I Hate Delivery Day!

[Hephs-little-lady]

Does anyone else hate delivery day?    It's the day our bedroom is turned into a warehouse, the day I can't go anywhere in the flat without seeing dialysis supplies. The day it's hard to forget that the person I love most in all the world has to plug himself in to keep him alive. As the days pass it becomes easier to hide everything and you can have a few hours here and there where you can "forget".  As for today, it's delivery day and it always gets me a bit down. We seem to have more and more boxes each time, it feels like Baxter's is taking over our bedroom, maybe I'll suggest to Baxter's that they offer alternate designed boxes, ones that would blend in and not scream "medical supplies"  A nice marble effect perhaps!

Hephs having a bad day too and that doesn't help. He's really tired and drained today, couldn't even manage to walk over to the doctors surgery, two minutes away. That upsets me too.

 

Aaagh! 

[willieandwinnie]

Hephs-little-lady

Boy do I know what your feeling.  Tomorrow is my husband's hemo supply delivery, and also a dialysis day. They called to say that the delivery will be between 10 and 2.  Right in the middle of treatment. 2 barking dogs and a living room piled with boxes upon boxes. Somehow I make our little house shallow it up so not every room looks like a warehouse.

I hope Hephs and your day is improving. 

willieandwinnie

[Hephs-little-lady]

Hi willieandwinnie,

It's comforting to know someone out there understands. I've tried to talk to a couple of friends about it and they tell me I should be grateful, it's the stuff in those boxes that is keeping your husband alive, I think, "No really, if you hadn't told me that I never would have known!" I'm not ungrateful, I'm more grateful than anyone could ever know that there is a treatment available. I don't have to like that it takes over everything.

We have a small place too, and you become very creative trying to hide supplies.

 ???Why do they always want to deliver at the most inconvenient times  Our Baxter man now has a key and just lets himself in, we don't even have to make arrangements, they bring the key everytime!

H-L-L

p.s thank you, our day did get better

[willieandwinnie]

H-L-L,

I can't seem to get anyone to understand the amount of stuff we get delivered.  Lord, there's Bicarb, 1K, vinegar, bleach, saline, dialyzers, tubing, sharps containers, wipes, needles, syringes, heparin and a pile of small stuff, but still has to be put away.  It's not unusual around here to have a couple of treatments worth of stuff piled in the small bedroom we use for treatments. I have stuff in places that I didn't even know we had places . Then, there are all those cardboard boxes  that you have to make disappear. I'm usually really tried the night of delivery, because it is always a dailysis day and that's the only day when they deliver.

I couldn't just let the delivery guy in . It's always someone different, have to tell them where to put stuff, and our dogs would end up running to God knows where .

have a good evening

willieandwinnie

[Rerun]

I remember!!!  20 years ago we lived 2.5 hours from a major medical facility and so we had to keep a 3 month supply.  We had these HUGE blue barrels delivered.  Saline bags and on and on.  My machine was in my kitchen and the ugly chair in my living room.  My house was a hospital.  I hated it!  BUT, it was good to be home and on my own schedule.  But, I'd rather go to dialysis and leave the mess.

[goofynina]

I hate delivery day too but not as much as my hubby, lol,   I still havent gotten my stuffed organized the way i want it so i always have the delivery guy stack the boxes in the middle of the living room,  why you ask?  cuz he puts them in front of the big screen and Big Daddy loves to come home and watch his big screen, so, in order for him to watch his big screen, he has to take all the boxes to the room. (again, not so goofy am i?)  lol   I know they say that the Baxter delivery guys will take them to the room for me and set them and rotate them,   i am just finding it hard to tell them what to do.  Does everyone else that get deliveries feel the same way or do you tell them how and where to put your boxes. 

[ginger cookie]

You are one smart chick. I think I'm going to have you come over to  my house for a month or so and train my beloved hubby!

I hate delivery day too but not as much as my hubby, lol,   I still havent gotten my stuffed organized the way i want it so i always have the delivery guy stack the boxes in the middle of the living room,  why you ask?  cuz he puts them in front of the big screen and Big Daddy loves to come home and watch his big screen, so, in order for him to watch his big screen, he has to take all the boxes to the room. (again, not so goofy am i?)  lol   I know they say that the Baxter delivery guys will take them to the room for me and set them and rotate them,   i am just finding it hard to tell them what to do.  Does everyone else that get deliveries feel the same way or do you tell them how and where to put your boxes. 

[Hephs-little-lady]

We don't have to do anything, he can let himself in with the key and it tells him on his delivery note where to stack the boxes so he can just get on with it. Which is good because it just gets me down, so I don't even have to see him! 

[jdat]

During the year or so that I was on Capd I barely ever saw the delivery guy. He used to come by around 10 or so and I would usually be asleep around then 

I live in an apartment building and I was lucky to have a very big hallway in front of the entrance. Everything would get stacked there.
With time I came to consider putting a sheet over it ( never did it )as I would regurlaly get questions or shocking looks from people when they came to the house be they friends, or delivery people like fedex etc ( one of them thought I was in the computer business when he saw all the boxes  ).

Later in the day I would start sorting and getting out the caps, and cleaning products etc and put them in my little room where I would put these kinds of supplies but all the lines and the bags stayed out in the hallway at all times apart from when I came to grab one.

[angieskidney]

When I was on CAPD and then CCPD I would get deliveries every month but it wasn't so bad for me. My delivery man, Steve, was so very nice to talk to and would ask me how I was doing. I had to get a 2-bedroom apartment just to fit it and thankfully I was approved for subsidized-housing and got in in time. It was my apartment manager that made it difficult on me. Her name is Snjezana and she would go on about how that many boxes could encourage cockroaches and that she didn't like it. Here was the only way for me to stay alive and she made me feel guilty about the boxes. She would constantly say "did you break down any of those boxes and take them outside? Did you get anyone to do it for you? Did you ask disability to send you someone to do that for you?" The boxes are heavy duty to hold the 2-5L bags (10L bag capacity boxes) and since they weren't like normal boxes I had a hard time breaking them down. My apartment manager was a liar and a manipulator which made it worse. She tried saying that she asked my medical supplies delivery driver if he would break them down and that he said he would even though he never said that and he was never asked that. When I confronter her she would say he did ask him but when I asked him he said even if he was asked that he could NOT because he had other deliveries to do as well. I had to get a friend of mine to come by and break down the boxes. Still he couldn't come every week so for the 3 years I have lived here she has given me a hard time.

Sad to say .. it was a blessing in disguise that I ended up with Peritonitis and now do Hemo in clinic.

[kitkatz]

Some people just suck!  Your apartment manager is one of them!

[goofynina]

If i had a name like that i would do what i can to make other people miserable too,  lol, cant help but to feel sorry for her, man, what she must've went through as a kid

[Bajanne]

If i had a name like that i would do what i can to make other people miserable too,  lol, cant help but to feel sorry for her, man, what she must've went through as a kid

 

[Panda_9]

If you were on home hemo I would ask her to come in and sit with you while you do your entire treatment. Tell her shes not aloud to get out of the chair unless she stays within a 1m radius, and has to keep her left arm straight at all times, while juggling lunch with the other hand. If you start to feel unwell, whack her on the head with a bottle of dialysate so she knows roughly how you feel. Maybe then she might not be such a bitch 

[angieskidney]

If i had a name like that i would do what i can to make other people miserable too,  lol, cant help but to feel sorry for her, man, what she must've went through as a kid

Oddly enough her name means Sunshine in Serbian I guess.. 

If you were on home hemo I would ask her to come in and sit with you while you do your entire treatment. Tell her shes not aloud to get out of the chair unless she stays within a 1m radius, and has to keep her left arm straight at all times, while juggling lunch with the other hand. If you start to feel unwell, whack her on the head with a bottle of dialysate so she knows roughly how you feel. Maybe then she might not be such a bitch 

Ya .. I would love her to see what I go through but anytime I try to explain any little thing she says, "ack no!!!" and says she doesn't want to hear anything that will make her queasy! Yet she goes to other people and makes up lies about me telling my cab driver that he does NOT need to pull right up to the curb for me because as she said, "She is not sick! Only on dialysis!! Not like she is in a wheelchair!!" and yet to my face she says, "You need to get help for yourself around your apartment. The vacuum alone must be too heavy for you to lift!" (Meanwhile I don't have stairs. Why would I need to lift it?)

[mmmmdeedee]

My delivery guy, although I've only had a few deliveries, does stack them how/where I want them. We have an extra bedroom so that helps.

I work for Baxter and I told him so so I'm not sure if that gives me a leg up or not! :-)

But they are getting paid for this I figure so why not have them do it for you. I also figure that some people who live alone and are really sick are not capable of moving these heavy boxes around on their own so they must understand that.

[angieskidney]

My delivery guy, although I've only had a few deliveries, does stack them how/where I want them. We have an extra bedroom so that helps.

I work for Baxter and I told him so so I'm not sure if that gives me a leg up or not! :-)

But they are getting paid for this I figure so why not have them do it for you. I also figure that some people who live alone and are really sick are not capable of moving these heavy boxes around on their own so they must understand that.

Ya this time around I had Fresenius instead of Baxter like in 1990 but the delivery guy (worked for Medex which Fresenius hired) would put them how I wanted them and where I wanted them because he knew it was hard for me. He even called to see how I was doing after I switched to hemo

[Panda_9]

We just get the delivery guy to put them in the garage, then we move them into the machine room whenever. Most of the time they stay out there and I take bits as I need them. At the moment its all in the room, so its pretty squashy. I get quite alot of stuff, including 40 bottles of dialysate, so I thought it would be easier for him to put it in the garage instead of traipsing all the way into the room.

[angieskidney]

ah lucky. I live in an apartment building .. so I had no choice. Had to get a 2-bedroom JUST for the supplies

[jdat]

We just get the delivery guy to put them in the garage, then we move them into the machine room whenever. Most of the time they stay out there and I take bits as I need them. At the moment its all in the room, so its pretty squashy. I get quite alot of stuff, including 40 bottles of dialysate, so I thought it would be easier for him to put it in the garage instead of traipsing all the way into the room.

My delivery guy had an electrical lifter that could go up stairs by itself! Talk about a blessing as there is no way I would have wanted to go up and down stairs on a daily basis when I was on PD, and anyhow there was nothing at ground level for storage ( don't have a garage ).

You should talk to your delivery guy and ask him if he minds bringing it where you really want it. I was lucky to have a very nice delivery organization who always took care of me wonderfully despite my forgetfullness ( oups delivery day is tomorrow?? sorry I forgot to fax you the order earlier! ... )

[angieskidney]

( oups delivery day is tomorrow?? sorry I forgot to fax you the order earlier! ... )

Ya I did that! They would call me up to remind me

[goofynina]

I think i hate the calling and ordering and the whole taking inventory thing more than the actual delivery...

[angieskidney]

I think i hate the calling and ordering and the whole taking inventory thing more than the actual delivery...

Me too!!

[goofynina]

I dont even know why we call, the one and only time i called she was like "ok you have this and this and this" and you should have this many of this"   i will send you more of these in your next shipment"   I barely got a word in edgewise.  So i just went with it and agreed to about anything she said and that was the end of that, lol,

[angieskidney]

I dont even know why we call, the one and only time i called she was like "ok you have this and this and this" and you should have this many of this"   i will send you more of these in your next shipment"   I barely got a word in edgewise.  So i just went with it and agreed to about anything she said and that was the end of that, lol,

Mine was changing toward the end as my ability to pee ended and I started needing to use a higher dose (2.5% instead of 1.5%).