Lori1851
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Posts: 363
This is me Lori , Dustin's mom
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« on: March 29, 2008, 06:11:56 PM » |
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Hello friends,
As of Wednesday Dustin was admitted to the hospital in ICU. He had gotten up to take some headache meds and yelled out to his girlfriend. By the time Jasmine had gotten into the bathroom Dustin was drooling, eyes crossed and started having a seizure. Gary (Dustin's dad and my hubby) had just gotten home from going to see the surgeon. Gary called 911 and it took 4 grown men to get Dustin on a stretcher cause he became very combative. They took him to our local hospital and sent him on to Indianapolis Community East. Dustin had a seizure Wed evening while eating supper, talk about a horrible experience. I was talkin to him and his hand started shakin he said "Mom Im havin a seizure. Oh it was terrible I ran out and had all the ICU nurses in their. They sedated him with Adavan. I never ever want to see that again the sound was horrid he made. Once he came around he cried and cried. He thought he was dying. They are not sure what caused the seizures I myself am not a DR but beleive his blood pressure was like 212/100 and something. I kid you not, his dialysis tech came to see him and said its been high like that for months. Me being the persistent mom I am talked to his kidney Dr about how I really think this is what caused his migranes that might have triggered a seizure. This is not the worst of it. Thursday his potassium was really high and they gave him something to drink Dustin had non stop vomiting to where he was throwing up blood. He had to have a scope put down his stomach where we learned he has Acute ulcers in the esophagus and alil in the top of the stomach along with a heinal hernia (sorry for the mis spelled word.).
They started Dustin on a seizure med by IV Wed evening and praise God he has not had any more.
I am totally exhausted. I was just glad Jasmine was here when Dustin had the seizure otherwise he would have laid on the bathroom floor until Gary got home.
We came home for the 1st time tonight since Dusitn is in a regular room and we will be back in the am.
Sorry so long but I wanted you all to know. Keep us in your prayers please. Oh and thank God this week I am off for spring break from school.
Lori/Indiana
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okarol
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« Reply #1 on: March 29, 2008, 07:04:04 PM » |
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 Lori, Sending prayers and hugs for you and Justin. I hope he feels better soon, poor guy.
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charee
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« Reply #2 on: March 29, 2008, 07:14:46 PM » |
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to you Lori, hope Dustin keeps improving
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
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boxman55
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« Reply #3 on: March 29, 2008, 07:16:32 PM » |
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Wishing Dustin a speedy recovery my thoughts and prayers go out to him and your family and Jasmine...Boxman
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« Last Edit: March 30, 2008, 06:12:55 AM by boxman55 »
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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petey
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« Reply #4 on: March 29, 2008, 07:18:46 PM » |
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OMG, Lori, how terrifying that must have been for Dustin and for you, Gary, and Jasmine, too. My heart goes out to you, and my prayers will go up for you and Dustin. Stay strong for him, and take care of yourself, too. |
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KT0930
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« Reply #5 on: March 29, 2008, 08:25:13 PM » |
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Prayers for all of you. I hope he's doing better, and you are able to get some rest (I know, that's not gonna happen!). Take care!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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Romona
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« Reply #6 on: March 29, 2008, 08:50:39 PM » |
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Get well soon Dustin.
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rose1999
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« Reply #7 on: March 30, 2008, 12:12:37 AM » |
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for all of you, thinking of you and wishing Dustin a good recovery. And may it never happen again. |
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Ang
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« Reply #8 on: March 30, 2008, 12:43:50 AM » |
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hope dustin gets better real soon.  |
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live life to the full and you won't die wondering
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2_DallasCowboys
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« Reply #9 on: March 30, 2008, 05:18:50 AM » |
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Hi,
I can only imagine how scary this whole thing
has been for all of you.
Sending prayers that Dustin will be fine from here
on in!
Anne
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willieandwinnie
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« Reply #10 on: March 30, 2008, 05:37:26 AM » |
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Lori, I am so sorry that Dustin is having so many problems. I'll keep you all in my thoughts and prayers  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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annabanana
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« Reply #11 on: March 30, 2008, 06:02:27 AM » |
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Lori, I know how terrifying it is to watch your child have a seizure. I took care of my epileptic daughter for two years before she got on good meds. I never got used to it, even after two years. The sound is haunting.
It's very normal for him to be extremely emotional when coming out of a seizure.
My thoughts are with you and your family.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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kimcanada
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« Reply #12 on: March 30, 2008, 06:12:10 AM » |
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Oh I am so sorry to hear out your son.. Prayers for you and your family |
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mysty
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I'm here.. for us.
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« Reply #13 on: March 30, 2008, 06:42:06 AM » |
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Lori..my thoughts and prayers are with you and your family. |
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Love does not come by finding the perfect person, but by learning to see an imperfect person perfectly.
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lola
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« Reply #14 on: March 30, 2008, 07:40:57 AM » |
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OMG Lori I send many and prayers to you guys Edited: Fixed hug icom - okarol/admin |
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« Last Edit: March 30, 2008, 10:08:13 AM by okarol »
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del
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« Reply #15 on: March 30, 2008, 01:00:41 PM » |
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So sorry that Dustin is in the hospita hope he feels better soon.
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Don't take your organs to heaven. Heaven knows we need them here.
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paddbear0000
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« Reply #16 on: March 30, 2008, 01:16:47 PM » |
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Lori, I'm so sorry Dustin had to go through this. Please give him a hug for me. |
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jbeany
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« Reply #17 on: March 30, 2008, 01:48:11 PM » |
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Hope you get some answers soon.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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angela515
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« Reply #18 on: March 30, 2008, 03:30:30 PM » |
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I wish him a speedy recovery. Sounds like his blood pressure to me. I have seizures caused from HBP, they call them "Seizures induced by HBP" because that's the only time I have them. |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Mimi
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« Reply #19 on: March 30, 2008, 03:46:43 PM » |
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Sorry to hear all of this. Angela is right HBP will cause some people to have seizures.
Pray they get things under control soon.
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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skyedogrocks
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Rob showing off his pot of gold!
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« Reply #20 on: March 31, 2008, 05:32:30 AM » |
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I'm so sorry to hear about Dustin. I'm praying for a speedy recovery and getting him back home. |
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
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Deanne
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« Reply #21 on: March 31, 2008, 08:04:13 AM » |
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Hugs and best wishes for all of you! What a terrifying experience!
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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NolaGail
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« Reply #22 on: March 31, 2008, 01:12:47 PM » |
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Hope things improve for all you soon! Wishing very speedy recovery for Dustin. NolaGail |
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In His no-slip grip!
Living donor has one more test to go (4-14-2008). Her left kidney could be mine in a few months. No surgery date yet.
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twirl
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« Reply #23 on: March 31, 2008, 01:17:54 PM » |
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so sorry
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Lori1851
Full Member
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Posts: 363
This is me Lori , Dustin's mom
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« Reply #24 on: April 01, 2008, 06:04:01 AM » |
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Hello Friends,
Thank you all for replying. Dustin has a good chance of getting to come home today!!!! Yippee!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! The blood pressure is finally down! Sad to think it had to go on for this long before the situation was actually taken care of!!!!! Dustin seems to be resting better. Actually all he does is sleep right now. I talked to him on the phone this am and he said he prayed last night. Can't tell you the last time he did that. I think this may have been a wake up call for him to really take better care of himself too.
Thanks again to all of you!!!! I love you all!!!!!!!!!!!
Lori/Indiana
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