September 29, 2009, 03:09:15 AM
Quote from: YLGuy on September 22, 2009, 06:47:38 AM
My daughter has her first school dance coming up. What to wear, what to wear what to wear???

Where is the pics? I can't wait.
 I have just put mine up....
putting them up now
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willowtreewren
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My two beautifull granddaughters

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« Reply #20123 on: October 02, 2009, 04:54:49 AM »
Woo, hoo. Marc.

Morning, all.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kitkatz
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Posts: 17042
« Reply #20124 on: October 02, 2009, 06:20:18 AM »
Tag your it!    I win again!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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