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Author Topic: Email I received from a member. LIST THE THINGS YOU LOVE ABOUT DIALYSIS.  (Read 12539 times)
thegrammalady
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« Reply #25 on: March 26, 2007, 10:29:46 AM »

i just found this thread....two things my mother always said (besides "oh susan") that have driven me completely loony all my life are, "you can always find someone else worse off than you are" and "can't never did anything". the day i said that to one of my kids i was so shocked i shut up and walked out of the room. (yes, they know their mother is certifiable) However over the years i have learned that my mother is right. there isn't anything i can't do. there are however many things i don't want to do. If i want to become a brain surgeon, (which i don't) i can go back to school and do it. no reason why not. i have a disabled child. i'm very grateful i'm not the mother who's son's shortest seizure ever was 20 minutes long. 20 minutes was how long it took to get to a hospital to have it stopped medically. my youngest daughter doesn't quite understand me. she says i ignore the large pink elephant in the livingroom. i don't ignore him, as long as he behaves himself i'm willing to share my space. ok, what i like about dialysis..........

the government pays me not to work
i can take all the naps i want
i get to play with my grandchildren
i can make blankets for babies who have nothing
i have to watch what i eat, so i'm loosing more weight
i have time to read, the library and i are good friends.........i probably could keep going, but i'll spare you the gorey details :)
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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For You Are Crunchy And Taste Good With Ketchup
George Jung
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« Reply #26 on: March 26, 2007, 02:06:43 PM »

Well, I guess I am thankful for treatments being available (dialysis + transplant) , but I will never say ,I like, much less, love, anything about them.  Never.  I would give just about anything to be healthy again.  Not to say there aren't things I can find that are good about it, respectively speaking (you always have the power to find the good in the bad).
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kitkatz
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« Reply #27 on: March 26, 2007, 09:23:42 PM »

The health issues in my house have brought hubby and I closer together.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angela515
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i am awesome.

« Reply #28 on: March 27, 2007, 09:54:15 AM »

I know I am not "healthy" but with transplant, I feel like a normal healthy person. So therefore, I *LOVE* transplants. Yes, I take a few pills a day, but then again, the most healthy of people sometimes take a pill for whatever reason (i.e, headache or something..).

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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
lamillinger913
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« Reply #29 on: March 27, 2007, 12:57:26 PM »

It may be stretching things to say that I love dialysis, but like Zach said, hate takes too much energy. And dialysis is a damn sight better than carrying around 20 lbs. of fluid and having congestive heart failure at age 49.

I have met some great people.
My nurse practitioner always makes me laugh.
The doctor sees me once a month, whether I make an appointment or not.
I discovered Rachael Ray.
It forces me to slow my life down.
It gives me time to read, if I want to.
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Lee Anne

"For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth nor anything else in all creation will be able to separate us from the love of God that is in Christ Jesus our Lord."

such small hands http://lamillinger.typepad.com/
Eating Well on Dialysis http://lamillinger.typepad.com/eating_well_on_dialysis/
angela515
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i am awesome.

« Reply #30 on: March 27, 2007, 01:09:56 PM »

It may be stretching things to say that I love dialysis, but like Zach said, hate takes too much energy. And dialysis is a damn sight better than carrying around 20 lbs. of fluid and having congestive heart failure at age 49.

I have met some great people.
My nurse practitioner always makes me laugh.
The doctor sees me once a month, whether I make an appointment or not.
I discovered Rachael Ray.
It forces me to slow my life down.
It gives me time to read, if I want to.


Very positive way of looking at dialysis and I like to believe I looked at it that way also when I was moping around trying to be negative! I also know there's a great chance, since i'm so young, that I will need to return to dialysis again someday... and I need to look at the positives of it, or your life just turns into a depressing waste of space.  :P  Great positive attitude lamillinger!





EDITED: Fixed  :P Icon Error - Sluff, Administrator
« Last Edit: March 27, 2007, 04:52:12 PM by Sluff » Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
CW
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Yeah .............That's me!

« Reply #31 on: June 20, 2008, 01:01:21 AM »

This is a challenge, but for Goofynina and Epo I will make a genuine effort

hmmm. Lets see for Hemo

Get to catch up on tv
Tasty crunchy (but not to dense) ice
I have a much different perspective on life
Meeting decent people on IHD
Believing I can accomplish anything (strangest thing I truly believe this..am I crazy  :urcrazy; )

ok PD

Freedom and control of my own care
Able to travel without too much trouble

For my Kidney brothers and sisters who have left this world - you are not forgotten!
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20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
kitkatz
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« Reply #32 on: June 20, 2008, 08:57:14 PM »

I love the act of sitting down in a chair after being on my feet all day teaching.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #33 on: June 22, 2008, 06:18:22 AM »

It's been said before and I know it sounds kind of corny, but here's what Marvin and I like about dialysis...

"tomorrow"


...dialysis (now 6 x week -- home hemo) gives Marvin a good chance (not guaranteed, but extremely possible) shot at a tomorrow (a tomorrow that may not be great but is better than none).  For us, that's enough to make us happy.
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twirl
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« Reply #34 on: June 22, 2008, 06:49:20 AM »

list of things I have learned at dialysis          Twirl's Laws of Dialysis

1. if you hold your bottom together and pray like hell, you will not have an accident before you are let off to go to potty
2. if your butt is numb for three hours, after the first hour, you will not fall flat on your face when you stand up
3. if you vomit, techs and nurses scramble to get gum for themselves to chew
4. if you screw up your lab reports for that week, it is the mean doctor's turn to do rounds
5. if you bring a most wonderful snack, you are looking forward to eating, you will drop it
6. if you join IHD, you will have friends who will seem like family
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kevno
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« Reply #35 on: June 23, 2008, 01:35:43 AM »

Nearly 2 years since i was on this thread.

Still can not say much what I like about dialysis, I did keep my leg which is a positive. Like the beep to finish dialysis for that day  :-\ The walking off the unit to freedom :thumbup; well that is until I have to walk back onto the unit  :thumbdown;

Time to stop, starting to hate it again ;D



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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
Neo
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Dont let dialysis stop you...

« Reply #36 on: June 30, 2008, 12:16:51 PM »

I love BENADRYL INJECTIONS while on the machine!!!!
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twirl
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« Reply #37 on: June 30, 2008, 01:51:33 PM »

really   why do you get the injections

Neo, in your photo, what is that in the back seat behind you------ can of a strange looking character ------ to the side of your face
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flip
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« Reply #38 on: June 30, 2008, 02:13:40 PM »

I like the way the nurse blows in my ear before she takes my temperature.  :guitar:
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twirl
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« Reply #39 on: June 30, 2008, 04:49:28 PM »

Flip    you do go to a friendly unit
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flip
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« Reply #40 on: June 30, 2008, 04:59:22 PM »

well, it does keep my b/p up (no other comments please)
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That which does not kill me only makes me stronger - Neitzsche
lola
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I can fly!!!

« Reply #41 on: July 01, 2008, 01:32:04 PM »

Only thing so far we have found is our air went out last night and we can't get someone here till Thursday pm but I called today because Otto is dying he's so hot and they said sorry, so I said OK but then explained Otto is a D pt and just like that they are coming at any time because he's a medical priority she said :yahoo; :yahoo;
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flip
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« Reply #42 on: July 01, 2008, 02:47:55 PM »

Medical patients do get priority. You should notify utility companies also. Around here they can't disconnect you (even for nonpayment) if you are a medical patient. If there is a storm outage, patients get priority.
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That which does not kill me only makes me stronger - Neitzsche
lola
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I can fly!!!

« Reply #43 on: July 01, 2008, 03:27:38 PM »

 :bandance; :bandance; :yahoo; :yahoo; WE HAVE AIR AGAIN :yahoo; :yahoo; :bandance; :bandance;
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monrein
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Might as well smile

« Reply #44 on: July 01, 2008, 03:37:56 PM »

There is ONE and only ONE thing I love about dialysis.           I feel much much better than NOT dialyzing.

Oh yeah, there is another thing.  Walking out the door at the end of my run.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
flip
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« Reply #45 on: July 01, 2008, 04:24:14 PM »

I usually do a little dance and click my heels....kinda like Mr. Bojangles
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That which does not kill me only makes me stronger - Neitzsche
twirl
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« Reply #46 on: July 05, 2008, 05:21:23 PM »

I usually do a little dance and click my heels....kinda like Mr. Bojangles
I'd like to see that.
I love trying to determine which of your belongings will fall off that little bitty tray thing you get for all your stuff.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #47 on: July 05, 2008, 05:26:52 PM »


I love that Jenna felt better after her rapid decline right before beginning dialysis.  :bow;
I love that dialysis bought us time until a living donor could be found.  :2thumbsup;
I love dialysis because it introduced me to some of the best folks in the world!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
flip
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« Reply #48 on: July 05, 2008, 06:07:15 PM »

I actually take in my own lap tray and a large shoulder bag with all my stuff.
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That which does not kill me only makes me stronger - Neitzsche
kitkatz
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« Reply #49 on: July 08, 2008, 03:04:33 AM »

I love it when the hard back book I bring to read goes whammo on the floor during the quietest part of the evening run!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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