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annabanana
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« on: March 09, 2008, 07:40:26 AM »
I am annabanana and caregiver to my husband Randy. In the summer of 2007 Randy was diagnosed with PCT, a skin condition linked to HepC. He was told to get tested but didn't because he was also having problems with what was diagnosed as chronic pleurisy. This led to a lung scan which showed kidney cancer. The kidney was completely removed in August, all cancer supposedly gone. The surgeon said his liver looked bad so they tested for HepC and it was positive. He has probably had HepC for 30+ years. We started to tackle that beast when his remaining kidney started to fail. He's been in and out of the hospital since then. Anemic, high potassium and phosphorus. He has a colonoscopy scheduled for next month. He has a urologist, a hepatologist, and now a nephrologist, who says his ckd is caused by HepC...but the urologist says it isn't....His neph said it's too dangerous for a kidney biopsy. He also said Randy isn't ready for dialysis YET, implying that he'll need it eventually. We've been told different things about his ability to do HepC treatment because of his kidney problems. It's all very confusing. Thank God for the internet and especially for all of you at IHD. I've gotten 95% of my info here. And THANK YOU, okarol, for leading me here! I've been reading on this site for a while and I love all of you! ---annabanana     




EDITED: Moved to proper section - Sluff/Admin
« Last Edit: March 09, 2008, 10:19:35 AM by Sluff » Logged
caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
rose1999
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« Reply #1 on: March 09, 2008, 08:11:51 AM »
Hi and  :welcomesign; from  :ukflag;. Glad you've decided to join in, you will find this a very helpful and friendly family to join. See you around the boards. Rose
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willieandwinnie
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« Reply #2 on: March 09, 2008, 08:14:11 AM »
:welcomesign; annabanana. You two have been through the mill too. Glad you found us. We are a great and caring group. Look forward to hearing more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Ohio Buckeye
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« Reply #3 on: March 09, 2008, 08:39:20 AM »
 :welcomesign; annabanana to the IHD Family!
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If I must do this to live, I must strive to live
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Sluff
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« Reply #4 on: March 09, 2008, 09:07:52 AM »
Welcome to ihatedialysis.com Annabanana,

Thanks for posting your introduction. Randy is so lucky to have your love and caring. Being a caregiver is a difficult job as well. My hats off too you the unsung hero in Randy's life. We have a caregivers section for you to be able to rant and read how the other caregivers cope with this disease.

I hope you enjoy your stay here and I hope you become an active member by posting often.

Sluff/Admin
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Romona
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« Reply #5 on: March 09, 2008, 02:49:44 PM »
 :welcomesign;
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mysty
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I'm here.. for us.
« Reply #6 on: March 09, 2008, 03:06:50 PM »
 :welcomesign;
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The Wife
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« Reply #7 on: March 09, 2008, 04:16:45 PM »
Welcome Annabannana.  I'm also a caregiver/spouse to a hep c and now on dialysis partner.

See in you in the caregivers section.

 :grouphug;
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okarol
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« Reply #8 on: March 09, 2008, 05:19:41 PM »
 :waving; Hi annabanana!!
I am happy to see you here. I love the photo you used in your avatar - very sweet!
Keep posting and let us help and hug and love you - what you're going through is very tough - hang in there!
 :cuddle;


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ang
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« Reply #9 on: March 09, 2008, 05:39:35 PM »
 :welcomesign;


 cool  name,  love  it :yahoo;


 
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live  life  to  the  full  and you won't  die  wondering
lola
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« Reply #10 on: March 09, 2008, 05:43:47 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
Bajanne
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« Reply #11 on: March 10, 2008, 03:12:29 PM »
Welcome to our community, Annabanana! (love that name)  so glad you decided to join us, and so glad that this site has aleady been helpful to you.  So please keep on reading, and don't forget to keep on posting.  We need to know what is happening with Randy.  Not nosy, just family around here.  :grouphug;



Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
petey
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« Reply #12 on: March 10, 2008, 05:43:29 PM »
annabanana --
Welcome to IHD!  This site has been so good for me (also a caregiver to my husband Marvin).  There's plenty of info here, and that's great.  But, the best thing is there are people here who know where you've been and know where you are now.  This is a family, and I have received so much love, support, and encouragement from all the folks here.  You will, too.  Let us be your extended family.

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annabanana
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« Reply #13 on: March 10, 2008, 06:56:24 PM »
Thank you all for the welcome. I love it here! And it IS amazing to find people who truly understand.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
rookiegirl
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« Reply #14 on: March 10, 2008, 08:02:11 PM »
annabanana  :welcomesign; to IHD Family.  I hope you will find this forum helpful.  Know that we are here to support you.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Slywalker
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« Reply #15 on: March 11, 2008, 12:03:59 PM »
:welcomesign;  aboard annabanana - great name - really rolls off the tongue.

Sorry to hear about all the complications that Randy has experienced.  You will find lots of info and caring around here.

Hang in there and take care -

Sandyb
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kellyt
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« Reply #16 on: March 11, 2008, 12:32:36 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kitkatz
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« Reply #17 on: March 14, 2008, 10:57:38 AM »
Welcome to the boards!  Caregivers always have a special place and view point,  Thanks for coming on over to help Randy with more information.  I find the medical profession often contradicts itself and looking on the internet can help to sort out misconceptions.


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
keefer51
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« Reply #18 on: March 18, 2008, 01:49:03 PM »
 :welcomesign; annabanana. i see you are from Nashville. I lived there for 13 years and loved it. What part do ya'll live in?
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
annabanana
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« Reply #19 on: March 18, 2008, 04:40:57 PM »
Keefer, we live in Murfreesboro, about 30 miles south of N'ville.
We work in N'ville almost every day, though.
(And sometimes party there...) :bandance;

Where did you live in N'ville?
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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