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Author Topic: my feelings about IHD  (Read 3534 times)
petey
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« on: March 11, 2008, 05:28:08 PM »

A friend sent me an email and it had this quote in it:

God determines who walks into your life... it's up to you to decide who you let walk away, who you let stay, and who you refuse to let go.

That's how I feel about IHD -- I refuse to let my IHD friends and "family" go!
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lola
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I can fly!!!

« Reply #1 on: March 11, 2008, 05:29:01 PM »

 :cuddle;
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paris
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« Reply #2 on: March 11, 2008, 06:40:25 PM »

 :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #3 on: March 11, 2008, 06:46:54 PM »

That is very nice, and how true.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: March 11, 2008, 07:12:04 PM »

Aww that's sweet petey.
And you really don't have a choice, we will stalk you to the ends of the earth!  :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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« Reply #5 on: March 11, 2008, 07:38:18 PM »

We love you, too, Petey!  :cuddle;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
rose1999
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« Reply #6 on: March 11, 2008, 11:41:10 PM »

Totally agree.  I can't remember how I found IHD, but boy I'm so glad I did - I now have a whole new family .  I must have really struck lucky on Google that day  :clap;
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Romona
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« Reply #7 on: March 12, 2008, 04:04:42 AM »

 :grouphug;
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KT0930
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« Reply #8 on: March 12, 2008, 04:17:47 AM »

Totally agree.  I can't remember how I found IHD, but boy I'm so glad I did - I now have a whole new family .  I must have really struck lucky on Google that day  :clap;

I wonder how you get something added to the "I'm feeling lucky" search option on Google?  ;D
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
kidney4traci
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« Reply #9 on: March 12, 2008, 05:32:44 AM »

I agree Petey.  I guess I should,  I even dream about IHD folks!!   :rofl;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Slywalker
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« Reply #10 on: March 12, 2008, 05:37:36 AM »

We love you Petey - and Marvin too of course.

Hugs   :grouphug;

Sandyb ( :snowman; still building snowmen in my area!!)

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Sluff
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« Reply #11 on: March 12, 2008, 07:53:55 AM »

  I even dream about IHD folks!!   :rofl;

Me?  >:D   :oops; you said dream not nightmare.  :)
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paddbear0000
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« Reply #12 on: March 12, 2008, 12:36:05 PM »

Hey! Sluff stole your quote! Just thought I'd cause some trouble!  >:D   ;D

We love you guys too!  :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Ohio Buckeye
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« Reply #13 on: March 12, 2008, 01:14:33 PM »

Awwwwwwwwwwwww, that's sweet Petey.
Aand that's the way we feel about you and Marvin.   :grouphug;
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If I must do this to live, I must strive to live
while I am doing this.
willieandwinnie
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« Reply #14 on: March 12, 2008, 01:30:06 PM »

 :cuddle; Love you Marvin and you too Petey!
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
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« Reply #15 on: March 12, 2008, 02:19:00 PM »

Hey! Sluff stole your quote! Just thought I'd cause some trouble!  >:D   ;D

We love you guys too!  :grouphug;

I stole that picture too!  >:D
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #16 on: March 12, 2008, 02:31:40 PM »

Who knew such an evil person existed underneath that purple boa and tiara!  :o
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
paris
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« Reply #17 on: March 12, 2008, 05:31:17 PM »

You can't steal what is willingly given to you!   Sluff just likes to collect things from his harem :rofl; :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #18 on: March 12, 2008, 06:15:50 PM »

You can't steal what is willingly given to you!   Sluff just likes to collect things from his harem :rofl; :rofl;

 :rofl;  :2thumbsup;
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Mimi
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« Reply #19 on: March 12, 2008, 11:52:50 PM »

Ditto Petey!!!!!!
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cherpep
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« Reply #20 on: March 13, 2008, 06:22:26 AM »

I have been searching for a site like this!!  I can't believe it's been out there this whole time.  When my kidney failure was discovered a year ago and I started on hemodialysis, I had so many questions.  Many medical questions were answered by my nephrologist - LOVE HIM!  However, I had so many basic, everyday questions, that he simply couldn't answer and referred me to my nurse at the dialysis clinic.  For instance, I had a lot of questions about the diet - people kept listing off what I couldn't have, I wanted a good list of what I COULD have.  When I questioned the nurse as to why wheat bread was not recommended, she said - why wouldn't wheat bread be recommended?  Wheat is so much healthier than white bread.  So, I asked when I could speak with the Nutritionist, and I was repeatedly told she'd be around soon.  I didn't see a nutritionist until after I'd been on hemodialysis for 2 months.  By then, I pretty much found out what I needed to know through google.  It was a struggle.  I wanted to eat right, just didn't know what was right and how to make the choices.  I wish I would have found this site then.  So much help from people just like me!!  I am going to take one these poster to my old clinic and my new clinic, in hopes of helping new patients find this site sooner.

Thanks for welcoming me to your site.  I look forward to helping others and getting help from those that understand completely what I'm going through.
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Sluff
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« Reply #21 on: March 13, 2008, 06:29:26 AM »

So glad you found us now. Print off the posters and post them, who knows there may be someone like yourself with no where else to turn with questions. Thanks for thinking of posting them.  I like you already... :)
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twirl
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« Reply #22 on: March 13, 2008, 04:41:01 PM »

I am like two or three days into using this site
I did not realize several people on this site were deceased
I am saddened about Goofynina and Epoman
what wonderful people
Twirl
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cherpep
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« Reply #23 on: March 14, 2008, 10:24:39 AM »

I went for my monthly visit today (first month on NxStage), and gave my nephrologist and nurse manager a copy of the poster for IHD.  I told them how much I'm enjoying the website so far, and how much it would have helped me in the beginning.  My nephrologist is making copies of the poster to handout to the patients!!
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