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Author Topic: Update !  (Read 2463 times)
KICKSTART
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In da House.
« on: April 25, 2008, 11:51:55 AM »
I had a renal nurse come out and visit me at home yesterday , she was fantastic! She stayed over 3 hours with me , covering things that worried me and generally chatting , which was nice , just to have some company and actually talk face to face with someone who understands it all, and she really does understand! She thinks the pains may be a few different things ranging from Angina to stress to phosphorus , but cant say which for sure. Im pretty certain it wasnt a panic attack , but i have felt like i have been having those since it happened. She has also diagnosed that im depressed , which i didnt realize , i just thought 'mood swings'. So the outcome is , she is picking me up on Monday for a one to one with the 'top doc' at the unit . No doubt more tests will be done to try and find out whats going on (i hope)! So i will let you know after monday if they find anything. In the meantime thanks for all your good wishes and kind thoughts , i f i ever win the lottery im going to get us all together, somehow, somewhere !!! :grouphug;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Deanne
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« Reply #1 on: April 25, 2008, 12:05:09 PM »
I'm thilled to hear someone is finally listening to you!  :clap; I hope this means this will stop happening to you very soon.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
monrein
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Might as well smile
« Reply #2 on: April 25, 2008, 12:06:32 PM »
Great news Kicky.  So glad you're feeling a little less alone.  Thanks for the update and keep us in the loop. (Lord knows we're loopy enough but anyway...) :thumbup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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« Reply #3 on: April 25, 2008, 12:09:35 PM »
fantastic! hopefully the doc will listen this time and won't put you through to many tests. we'll be waiting to hear what happens.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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Ohio Buckeye
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« Reply #4 on: April 25, 2008, 12:23:29 PM »
Thanks for the update Kickstart.
I'm glad someone is helping you with this.
I hope you fnd out what is going on.
Best wishes to you.
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If I must do this to live, I must strive to live
while I am doing this.
bolta72
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my best friend
« Reply #5 on: April 25, 2008, 01:39:45 PM »
Good for you, glad to hear your getting some help
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gotta do what I gotta do.. 2 yrs in ctr hemo
rose1999
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« Reply #6 on: April 25, 2008, 01:41:12 PM »
Glad to hear you are getting some support  :grouphug;
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Sunny
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Sunny
« Reply #7 on: April 25, 2008, 02:55:49 PM »
Finally, you are getting the kind of attention you deserve.
Your renal nurse sounds very caring. Hopefully you can figure out an answer to this episode you had.
Good luck to you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Sluff
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« Reply #8 on: April 25, 2008, 07:38:33 PM »
Great progress Kickstart,  :2thumbsup; if you win the lottery call me first...ok? ;) >:D  We love you KS.
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kitkatz
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« Reply #9 on: April 25, 2008, 08:02:49 PM »
Hurray someone finally takes it seriously.  Good luck with all of it!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
petey
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« Reply #10 on: April 25, 2008, 08:10:44 PM »
Good for you!  I'm glad things are looking better.  You hang in there, KS.
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paris
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« Reply #11 on: April 25, 2008, 08:14:28 PM »
I am so glad.  It sounds like a very good visit and it will be good to see the doctor.  I'm thrilled things went well. You have been having a rough time.  Sending you good thoughts :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: April 25, 2008, 11:15:30 PM »
 :clap; You've been overdue for some good news - happy to hear it !
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #13 on: April 26, 2008, 05:01:59 AM »
KICKSTART  :grouphug; Hope you have another good day. Keep us posted.  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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