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Author Topic: Hello from Austin, Texas  (Read 3399 times)
kidley
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Here we are at the vampire prom.

« on: April 06, 2008, 09:18:32 PM »

I'm on hemodialysis at a Fresenius facility in central Austin.  I started on February 20th with about 8% kidney function.  This bio may sound like a bad country song, but I am really a positive, funny person.  My grandfather died when my mother was 4 and she has a history of kidney infections, but I had never heard of any hereditary disease until my blood pressure got really high and I was diagnosed with polycystic kidney disease about 10 years ago.  Two years ago I had a serious infection and during my month long hospital stay, I got a fistula.  Since then my husband left, I had to retire early from my teaching job, my daughter finished UT and took a job in Houston, and I had to sell my house and move in with my parents to save money for medical expenses.  I live on their ranch about 90 miles from Austin.  Yes, there are dialysis centers closer, but they didn't have enough staff to take a new patient.  I love my doctor and all the techs at my center so I drive an hour and a half each way 3 times a week.  Things are going pretty well except for the time I went to the UPS story after my treatment and passed out on the counter.  They called EMS and everything, but it was just low blood pressure and the 90 degree afternoon heat.  How embarrassing!  The worst part of all this for me is the confinement.  I was a high school drama teacher and debate coach.  I too students to tournaments from Harvard to Stanford and worked 90 hours a week sometimes until I just got sooooo tired all the time.  But it does give me the time to read books and watch DVDs like a fiend!  I am on a transplant list because I don't want a live donor.  If I had little kids at home I might have taken a kidney from a stranger on the street (with our without permission)  But now I just don't want to worry about someone going through a really nasty surgery and being left with only one kidney.  Besides, my faith in God tells me that all things work for the good...eventually.
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monrein
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Might as well smile

« Reply #1 on: April 06, 2008, 09:43:09 PM »

Hi Kidley.  I'm new here too and will be starting dialysis again soon.  I'm so sorry to hear your story and it does sound like a bad country song but I completely know what you mean about being funny and positive even though the plain facts of what you've been through might make that seem impossible.  Welcome here and I hope we'll all weather these storms together.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: April 06, 2008, 11:18:26 PM »

 ;musicalnote; ;musicalnote; It sounds like a GOOD country song ;musicalnote; ;musicalnote; lots of emotion and drama and pain - what every country song needs!
I am glad you joined us, there are lots of other folks here that will give you support and good info.
Welcome!


okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mysty
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I'm here.. for us.

« Reply #3 on: April 07, 2008, 03:03:27 AM »

 :welcomesign;

Oh not all country songs are bad!..

Some just have a little more flavoring..and from what I can see..
being positive and having a sense of humor gets one thru the day.

 :mysty:
mysty
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Love does not come by finding the perfect person, but by learning to see an imperfect person perfectly.
twirl
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« Reply #4 on: April 07, 2008, 03:19:25 AM »

OMG you could be my sister   I am in Conroe or really the Woodlands  I have PKD and I had to give up my teaching job where I taught
junior high and taught twirling classes, my husband teaches at a rival junior high and that was so much fun
but here is where the country music starts, my son is taking a football scholarship to A&M , we are Texas fans....my two daughters have PKD and Allen might but we are not sure...he is the Aggie
( only joking about the country music part), I have real problems with this disease and it is depressing and I feel like crap
you live in a beautiful place and I'd like it if my parents were still here
it is 5:12 am here , oh and in Austin too,I need to leave in the next 3 minutes to go to dialysis and I so do not want to go.
I would throw a temper tantrum but no one is up to see it........
play trivia and guilty or innocent ----it is fun
and look up two websites Boxman posted------both will give you a laugh
our son is a Bubba /and the red neck on dialysis is fun....add something to it             so long, off to needle hell    twirl
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petey
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« Reply #5 on: April 07, 2008, 03:58:45 AM »

Welcome to IHD !  My husband Marvin (he's the patient) and I always try to stay positive about this dialysis stuff he's dealing with (13 years now -- he's home hemo), too.  We, too, believe that God will work things out for us in the long run if we just hang on, wait, and keep a happy spirit.  This is a great place to come for info, help, support, encouragement, and friendship.  There are some really terrific people on this site!  I'm glad you're here with us now.
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boxman55
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« Reply #6 on: April 07, 2008, 03:59:03 AM »

Welcome to IHD. Keep your spirits up and if you need to rant this is your place to do it...

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Sluff
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« Reply #7 on: April 07, 2008, 04:24:40 AM »

Welcome to ihatedialysis.com kidley,

Great introduction, I'm glad you found us, it's great to have you here. There is a lot of information contained here at IHD. That's what makes this site so great, the many combined years of experience just can not be found anywhere else. So read all you can and post often. Ask questions  if you need to.

Sluff/Admin
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willieandwinnie
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« Reply #8 on: April 07, 2008, 05:12:50 AM »

:welcomesign; kidley. Great introduction and so glad you found us. Sit back and read some of the older posts, they have great information in them. We are a wonderful group of folks and you'll feel like family before you know it. Keep posting.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MyssAnne
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« Reply #9 on: April 07, 2008, 05:30:29 AM »

Welcome, Kidley!!!!   :mysty: :mysty:

You're right, it sounds like a country song! We should ask someone to do that for us....Martina, perhaps?  Alan Jackson? Oh my
gosh. I am sooo in love with him and that smile!!!

OOOO!!! I know!!! Who's the group that does the emo country songs? The guy with the high voice? Cute, and chubby? 
Darn, my memory is bad today. No alcohol excuse either!!!
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kidney4traci
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« Reply #10 on: April 07, 2008, 05:38:33 AM »

 :mysty: :welcomesign; From Houston!  If you travel down to meet your daughter give me a holler!!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
rose1999
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« Reply #11 on: April 07, 2008, 11:32:18 AM »

 :welcomesign; this is a great site, glad you found it. :bunny:
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NolaGail
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« Reply #12 on: April 07, 2008, 11:46:19 AM »

 :welcomesign; Kidley--

Our country songs could be different verses to the same song.  My husband of 24 years has emotionally left already, and we are in the process of making it official.  Oh, well.

Glad you found IHD.  I haven't been here long, but I have learned so much already and the people are so great and supportive.

NolaGail
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In His no-slip grip!

Living donor has one more test to go (4-14-2008).  Her left kidney could be mine in a few months.  No surgery date yet.
Ohio Buckeye
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« Reply #13 on: April 07, 2008, 11:54:33 AM »

 :welcomesign; kidley to the IHD Family!
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If I must do this to live, I must strive to live
while I am doing this.
Laurie
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May 13, 2008

« Reply #14 on: April 07, 2008, 01:55:22 PM »

 :welcomesign; I'm also from Texas. Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
kellyt
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« Reply #15 on: April 07, 2008, 03:18:35 PM »

 :waving;  Kidley!  I'm in San Antonio.  If you ever want to meet up I'd love it!  My husband and I are self-employed, so I could meet you pretty much any day.  I've been trying to get a Texas group together for a while, so anyone near can meet us as well!  We can meet in San Marcos.  Lunch would be wonderful!  I'm 40-years-old and predialysis, but on the list and testing donors.    :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Lori1851
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This is me Lori , Dustin's mom

« Reply #16 on: April 07, 2008, 04:29:09 PM »

Hello Glad you found this forum!!!
Lori/Indiana
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Ang
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« Reply #17 on: April 07, 2008, 06:12:08 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
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« Reply #18 on: April 08, 2008, 04:19:00 AM »

 :welcomesign;    We're all about country songs here!  :)
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #19 on: April 08, 2008, 07:19:22 AM »

Country songs with a little tropical flavour!

Welcome to our community!  That was a great intro.  We are glad  you have decided to join our family.  That is what this site really is.  Hang around a little and you will see it is not just hype.  This is a caring and sharing community.  So please read, read, read, and post, post, post.  Looking forward to hearing much more from you.  Hope you get to meet up with some of the IHD family.  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kitkatz
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« Reply #20 on: April 17, 2008, 07:07:10 PM »

I am sorry it has taken me so long to welcome you. SO welcome!
Come on in and st a spell. Join a discussion or two or three.
Or go to the off-topic area and forget about ESRD and dialysis for a bit.



kitkatz,moderator

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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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