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Author Topic: Medicaid problems  (Read 3583 times)
Adam_W
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Me with Baron von Fresenius

« on: April 15, 2008, 10:24:26 PM »

I received a letter in the mail today that said my Medicaid will be discontinued as of April 30th! WHAT?! It is because I "failed to complete personal interview to determine eligibility". I didn't know (or maybe I just didn't remember) that I have to do an annual interview to make sure I'm still eligible for Medicaid, and I had never received anything in the mail or by phone reminding me of it. I told my social worker, and she said that I need to get a hold of my Medicaid caseworker ASAP. She said it should be able to be straightened out, but I'm still really nervous. If I loose my Medicaid, I'm financially screwed because I can't afford private insurance, and my little bit of monthly Social Security pay would be eaten up by the 20% of my medical costs not covered by Medicare. Has anything like this ever happened to anyone else? I'm so nervous I'd rip my hair out if I had any.

Adam   
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
monrein
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Might as well smile

« Reply #1 on: April 16, 2008, 10:36:43 AM »

Hey Adam
I'm from Canada so I'm fuzzy on how your system works but is there any chance that your social worker will help you with this in an active way?  Like go to the meeting with you and the Medicaid caseworker,  or even let you call from her office to try to straighten it out?  I would also have her help to explain that sometimes dialysis makes us lose focus and things can easily slip between the cracks because we have so many appointments and pretty important things to manage in our lives.  I used to be a social worker and my job often required me to go to bat for people, not do everything for them but do some things with them and lend moral support as well as professional support with other bureaucratic types.  Hope this all gets straightened out and in a hurry so you don't have to pull out hair from anywhere.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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« Reply #2 on: April 16, 2008, 11:06:33 AM »

each state handles medicaid differently. with that said.... the second year i was on dialysis i got paperwork to fill out and return to determine continued eligibility. this year i just got a statement that said i still qualified. give your local medicaid office a call quickly.
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BigSky
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« Reply #3 on: April 16, 2008, 12:06:43 PM »

Evidently something slipped past the Medicaid Social Worker.

Wouldnt worry too much.  Depending on your state, you should still be eligable for it.  They can actually backdate your Medicaid coverage for 30 if needed.
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Ohio Buckeye
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« Reply #4 on: April 18, 2008, 03:23:45 PM »

It really irritates me that it is stressful enough to have ESRD and stress is added
on by this kind of things.
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If I must do this to live, I must strive to live
while I am doing this.
monrein
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Might as well smile

« Reply #5 on: April 18, 2008, 04:24:47 PM »

Amen! 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Adam_W
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Me with Baron von Fresenius

« Reply #6 on: April 18, 2008, 09:59:27 PM »

I've been still trying to contact my Medicaid caseworker, and now so is my social worker. I would just barge into her office and tell her what needs to be done, but it's almost impossible for me to get there during business hours. This kind of thing just really gets my blood boiling.

Adam
Logged

-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Loretta
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« Reply #7 on: April 18, 2008, 10:15:04 PM »

I just hate these kinds of problems.  I hope that with the week-end coming you can relax and just know it has to be just a little glich that you can work out,  Medicaid will continue to cover you.  They have to because of your ESRD. :grouphug;
Wishing you peace!
Loretta
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oleboy
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« Reply #8 on: April 19, 2008, 03:35:19 PM »

My Social worker told me Thursday 04/17/2008 she had mailed my form off, I had signed 2 weeks ago for Medicare showing I was now doing CCPD instead of Hemo, making me eligible for coverage immediately She had been on her honey moon? Still waiting to hear from Medicare.
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Chris
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« Reply #9 on: April 29, 2008, 11:01:27 PM »

I've been still trying to contact my Medicaid caseworker, and now so is my social worker. I would just barge into her office and tell her what needs to be done, but it's almost impossible for me to get there during business hours. This kind of thing just really gets my blood boiling.

Adam
It is also hard for me to ontact my caseworker and then there is a spend down caseworker also. Stupid why they have two people working on the same person and still can't get crap done. Here I have to fill out a form each year for elgibility, which is stupid since my health hasn't changed and blindness hasn't been cured yet. Wish they could do this electronically instead of an over copied piece of paper that you have to fill out each year. Anyway, if you can somehow is to go to the office and talk to whomever is at the front desk, who then will have you see someone or fill out paperwork there. Getting a hold of a caseworker is thehardest part and usually never happens and on top of that usually changes every one to two years without notice. Just don't rely on your social worker.
Good Luck
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Adam_W
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Posts: 1139


Me with Baron von Fresenius

« Reply #10 on: April 30, 2008, 09:32:29 AM »

Well, I finally got the packet of re-eligibility forms, so I'll be able to keep my Medicaid. It appears that my caseworker got all my messages, but she just sent out the packet, without bothering to call me and let me know it had been sent. Apparently I'm not the only one with this problem. According to my social worker, Indiana Medicaid pretty much does this to everyone.

Adam
Logged

-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
bolta72
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my best friend

« Reply #11 on: April 30, 2008, 03:13:50 PM »

 :clap;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Chris
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« Reply #12 on: April 30, 2008, 09:16:41 PM »

Glad you got some progress, unfortunately you still have to wai to be approved once the information is sent in and who knows how long that will take if she takes this long to do something.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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