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Author Topic: Boxman  (Read 55856 times)
mysty
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I'm here.. for us.
« Reply #250 on: June 04, 2008, 02:37:49 PM »
Keith and I sent him a card a couple of weeks ago.. Hope he got it. ;D
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Love does not come by finding the perfect person, but by learning to see an imperfect person perfectly.
Sluff
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« Reply #251 on: June 04, 2008, 07:12:35 PM »
Here is the latest news.

Hi all,
 
Mark had a new cast put on yesterday. 2 weeks with the old one. This new cast is a lot lighter in weight. It is even a dark blue color. He had a choice of colors. He did not want hot pink. He figures he will have this cast on for 2 weeks and then it will be shed. Next comes the prosthesis to be fitted.
 
He was able to go home today, just during the day,  to meet with the rehab person to figure out what aides he will need to maneuver around the house when he is let go from the rehab center.
 
The doctor did tell Mark that he could possibly go home in a week if he is up to it and the house is ready for him. Ramp has to be built, walking aides are available, etc.
 
Mark has a wonderful disposition and seems up to the challenges that lie ahead.
 
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #252 on: June 04, 2008, 07:14:25 PM »
 :2thumbsup; That's great news - I am so happy to hear he's moving forward and healing. Thanks Sluff!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #253 on: June 04, 2008, 07:19:02 PM »
 :thx; Sluff. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
rose1999
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« Reply #254 on: June 04, 2008, 10:32:08 PM »
 :2thumbsup; Good on on you Mark, stick at it.  :thx; Sluff for keeping us updated.
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mysty
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« Reply #255 on: June 05, 2008, 03:17:38 AM »
Thats wonderful news.  I think he should have gone for the hot pink tho!
Thank you Sluff!
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Love does not come by finding the perfect person, but by learning to see an imperfect person perfectly.
Psim
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« Reply #256 on: June 05, 2008, 10:54:23 AM »
He's an inspiration.
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Ohio Buckeye
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« Reply #257 on: June 05, 2008, 02:32:59 PM »
I am glad he is doing well and may be home soon.
I am jealous tho.  It took me from Nov. to April to get fitted because I healed so slowly.
I better get a move on or he'll pass me up.   ;D
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If I must do this to live, I must strive to live
while I am doing this.
lola
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I can fly!!!
« Reply #258 on: June 05, 2008, 03:43:30 PM »
Boxman we MISS you, I'm glad things seem to be going good for you. :grouphug;
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okarol
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« Reply #259 on: June 07, 2008, 08:51:12 PM »

I spoke to Boxman tonight and he is doing really well! He says the lightweight cast is still hard to sleep with, but better than the first one. He's been off pain meds except he occasionally takes something when he's had a tough physical therapy session, but in general he's feeling good. He has a motorized chair that had been his mom's so he's able to get out a bit. He and some friends figured out how he could get across the railroad tracks without getting stuck, so he can actually make it to Starbucks and some other shops nearby. He said it looks like he will be able to go home next Friday. He's had some ramps installed and it sounds like his home will be ready for him. He said he has received cards from some of our members, with some "contraband" and candy and even greetings from Australia. He is very grateful and wanted to let everyone know he hopes to be back online soon, he misses everyone and is ready to get back to moderating (yay!)
 :clap;  :2thumbsup;  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Mimi
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For any who do not like me I use - prayer.
« Reply #260 on: June 07, 2008, 09:02:51 PM »
Hey Box, glad to hear you're doing so good.  Sent you a card, hope it gets there before you go home.
Take it easy and know that we are thinking of you.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Sluff
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« Reply #261 on: June 08, 2008, 03:50:35 AM »
 :2thumbsup;
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CW
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Yeah .............That's me!
« Reply #262 on: June 08, 2008, 04:13:32 AM »
My thoughts are with you Box
I hope your rehabilitation goes well
Thanks to you all who have been keeping in touch with Boxman and updating us it is appreciated.
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
willieandwinnie
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« Reply #263 on: June 08, 2008, 03:50:30 PM »
I've been thinking about Boxman a lot lately. I wasn't able to go get him a card but he has been in my prayers and I can't wait to see him posting again. You take care Boxman.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
boxman55
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« Reply #264 on: June 13, 2008, 08:41:05 PM »
Hi all I made it back home today. Man it feels good to be home. I am getting around with  manual and electric wheel chairs and a walker. I still have a cast on the leg but it comes off Tuesday of next week. Depending on how the leg is healing will determine the next step. I received all your cards and gifts. It means a whole lot to me that you all care so much. The cards and gifts I got from Australia.Canada and the UK where a hit with all the nurses aides. They couldn't believe that I knew all you guys.   Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Zach
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"Still crazy after all these years."
« Reply #265 on: June 13, 2008, 08:46:52 PM »
Good to have you back home!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
xtrememoosetrax
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« Reply #266 on: June 13, 2008, 08:50:18 PM »
  :yahoo; Boxman, so glad you're back -- at home AND at IHD!  You have been missed!  :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
Sunny
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Sunny
« Reply #267 on: June 13, 2008, 09:07:21 PM »
Yaaaay, Boxman.
Glad the surgury went as planned. I hope you are feeling well and getting used to your new situation.
You seem like such a strong person and are an inspiration to me. Hang in there.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
okarol
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« Reply #268 on: June 13, 2008, 09:15:45 PM »
 :2thumbsup; Yay you're home! Now you've got 823 posts to read   :rofl;

Good to have you back!  :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #269 on: June 13, 2008, 09:20:45 PM »
you know we love you boxman. welcome home
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Mimi
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For any who do not like me I use - prayer.
« Reply #270 on: June 13, 2008, 09:31:10 PM »
Oh boy Boxman, I'm sure glad you are home.  I hope my card got to you before you left the hospital.
I know this has been a rough time for you, but to hear you tell it, it was a piece of cake.
You got lots of courage, my  boy, and my prayers are with you.

Love, Mimi

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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Bill Peckham
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« Reply #271 on: June 13, 2008, 09:32:47 PM »
Welcome back.

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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Ang
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« Reply #272 on: June 13, 2008, 09:49:15 PM »
good  to  have  you  back  mark :thumbup;
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live  life  to  the  full  and you won't  die  wondering
rose1999
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« Reply #273 on: June 13, 2008, 10:37:10 PM »
 :yahoo; Great to have you back, hope the cards showed you how popular and loved you are by your large family here.  So glad thay all arrived and that the nurses were impressed  ;) Hope you continue to improve and are back on 2 legs soon, like OB you are an inspiration to all of us.  :grouphug;
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Romona
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« Reply #274 on: June 13, 2008, 11:31:57 PM »
 :grouphug; Nice to hear from you!
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