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scout70
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HI!
« on: April 04, 2008, 02:14:30 PM »
 HI! I am a 37 year old mother of two from northern CA. I was a tech at a dialysis center until June of last year when i had to go out on disability. Kidney disease does not run in my family and we have no idea why I have it. "It' being IgA nephropathy. Looking back now there were signs of my kidney failure, but they were not recognized until Feb of last year. My blood pressure was HIGH, so i went to a new doctor, who started running some tests. As soon as my labs came back i knew I was screwed. I was immediately referred to a nephrologist, who had a biopsy done and wah lah... my life was forever changed. We hoped that we could hold off on dialysis for a while with diet etc, but it soon became apparent that that wasnt going to work out. In August I had a PD cath placed and by September 2007 I was doing manual exchanges. After a month of manual exchanges i went on the machine, four days after I started that I sprung a major leak around my cath incision. The surgeon decided we had used to cath to soon and filled to much and it caused the tunnel not to heal. His suggestion was to give it a month to heal. So we did. I still have residual kidney function, around 15%, so we kept our fingers crossed that I could make it through a month with no dialysis. I was terrified of having a cath placed for hemo. I made it and went back on the cycler, so far so good! We even went a trip to Maui in Feb and everything went perfect. I feel pretty good. The usual complaints...Im tired all the time, and Im struggling with my blood pressure. But all in all things are pretty good.
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kimcanada
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« Reply #1 on: April 04, 2008, 02:35:02 PM »
 :welcomesign; I look forward to reading your posts :)
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petey
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« Reply #2 on: April 04, 2008, 02:38:18 PM »
Hi and   :welcomesign;  to IHD and our "family" here.  My Marvin has IGA, too, so we know what you're dealing with.  Looking forward to reading lots from you.
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Romona
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« Reply #3 on: April 04, 2008, 04:40:02 PM »
 :welcomesign;
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flip
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« Reply #4 on: April 04, 2008, 05:01:35 PM »
Welcome, Scout. Your name looks familiar so I probably know you from another forum.   :welcomesign;
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That which does not kill me only makes me stronger - Neitzsche
boxman55
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« Reply #5 on: April 04, 2008, 05:12:44 PM »
Welcome to IHD. Hope things are going OK for you. Look forward to your insight...

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Rerun
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Going through life tied to a chair!
« Reply #6 on: April 04, 2008, 05:54:21 PM »
Interesting......a dialysis tech with kidney failure.  Yeah, I bet you knew you were screwed.  That is the problem with me going back on dialysis.  I knew what I was in for.  If you don't know they can fool you for a while.

Glad things are going well so far.

Welcome to IHD.  It is a great site.
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rookiegirl
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« Reply #7 on: April 04, 2008, 06:41:09 PM »
Scout70  :welcomesign; to IHD.  I was also diagnosis with IGA Nephropathy.  Look forward to your posts.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
willieandwinnie
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« Reply #8 on: April 05, 2008, 04:42:11 AM »
scout  :welcomesign; Glad you found us and I look forward to reading your posts. I bet you have some stories to tell. Hope things are going better for you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Razman
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« Reply #9 on: April 05, 2008, 04:23:47 PM »
I'm glad that you joined the family and shared your story.  Please stay in touch .   :welcomesign;
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Bajanne
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« Reply #10 on: April 05, 2008, 04:28:26 PM »
Welcome to our community!  Wow!  You know this renal challenge from both sides of the reclining chair!  You have so much to offer to us, and hopefully we have something to offer to you too - a really caring, sharing and supporting family.  So please, feel free to post as much as you like.  Let us know what it was like as a tech.  We are so glad to have you sharing here with us.   :grouphug;


Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
annabanana
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« Reply #11 on: April 05, 2008, 05:13:31 PM »
 :welcomesign; :welcomesign; :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
scout70
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« Reply #12 on: April 06, 2008, 02:07:41 PM »
 :thx; Thank you for the warm welcome!
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MyssAnne
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« Reply #13 on: April 06, 2008, 02:36:00 PM »
Welcome, Scout!!!  You'll have fun, here, as well as gain (and give!) informtion about any
questions you may have!

 :welcomesign; :welcomesign;
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Ohio Buckeye
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« Reply #14 on: April 07, 2008, 11:59:56 AM »
 :welcomesign; Scout 70 to the IHD Family!
I can relate to being tired all the time.
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Lori1851
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This is me Lori , Dustin's mom
« Reply #15 on: April 07, 2008, 04:34:09 PM »
 :welcomesign;,
Glad to have you here! ;)
Lori/Indiana
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Ang
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« Reply #16 on: April 07, 2008, 06:10:19 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Psim
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« Reply #17 on: April 08, 2008, 09:10:57 AM »
 :welcomesign;
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Slywalker
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« Reply #18 on: April 08, 2008, 04:19:55 PM »
 :welcomesign;  aboard Scout. 

Sandyb

 :bunny: :bunny: :bunny:
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oleboy
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« Reply #19 on: April 08, 2008, 04:58:47 PM »
 :welcomesign;
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kitkatz
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« Reply #20 on: May 04, 2008, 08:37:23 PM »
Welcome to IHD. com.  There is an entire section devoted to PD.  Come on in and sit a spell. Read some posts and get into the community.  We have of lot of dialysis experience hereon IHD.com




kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #21 on: May 06, 2008, 03:41:33 PM »
 :welcomesign;

You're not the only one on PD. I go to cycler training tomorrow!

Mikey
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
twirl
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« Reply #22 on: May 06, 2008, 05:22:10 PM »
 :yahoo; hello
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