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Author Topic: Youngest kidney dialysis girl's transplant after seven years  (Read 13181 times)
hiedihi
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« Reply #50 on: May 03, 2008, 04:01:45 PM »

Ill tell you something del, theres nothing lacking in alice !! Due to her tuition both at school and during periods in hospital, she's well ahead of her peers which is fab !
Shes almost as clever as me and I'm 27 and 3/4 !!!!
Shes very adult in many ways and some of the things she does -  rolling the eyes at me behind Manals back when Manal is getting a telling off is the best one !!! Its so what I would do usually haha!!
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Hiedihi
Zach
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"Still crazy after all these years."

« Reply #51 on: May 08, 2008, 11:04:16 AM »


Please, no personal attacks.

Epoman created this site so we can have a voice on the internet free from censorship.


I'm not quite sure Epoman was against responding to a poster's comments in a way that might also be directed to the person directly with words such as "stupid" or "outrageous" or "evil" etc.   I think Epoman was just against using curse words in the forum.

If a person makes an idotic statement, or a dangerously ignorant statement, we should be able to call him/her on it.  If they take it personally, so be it.

The alternative is censorship.
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
stauffenberg
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« Reply #52 on: May 08, 2008, 05:31:57 PM »

Since it is a fundamental prerequisite of all civilized conversation that while  ideas may be attacked, the people presenting them cannot be, I think we owe it to Epoman to presume that he was not a barbarian and so would not have wanted to allow personal criticisms on his message board.

Since you have mentioned elsewhere the United Nations Human Rights Convention regarding standards for legal systems, consider the various international conventions (such as the International Covenant on Civil and Political Rights) which affirm free speech but deny the right to libel anyone.  Forbidding libel has never been viewed as censorship of legitimate free speech.
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Zach
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"Still crazy after all these years."

« Reply #53 on: May 09, 2008, 06:28:24 AM »


Since it is a fundamental prerequisite of all civilized conversation that while  ideas may be attacked, the people presenting them cannot be, I think we owe it to Epoman to presume that he was not a barbarian and so would not have wanted to allow personal criticisms on his message board.


As a barbarian myself, I highly disagree with your presentation.
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
petey
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« Reply #54 on: May 10, 2008, 04:41:30 AM »

When I was first "lurking" on this site, I read through a bunch of old threads.  I saw several "heated" discussions -- even one where Epoman called a poster on here a "stupid ass" (I think it was sandmansa).  From what I read that Epoman wrote (and he was gone before I came, so I didn't know him personally), I THINK Epoman said exactly what he thought.  And, I believe that that was his vision for this site.
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Zach
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"Still crazy after all these years."

« Reply #55 on: May 10, 2008, 05:19:58 AM »


When I was first "lurking" on this site, I read through a bunch of old threads.  I saw several "heated" discussions -- even one where Epoman called a poster on here a "stupid ass" (I think it was sandmansa).  From what I read that Epoman wrote (and he was gone before I came, so I didn't know him personally), I THINK Epoman said exactly what he thought.  And, I believe that that was his vision for this site.


Thank you petey, for setting the record straight.
I did know Epoman, and you have stated his vision correctly.

stauffenberg calling us barbarians won't shut us up.
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Romona
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« Reply #56 on: May 10, 2008, 09:18:24 AM »

To get back to the original article, I admire Alice and her family. No one has a perfect life. This is a chance to give Alice a better life. It may not be "normal" in some people's eyes. Transplant is not a cure, but a treatment that can improve one's quality of life. Best Wishes to Alice and her family.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #57 on: May 10, 2008, 09:45:10 AM »


Thank you Romona, for bringing us back to the topic.

I hope we get updates from George and that Alice is feeling great!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #58 on: August 27, 2008, 06:29:29 PM »

Alice in kidney op drama

27 August 2008
By Peter Tennick

A SICK youngster was rushed to hospital in a mercy dash to save her life – four months after having a vital kidney transplant.
The parents of seven-year-old Alice Skinner today revealed how they feared the worst when their daughter "turned grey and her lips turned blue".

Dad George said he rushed Alice from their home in Templeton Close, in the Clavering area of Hartlepool, to Newcastle's Royal Victoria Infirmary in just 24 minutes.

He said: "Her temperature was 41 degrees centigrade.

"It was touch and go."

George now believes Alice may have suffered an infection after having a tube removed from her neck in an operation when she was taken to hospital suffering from dehydration earlier this month.

George, and Alice's mother Nicola Andrews, 38, took Alice to hospital just days before she was due to appear as a mascot at the British Transplant Games, in Sheffield, as she had been suffering from headaches and was being sick.

George, a salesman, said doctors conducted numerous tests on the youngster, including a brain scan, to rule out various possibilities.

However, doctors ruled out a brain tumour and later confirmed that Alice was only drinking half of her recommended intake of water – she needed to drink two litres for an adult kidney, rather than the one litre she was drinking.

George, 39, said Alice was placed on a drip as she had lost half a kilogram in weight in a day.

He added: "The doctors said even though she was drinking about a litre a day it wasn't enough for her because it was an adult kidney.

"She was drying out without us knowing. Her body was starting to pull fluid from her skin.

"We got her fluids up, and her kidney function came back alright."

Alice was released from hospital and went to the transplant games, which she enjoyed.

"She has a really high pain threshold and seemed to get through it okay," said George.

But last Sunday, George returned home from work to see Alice turning grey.

"Her lips were blue and her face started to go grey and she started to shiver.

"Her hands and feet were freezing.

"I jumped in the car and took her straight to hospital.

"I did Hartlepool to Newcastle in 24 minutes. If we had been stopped I'm sure we would have been let through because Alice was in the back turning blue.

"The doctors couldn't find out what it was. It was like her body was shutting down. It was lucky we spotted it."

Alice's body was "bombarded" with anti-biotics and is now recovering, said George.

He added: "We are now making sure she drinks at least a litre through the night. She is on a machine to make sure she gets fluids all night long.

"At the moment, that seems to be working well, but we need to make sure she gets her fluids when she goes back to school."

http://www.hartlepoolmail.co.uk/news/Alice-in-kidney-op-drama.4429205.jp
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #59 on: August 27, 2008, 06:50:28 PM »

My thoughts and prayers go out to this beautiful and strong little girl and her adoring family.    :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #60 on: October 07, 2008, 10:17:04 AM »


Kidney op girl's thank you to donor family

Published Date:
07 October 2008
By Mark Payne

A YOUNGSTER is set to pen a heartfelt letter of thanks to the family of an organ donor whose kidney changed her life.

Eight-year-old Alice Skinner, who was born without any kidneys, is loving life since getting the vital organ in a five-hour operation six months ago.

She is now allowed to make contact with the donor's family, and plans to write a letter with her 38-year-old mum Nicola Andrews.

In it she will tell how her new kidney means she can swim, ride a bike, do gymnastics and eat her favourite foods.

Dad George Skinner, 39, said: "Alice is doing really well at the moment. It has been six months since her operation so this is the time she can write to the donor family.

"In the next week she is going to compose a letter with her mam and write explaining what a difference it has made to her life and all the benefits."

The operation means Alice can learn to ride a bike and swim – something she was unable to do previously when she was going to hospital three times a week for dialysis treatment.

She also enjoyed her first football match when George took her to see Hartlepool United last Friday night.

Alice, who attends Clavering Primary School, still has regular hospital checks in Hartlepool and Newcastle every two weeks to make sure the kidney is working as it should.

But George, a salesman, of Templeton Close, in the Clavering area of Hartlepool, added: "From going three times a week all her life to twice a month it has made a real difference.

"Alice has to be really careful about getting any knocks because of where the kidney is in her body but she knows her own limitations. She has a busier life than me with her dancing, brownies and swimming lessons.

"She has just learned to ride a bike and it is a nightmare trying to keep up with her."

Alice received her new kidney on April 4 at Newcastle Royal Victoria Infirmary after a four-year wait to find a suitable donor. The family hope to take her abroad for the first time when they celebrate her first anniversary next year.

http://www.hartlepoolmail.co.uk/news/Kidney-op-girl39s-thank-you.4564526.jp
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #61 on: October 07, 2008, 10:36:00 AM »

  :flower; :cheer:  GO ALICE GO   :cheer: :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
george
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« Reply #62 on: April 11, 2009, 08:16:03 AM »

Hi all sorry for being away for a while, as you all will understand now alice is free from dialyis it,s  hard to get anything done as she now has a busier social life than both her parents, also alice has had a few problems since october, nothing to do with her transplant thankfully. alice was suffering headaches last summer and her consultants sent her for a couple of scans, these produced a few problems, mainly that they found a build up of fluid on alice,s brain and a major blockage in her spine, the only remedy was another operation, which was a foramen magnum decompression, the condition was called type 1 chiari malformation which alice underwent a 4hr operation on april the 3rd 2009 and came home last nite a bit bruised and sore, but thankfully home, will write again soon yours george, it was strange that alice was back in surgery exactly a year to her transplant.
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monrein
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Might as well smile

« Reply #63 on: April 11, 2009, 08:18:37 AM »

Wishing Alice a speedy recovery so she can get back to being a social butterfly.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #64 on: April 11, 2009, 08:31:52 AM »

 :grouphug; Hope and pray that Alice recovers quickly.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #65 on: April 11, 2009, 10:22:19 AM »

Prayers for Alice  :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
george
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« Reply #66 on: April 11, 2009, 12:30:23 PM »

with all the kind words i,m sure she will soon be back on her feet and running rings around us oldies, the updated picture is alice,s skool pic from last week which everybody thought she had matured into a proper little girl in the last year     :basket:





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paddbear0000
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« Reply #67 on: April 13, 2009, 10:24:30 PM »

I'm so happy to hear how Alice has been doing! I'm sorry she had that bump in the road, but she's young and will bounce back ten-fold. Her school picture is gorgeous and she is turning in to a beautiful young lady!  :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Wattle
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« Reply #68 on: April 14, 2009, 12:23:50 AM »


 :cuddle;  Hugs to you and Alice George. I hope she is up and running around in no time.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Going through life tied to a chair!

« Reply #69 on: April 14, 2009, 12:47:47 AM »

Prayers to all of you and hope Alice heals up real fast.


                                            :grouphug;
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george
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« Reply #70 on: August 07, 2009, 03:27:07 AM »

http://www.hartlepoolmail.co.uk/news/It39s-a-gold-and-silver.5529271.jp
thought i would put this link in for everybody, alice has just come back from the british transplant games,
hope this finds every one well,
cheers George
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monrein
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Might as well smile

« Reply #71 on: August 07, 2009, 03:35:05 AM »

Thanks so much for the update George.  I often think about your family and it is such good news to hear that Alice is thriving.    :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #72 on: August 07, 2009, 04:31:46 AM »

That is just gorgeous! How awesome!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paddbear0000
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« Reply #73 on: August 07, 2009, 06:15:16 AM »

Thank you for the update George. Alice looks wonderful and the article was great! It warmed my heart to read it.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #74 on: August 13, 2009, 12:40:28 AM »

 :cheer: Go Alice Go!! :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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