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Author Topic: Home From The Hospital  (Read 9985 times)
angela515
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« on: May 02, 2008, 08:52:52 PM »

OK, so I spent the last week in the hospital.

Story starts Monday morning when I wake up to get my kids ready for school.... I have a fever 100.5. OK, So I take some Tylenol and get my kids off to school. I ain't concerned at the time even though I am not supposed to have a fever being immunosuprressed, because I have aches all over my body as well. So I am thinking the flu. 2 hours go by, I take my temp again because I am feeling worse, and it's 101.5, still can't take anymore Tylenol so I go back to sleep. Wake up an hour later and take my temp again and it's 102.0, I call my dad and he takes me to the ER at the local hospital.

I get back right away, (YAY For small towns.) and they start taking my temp and blood pressure and asking questions. I tell them I was just here on the 17th for a fever and they send me home with 10 days worth of Levaquin. They ask did it help? I said, my fever didn't come back until today, but I felt like sh*t every single day and been throwing up alot. So they drew labs and we waited. They kept coming in to take my temp and it finally had risen to 103.5, they got very concerned fast. They left a message for my kidney Dr to call back and they started an IV and a gram of antibiotics to keep me from going septic. My rash I been having on my legs just happened to show up as well and I showed them that and the doctor there said it looked like Fifths Disease and ran blood tests for that. My labs came back, and my creatnine was up to it's highest it's ever been since my transplant, 2.1. I almost started crying right then, I was very worried.

So, my kidney doctor finally calls back and wants me transferred and admitted to Mercy in town so they can take care of me. So I wait for a room at Mercy to become available, it didn't take long and the ambulance took me to Mercy. I went straight to my room and in the bed. Fever came down to 101.0 and a few hours later my kidney Dr was in the room. He started by letting me explain everything that's been happening since my first visit to the ER on the 17th and I did. So he told me he was going to start running every test under the sun and that he had high hopes my creatnine was that high from weeks of throwing up and that I was dehydrated since I had no tenderness when he pushed over the transplant area. He started me on 24hour IV fluids and a broad-spectrum antibiotic. The same day I went downstairs for a chest x-ray and a cat scan of my sinus's. That morning I woke up and he came and told me that my creatnine was back down to 1.5 and he found out the cause of all my problems. I have severe Sinusitis. Since the blood vessels to the sinus cavities are very small and hardy any, I have to be on Amoxicillan for 4 weeks and maybe longer depends when he sees me June 5th.

I got to go home this afternoon, he wanted me on IV antibiotics for that whole week and when I left my creatnine was back down to 1.2. I filled my prescriptions and I am hoping they get this infection gone because it's treating my body horrible. I still get fevers and stomach aches and my whole body aches, and this won't go away until that goes away b/c it's causing it.

I also found out that the Fifths Disease test came back positive, and there is nothing you can do but wait it out because it's viral. It's a children's disease, and I go it because of my immune system being non existant. I have some major issues with some things happening to me right now and what this website says about it for ppl like me with immune system problems... so I am definitely printing it off and showing it to my kidney dr on 13th, however I will call them tomorrow and voice my concerns.

http://www.cdc.gov/ncidod/dvrd/revb/respiratory/parvo_b19.htm

That is all for now. I am home, taking my antibiotics and drinking lots of fluids... and hoping it don't take month's for all this to get better.

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Live Donor Transplant From My Mom 12/14/1999
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okarol
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« Reply #1 on: May 02, 2008, 11:02:20 PM »

Oh Angela, what a nightmare! So glad you are ok.
I knew I had seen that rash before, it was in a Family Medical Guide I had when my kids were little, and it mentioned Fifth Disease.
Sorry, I just couldn't recall. Hope you are better every day.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #2 on: May 02, 2008, 11:38:30 PM »

Glad they eventually found out what it is, what a worrying time you had. Hope all will go well and you will soon be your old self again. :grouphug;
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spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008

« Reply #3 on: May 03, 2008, 03:01:12 AM »

Awww, man that really sucks. I hope you get better really quickly! I am so glad your kidney function got better right away. Take it easy and get lots of rest!

For Fifths Disease:
 :Kit n Stik;
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
willieandwinnie
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« Reply #4 on: May 03, 2008, 03:17:41 AM »

Angela  :cuddle; so glad you are back home. You have had a bumpy ride the last couple of weeks. I hope the antibiotics kick in and this will just be another memory. Keep us posted.  :grouphug;
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« Reply #5 on: May 03, 2008, 04:23:24 AM »

 :cuddle;
Wow. Sorry Angela.
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« Reply #6 on: May 03, 2008, 04:31:07 AM »

I can just imagine your worry about the jump in your creatinine. I could almost feel the panic with you. WOW I'm glad they figured it all out and you are home and recuperating.  :grouphug;

Won't be long now Angela and you will be up and back to normal, whatever normal is.  :)
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angela515
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« Reply #7 on: May 03, 2008, 10:14:00 AM »

Ok, I spent all day in bed taking Tylenol and my fever is still 103.1, I called the doc, and yes... I am heading back to the hospital now to be admitted again for more IV antibiotics.... Hope to be back soon. :(
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jbeany
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« Reply #8 on: May 03, 2008, 10:36:14 AM »

Hang in there and get well soon!
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« Reply #9 on: May 03, 2008, 11:59:46 AM »

when i first got my transplant at 19 my creatnine out of the hospital was 1.7....then within 3 months it jumped to 2.1 but my kidney ended up lasting 14 years so dont feel to bad about those numbers.
@ the 4 and 7 year i had pneumonia and the levels were like 6 and 7 but they came down to like 3's.

I assume everytime i got a sick it jumped. So try not to worry so much about it. Its the broken part in your body and it will be the first to cry for help always but as soon as you get better it will also.
Your immune system will get stronger eventually and youll find yourself getting sick as often as everybody else........BUT yours will always last longer.

I can remember 3 weeks flu's. 2 months cold's etc........

Probably the sinlge most important thing other than salt and protein is keeping your blood pressure under control.
If you watch out for those youve done your part.
keep up the fight. :boxing;
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"All we are is dust in the wind," dude.
Bill and Ted's Excellent Adventure

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Alports @ age 19 hemo in center 4 months
20 paternal kidney transplant 14 years
Present 1 1/2 yr PD
4 month in center
now 6 months @ home NxStage Daily
Soon Nocturnal!
lola
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« Reply #10 on: May 03, 2008, 12:16:43 PM »

Hang in there Angie :grouphug;
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monrein
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« Reply #11 on: May 03, 2008, 12:19:48 PM »

So sorry this isn't as simple as we've been hoping it was.  Get well soon. We miss you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #12 on: May 03, 2008, 12:40:48 PM »

angela, I'm so sorry.  :cuddle; I sure hope they get this straightened out soon. Take care and know that we will be thinking and praying for you. Keep us posted.
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spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008

« Reply #13 on: May 03, 2008, 12:57:01 PM »

Get well soon, Angela! <3
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
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« Reply #14 on: May 03, 2008, 02:55:45 PM »

at least they figured out where the rash was coming from. hope you're soon feeling better  :grouphug;
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« Reply #15 on: May 03, 2008, 05:15:05 PM »

Get well soon Angie thinking of you
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« Reply #16 on: May 03, 2008, 05:55:19 PM »

get well soon Angela.  Those sinus infections can be awful!!!  :cuddle;
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« Reply #17 on: May 03, 2008, 06:04:13 PM »

Sorry to hear you're not feeling well. I know how frustrating it is with the creatinine jumping around. Feel better soon  :grouphug;
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angela515
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« Reply #18 on: May 08, 2008, 03:35:29 PM »

migaguiar: Uhm... I have had a transplant before, this isn't my first so sorry if i sound rude, but I already knew all that as I have dealt with this stuff before.

Anywho.

Just got discharged from the hospital today.

Lots of things happened, so let me try to get them all in here:

Day 1 they drew blood cultures again, they also did a chest x-ray due to the pain I was having on my right side.  They then started be back on the IV antibiotics. Sunday morning my kidney doctor came in with bad news. My white blood cell count was critically low and so was my red blood cell count. I also had something in my right lung, so they called a lung doctor. My kidney doctor stopped my Rapamune because it can cause lung problems and it also can lower white blood cells. They upped my Prograf since I was only on that for anti-rejection. The lung doctor ordered a cat scan of my lung and also scheduled me for a procedure to go down my lung. Once the cat scan came back he got everything up in my room and ready for the procedure. Now that they took out my bed and brought in an ER bed, my room looked like a little OR room. I got up on the bed, hooked up to the heart monitor, blood pressure machine, and oxygen. The doctor came in, gave me my medicine to put me to sleep and I woke up 2 hours later with the nurses helping back over to my bed. The procedure only took 10-20 minutes, and they got their samples. However I had been on antibiotics the last 10 days and so as they were concerned the tests came back just showing I had an infection, but not what kind because the antibiotics were clearing it up.

Once the lung problem was fixed, I thought I would get to go home, but no my creatnine and BUN jumped up, so I had to stay for fluids and and an ultrasound, and finally back home today.

I feel like sh*t right now, but I am home and that's good in my book.

I will most likely feel like crap for still another month until the sinusitis is gone... and I still can't keep anything down... vomitting and feeling like I never want to eat again seems like a daily thing right now.

Angela
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« Reply #19 on: May 08, 2008, 03:39:01 PM »

 :grouphug;
So sorry for you Angela! I hope you can rest and get better soon!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #20 on: May 08, 2008, 03:47:30 PM »

Hopefully it will all be over soon and you can feel like your good ol chipper self again..here's hoping sooner than later  :grouphug;
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willieandwinnie
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« Reply #21 on: May 08, 2008, 03:54:01 PM »

Angela, I'm so sorry. I'll be thinking about you and hope you can get some much needed rest. Take care.  :cuddle;
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« Reply #22 on: May 08, 2008, 04:46:32 PM »

Angela, this sounds very scary and unpleasant (to say the least); I'm so sorry you're going through all of this.  I'm thinking of you and hoping things get better soon.  :cuddle; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

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tubes
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Miss you so much Susie. Will always <3 you!

« Reply #23 on: May 08, 2008, 04:52:44 PM »

Hi Angela! I'm so sorry to hear about what u r going throu. I hope they get u straightened out soon.
Take it easy, keeping u in my thoughts.
Robert  :cuddle;
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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
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« Reply #24 on: May 08, 2008, 06:11:13 PM »

Angela, I can't believe how much you have gone through. You are incredibly strong, although you probably don't feel that way right now.  Rest, rest, rest.  How are your little ones doing?  I am sure they are glad you are home even if you feel so bad.  Take care and remember we all love you :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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