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Author Topic: I need a RANT  (Read 10757 times)
twirl
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« Reply #25 on: April 28, 2008, 02:30:03 PM »

I am sorry about Len being so sick. The animal part of your rant was great to read and I could picture it all in my mind, even your night gown.
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petey
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« Reply #26 on: April 28, 2008, 02:36:35 PM »

willieandwinnie -- Bless your heart!  What a night you had.  Our Len has just got to have some relief from these stomach issues.  He's been through so much, and now is the time when he should be kicking back enjoying that new kidney.  Please don't be mad at me -- but I had to laugh with your cat/mole story.  I, too, was getting a mental picture of you in your nightie chasing a cat, calming Willie and Winnie, and saving the life of that mole!  Tell Len it could be worse -- he could be a mole!  Seriously, though, Kathy, I'm thinking about you guys.  I wish there was something I could do to help.  It's times like these that I feel utterly useless!
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willieandwinnie
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« Reply #27 on: April 28, 2008, 03:53:15 PM »

petey, you are far from useless. It does me so much good to come on-line and see post from you.  :cuddle; Even if your making fun of my spelling. Len thinks that a lot of his stomach problems are from having his abdomen open for 4 1/2 years. Things kind of got to go where they wanted and then when the plastic surgeon did his magic of closing him up, Len had a real tight stomach. We had no idea that a little more then a year after being closed they would called him for his kidney. I don't think he was done healing from being closed up. Kind of too much too soon.I'm hoping that the sun comes out tomorrow and he wakes up feeling better. One day at a time, baby steps. I keep telling myself. I got him a new dentist appointment for next Monday and I'll just be extra careful about what I feed him. I've told the cat that if she goes out the doggie door tonight, I'm putting the cover in and she can stay out all night. She better hope we don't get thunderstorms (she scared shitless of them) and I bet she won't be going out back anytime soon. Damn cat.
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thegrammalady
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« Reply #28 on: April 28, 2008, 04:03:32 PM »

hopefully len will have a better night to night, the cat too.
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petey
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« Reply #29 on: April 28, 2008, 04:04:49 PM »

You know I love ya, willieandwinnie!   :grouphug;
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The Wife
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« Reply #30 on: April 28, 2008, 07:29:12 PM »

I don't even know what to say.  So, I'm just going to give you a big hug and hope you and Len have a better night tonight!

 :grouphug;
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monrein
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« Reply #31 on: April 28, 2008, 08:04:11 PM »

W&W  What a dreadful time and there's little worse than not enough sleep.  But if ever we all get together to collaborate on a situation comedy about a whole town full of ESRD patients and their families,  I'm telling you that cat, dogs and mole scene is definitely gonna be in the pilot.  We'll make them laugh then we'll get them hooked on our dramatic moments.  That should bring in some fresh donors don't you think.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
flip
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« Reply #32 on: April 28, 2008, 08:48:07 PM »

My cats stay in all the time and the bed does get crowded. I really feel like they think they are protecting me because it's worse when I'm feeling bad. I don't mind. It's nice having something warm and fluffy to curl up with.
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twirl
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« Reply #33 on: April 29, 2008, 04:59:19 AM »

W&W    oh please write more about your life with your pets... so funny..... hope Len is better...and do we have a picture of your cat,
            I'm thinking that mole was not a lot bigger than your furchildren... I don't mean to make little of Len's health...
           
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twirl
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« Reply #34 on: April 29, 2008, 05:02:12 AM »

My cats stay in all the time and the bed does get crowded. I really feel like they think they are protecting me because it's worse when I'm feeling bad. I don't mind. It's nice having something warm and fluffy to curl up with.

Flip   how many cats do you have, and what are their names, and a cheap idea I made up---- save your juice from water packed tuna and buy
       cheaper dry cat food and add a little juice to the cat food and the cat is none the wiser
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petey
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« Reply #35 on: April 29, 2008, 05:56:43 PM »

willieandwinnie -- how was Len today?  Any news from his labs?
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willieandwinnie
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« Reply #36 on: April 30, 2008, 01:45:56 PM »

Thank you all for the well wishes.  :grouphug;

Yes petey, FINALLY. The transplant doctor called this afternoon (scares me when the doctor calls) and they are taking Len off some medications. The 3 top doctors met this morning about Len and he's other health issues and Imuran seems to be the contributing factor to most of Len's side affects. Muscles aches, coughing, dry mouth, and tiredness and he also said that it will raise the PTH. So we are stopping that and have to go back in June and he said they might stop the Valcyte early because the CMV tests have all come back negative and it messes the stomach up. The muscle tests they ran shows that Len was dehydrated and needs to drink more. This Dr. Moore said that only 2 out of 1000 transplant receiptants are only on prograft and Len happens to be one of them. He's off of magnesium but they will check it again in June. He talked about changing Len's sleeping medication (ambien) but said he didn't want to make all these changes at once. Oh Lord. I have a hard time keeping up. He said that Len needs to give it a couple of days and he should start feeling better again. You don't know how happy that makes me.
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petey
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« Reply #37 on: April 30, 2008, 02:09:26 PM »

That's good news, willieandwinnie!  I'm glad she finally called and you and Len at least have a plan in place to make him feel better.  :yahoo;  Happy thoughts are coming your way because I'm sending them by the dozens!   :bandance;
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willieandwinnie
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« Reply #38 on: April 30, 2008, 02:13:06 PM »

Your a  :angel; petey.
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monrein
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« Reply #39 on: April 30, 2008, 02:36:06 PM »

Glad you have a plan to start with anyway.

How about we all go back to school, medical school of course, as a collective and get a multi-person medical degree.  Just to fully understand everything we're told and the changes and why immediately as we hear it.  I bet we'd be honour roll honourees.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MyssAnne
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« Reply #40 on: May 07, 2008, 08:21:02 AM »

I'm glad something is being done for Len!!!  Poor guy, I agree, it seems that it was just too much too soon.  I sure hope the changes
done produce good results. 

(I had to laugh at your story of your cat, too!!! Hilarious!!!)
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mysty
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« Reply #41 on: May 09, 2008, 04:17:34 AM »

How is Len doing after a few days of med changes?
Sorry I've been away for a bit.. the month of may with schools and such have had me running

Hugs.. and let us know
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David13
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« Reply #42 on: May 09, 2008, 03:04:01 PM »

Great news!  Your vigilance and love for your spouse are quite evident.  I think the two of you make a wonderful team!
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willieandwinnie
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« Reply #43 on: May 10, 2008, 04:32:13 AM »

:bow; Thanks for asking everyone. Len has had a couple of bad days with these strong antibiotics he has to take for dental work, they seem to be really doing a number on his stomach. He doesn't go back to the dentist until June so I am going to find out if he needs to take them for fillings?  We just take baby steps around here (I was hoping that at 8 months out, things would be getting a little easier). I have watched him go through so much in over 7 years that somedays it is hard. He is a hell of a strong guy and I'll be beside him no matter what.

monrein, Don't we all have medical degrees?

MyssAnne, He seems to be doing better in some ways and in other not so good. Does that make sense?

mysty, you've been pulling your hair out about Keith. Hope things have calmed down.

David, Thank you, I think we do make a very good team
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jbeany
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« Reply #44 on: May 10, 2008, 09:01:46 AM »

Hope those medicine changes help him!   :grouphug;
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MyssAnne
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« Reply #45 on: May 10, 2008, 09:14:45 AM »

It makes perfect sense!! I understand all too well what you mean!!

Man, I just hope it's uphill now, no more downhills for a while!!!
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Psim
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« Reply #46 on: May 10, 2008, 01:32:10 PM »

Hoping the med changes work wonders. Len deserves a break, and so do you!
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