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Author Topic: How did you come about this website?  (Read 12470 times)
hephziba
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« Reply #25 on: September 05, 2006, 11:26:05 AM »
No, but after the freedom me and my wife were experiencing just after we were married, dialysis was prison. I was just chained to this gurgling machine, and I hated every second of it, and it stole time from me and my wife .. >:(

feel better about everything now though. still hate dialysis ....
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God who comforts the downhearted comforted me again by your visit.
mallory
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« Reply #26 on: September 06, 2006, 11:29:11 AM »
I was desperately searching for information regarding ESRD on the internet and got to the Nephrology News website.  I signed up, and read the article about this website.  I came here, and now I don't go anywhere else, it's great!
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
deej
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« Reply #27 on: September 10, 2006, 02:30:11 PM »
After I was told I had ESRD, I was scared and wanted to find out more about it all in English.  My doctors were all speaking Portuguese to me, which I also speak, but when it came to something super serious, I wanted it in my native language, English!!!, I first found a site about the book The Lighter Side of Dialysis and linked from there.
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Life's journey is not to arrive at the grave
safely in a well preserved body, but rather
to skid in sideways, totally worn out, shouting
"...holy shit...what a ride!"
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« Reply #28 on: September 10, 2006, 02:37:15 PM »
I really don't remember how I ended up here .... but I do know I was on brumley for a little bit and I found that forum chaotic.
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angieskidney
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« Reply #29 on: September 10, 2006, 02:39:18 PM »
Ya brumley is one that I never stayed at because it was hard to follow..
« Last Edit: September 10, 2006, 02:41:22 PM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Epoman
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« Reply #30 on: September 10, 2006, 03:57:00 PM »
Quote from: angieskidney on September 10, 2006, 02:39:18 PM
Ya brumley is one that I never stayed at because it was hard to follow..

Yes, that was one of the biggest flaws with that site brumleys Dialysis Online! (besides the enormous about of spammers) it was very hard to follow. And it was one of the sites that inspired me to create this site.  :thumbup; I wanted a site that was very USER friendly.
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Fox_nc
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« Reply #31 on: September 13, 2006, 03:16:30 AM »
Angie told be about it in  D&T City.  She said she normally chats on this site ... but I see she may have lured in me in with a fib . . . I haven't seen anyone chat just yet  ;).  Then again ... I'm cruzing around at wierd times.  The forums are keeping me busy with research right now, which is wonderful .... So thanks Angie!

Also, thanks Epo!  I haven't been on-line with my issue  too much, just kinda kept it to myself, but now I'm slightly addicted to this site.  It's good to know we are not alone.   :thx;
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
angieskidney
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« Reply #32 on: September 13, 2006, 06:12:20 AM »
Quote from: Fox_nc on September 13, 2006, 03:16:30 AM
Angie told be about it in  D&T City.  She said she normally chats on this site ... but I see she may have lured in me in with a fib . . . I haven't seen anyone chat just yet  ;).  Then again ... I'm cruising around at weird times.  The forums are keeping me busy with research right now, which is wonderful .... So thanks Angie!

Also, thanks Epo!  I haven't been on-line with my issue  too much, just kinda kept it to myself, but now I'm slightly addicted to this site.  It's good to know we are not alone.   :thx;
I am glad you have found it a positive experience  :2thumbsup;

Hey Epoman, wasn't a post made in the calendar to advertise a day to all go into the chatroom?

Okay, I couldn't find one, so I made one (through the calendar) here.

Actually Fox_nc, it was actually Epoman who came to D&T City awhile ago who got me to come here ;) and as you can see by my post count .. ya I DO spend a great deal of time here  :-[ :P lol
« Last Edit: September 13, 2006, 06:15:36 AM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Oc
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« Reply #33 on: October 06, 2006, 02:58:16 PM »
I found the Davida site first, but didn't find the kind of open atmosphere I was looking for.  I probably used a search engine (heck, I can't remember), looking for "dialysis forum" or some such.

When I saw this forum listed, I figured I had found what I was looking for.  :)
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jbeany
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« Reply #34 on: October 12, 2006, 10:30:38 PM »
I linked from the sister site after googling NX stage earlier this evening.  Now I'm surfing thru everything - there's an awful lot of info in a mighty small space here!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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« Reply #35 on: October 13, 2006, 07:09:13 AM »
I was looking up information on the nxstage machine also. I was happy to be taking a machine home, but its kind of intimidating too. I needed to read some success stories.

-Jaybird :clap;
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Epoman
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« Reply #36 on: October 13, 2006, 12:40:15 PM »
Quote from: Oc on October 06, 2006, 02:58:16 PM
I found the Davida site first, but didn't find the kind of open atmosphere I was looking for.  I probably used a search engine (heck, I can't remember), looking for "dialysis forum" or some such.

When I saw this forum listed, I figured I had found what I was looking for.  :)

AWESOME, I love it  :thumbup;
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Epoman
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« Reply #37 on: October 13, 2006, 12:40:57 PM »
Quote from: Jaybird on October 13, 2006, 07:09:13 AM
I was looking up information on the nxstage machine also. I was happy to be taking a machine home, but its kind of intimidating too. I needed to read some success stories.

-Jaybird :clap;

Hell yeah at first it's very overwhelming but then it's a piece of cake.  :thumbup;
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Epoman
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« Reply #38 on: October 13, 2006, 12:42:47 PM »
Quote from: jbeany on October 12, 2006, 10:30:38 PM
I linked from the sister site after googling NX stage earlier this evening.  Now I'm surfing thru everything - there's an awful lot of info in a mighty small space here!

We try. :thumbup; In fact we have more posts by members than any other dialysis related site on the Internet, we are almost at 20,000 posts in just over 14 months.  :o

- Epoman
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #39 on: October 20, 2006, 12:56:56 AM »
Sorry, stuff up!
« Last Edit: October 20, 2006, 01:01:24 AM by tamara » Logged
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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« Reply #40 on: October 21, 2006, 04:48:05 PM »
I came across this site while searching for info on NxStage.  I should start training in December.
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okarol
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« Reply #41 on: May 24, 2007, 02:05:59 PM »
IHD sure has grown since this poll was taken. Maybe time for a new one?
 :bump;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #42 on: May 24, 2007, 09:14:45 PM »
i came across another message board thru google, one of the posters (have no idea who) had a link to this site in their signature. this is a much, much better site. and the only one i use now
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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« Reply #43 on: May 25, 2007, 02:31:27 AM »
Somebody mentioned it on one of my kidney mailing lists. It was solely mentioned, quite sadly, due to the death of Epoman, who I never had the pleasure of knowing.

So I thought I'd take a look at the forum, because I'd been searching for a kidney forum just like this for ages, and hadn't found one. At least none that were active.
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mark j
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« Reply #44 on: May 27, 2007, 06:59:02 PM »
I used to visit a web message board, but it usually turned into name calling and swearing.  I was looking for information cause I was just starting dialysis.  I joined up here back wen it was EpoMan, Life on Hold, and only a couple other members.  Its quite impressive where the site is now, and all the help its provided me.
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goofynina
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He is the love of my life......
« Reply #45 on: May 27, 2007, 07:02:00 PM »
Quote from: mark j on May 27, 2007, 06:59:02 PM
I used to visit a web message board, but it usually turned into name calling and swearing.  I was looking for information cause I was just starting dialysis.  I joined up here back wen it was EpoMan, Life on Hold, and only a couple other members.  Its quite impressive where the site is now, and all the help its provided me.


I am happy that your still with us Mark and i hope and pray that we continue to help all others with this disease as well.  so if you could please continue to spread the word about us  :2thumbsup;   Thank you  :cuddle;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
okarol
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« Reply #46 on: July 23, 2008, 01:01:34 PM »

another bump  :bump;

How did you find IHD? Take the poll above - post in the thread.

 :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #47 on: July 23, 2008, 02:36:13 PM »
I was mad and in a bad mood
I typed F+++ Dialysis
then decided to use better langauge
and typed I HATE DIALYSIS
I mainly read the funny merchandise
it took me some time to join
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Ang
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« Reply #48 on: July 23, 2008, 05:59:43 PM »
google  is  a  wonderful  implement :2thumbsup;
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live  life  to  the  full  and you won't  die  wondering
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« Reply #49 on: July 23, 2008, 06:33:33 PM »
I was told about this site from one of my  MySpace friends who joined this group. However, I do not see her post anything since her introduction.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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