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mariannas
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« on: March 02, 2008, 01:26:15 PM » |
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ARGH!!! When I first started doing exchanges (actually...just when I was getting catheter flushes the first few months) I would get air bubbles whenever the techs would do the flushes for me. When I started doing my own exchanges I got air bubbles for a few days and I've been fine ever since. Until yesterday. Oh. My. God. I have been in such pain. First the pain starts on the right side of my neck, then travels down my right side, and eventually the left side of my neck starts hurting. It has happened both when filling and draining. I'm empty until about 6 pm this evening and I'm absolutely dreading doing my exchange. I just have to keep telling myself, "It still probably hurts less than hemo." Stupid air bubbles.  |
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KT0930
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« Reply #1 on: March 02, 2008, 02:28:38 PM » |
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Uggghhh! I used to HATE when this happened!
My nurse told me about a technique that Goofynina told several others about, as well...neither of us ever tried it, but here ya go...
When draining, get your hips higher than your shoulders. This should make the air bubbles rise and come out with your drain. Try laying on the bed or sofa for your drain and placing a pillow under your hips. Hope this helps!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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rookiegirl
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« Reply #2 on: March 02, 2008, 04:53:28 PM » |
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I use to have the same problem. Believe me I know exactly how you feel. I never could understand why the pain is only on the right neck and side.
Now, I don't have too many problems with air bubbles. Make sure the fill line has no air bubbles. If so, tap it out until all the bubbles rise to the top. Also, check the end of the line that is connected to your transfer set. Sometimes there are bubbles trap in the piece that you break off. If so, tap that out and re-flush the lines again.
This method always helped me.
Wish you the best.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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KICKSTART
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« Reply #3 on: March 03, 2008, 04:44:21 AM » |
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Is this with using a machine ? I've never had it happen doing capd .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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mariannas
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« Reply #4 on: March 03, 2008, 03:28:20 PM » |
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No...it's while doing manual fills.
So I tried tapping out all the air bubbles and clearing my lines and it's STILL happening. When I did my first exchange last night (around 6 pm) I was in unbearable pain. I couldn't move and my side was just throbbing. It reminded me of the time I had whooping cough - I couldn't even take a deep breath as that would hurt too much. Tylenol with codeine helped a little bit, but not 100%. The rest of my fills/drains of the evening went ok, but my drain this morning was agony.
I'm seeing my doctor anyways tomorrow, maybe he has some ideas. It's just so weird that it's starting up after 4 months of nothing. I don't get it.
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rookiegirl
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« Reply #5 on: March 03, 2008, 05:05:59 PM » |
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No...it's while doing manual fills.
So I tried tapping out all the air bubbles and clearing my lines and it's STILL happening. When I did my first exchange last night (around 6 pm) I was in unbearable pain. I couldn't move and my side was just throbbing. It reminded me of the time I had whooping cough - I couldn't even take a deep breath as that would hurt too much. Tylenol with codeine helped a little bit, but not 100%. The rest of my fills/drains of the evening went ok, but my drain this morning was agony.
I'm seeing my doctor anyways tomorrow, maybe he has some ideas. It's just so weird that it's starting up after 4 months of nothing. I don't get it.
When you fill, do you have your transfer set on full blast? I only turn mine 1/2 way so I don't fill too fast. If that doesn't work, I strongly agree with you about talking with your Dr. Keep us posted on what he said. |
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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mariannas
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« Reply #6 on: March 03, 2008, 05:23:48 PM » |
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I don't think I have a way of keeping the transfer at half speed. I break the seals and then I use these big blue clips to either close or open the line. As far as I can tell there is no halfway.  |
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rookiegirl
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« Reply #7 on: March 03, 2008, 05:30:25 PM » |
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Do you do CAPD? Your catheter has the piece on the end that you open/close to allow fill and drain correct? That is what I'm referring to. I turn it 1/2 way.
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Logged
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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mariannas
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« Reply #8 on: March 03, 2008, 05:44:52 PM » |
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OH!!! DUH!!! I get it now. Yes, yes it does...I will try that when I do my first fill in a few minutes.
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mariannas
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« Reply #9 on: March 03, 2008, 07:23:06 PM » |
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Ok! Well, slowing down the flow seems to have done the trick! So far so good. Let's keep our fingers crossed it continues to work!
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rookiegirl
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« Reply #10 on: March 04, 2008, 03:16:40 PM » |
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Ok! Well, slowing down the flow seems to have done the trick! So far so good. Let's keep our fingers crossed it continues to work!
Yeah!  I'm glad it worked.  |
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Logged
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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KT0930
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« Reply #11 on: March 04, 2008, 05:04:24 PM » |
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Glad to hear that you may have found the culprit and that this continues to work for you, mariannas!
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Logged
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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rookiegirl
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« Reply #12 on: March 07, 2008, 05:32:16 PM » |
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Mariannas,  How are things going? Hope the air bubbles are still under control. |
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Logged
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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mariannas
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« Reply #13 on: March 07, 2008, 05:41:46 PM » |
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Well...I'm able to perform my exchanges as I normally do (flow at full speed) with no problems again so I am happy. I'm really not sure what was up with this weekend...very strange!
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KT0930
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« Reply #14 on: March 07, 2008, 06:11:08 PM » |
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Sometimes our bodies just do funny things like that. Glad things are back to normal.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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mel75
Newbie
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Posts: 44
"I am what I am"
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« Reply #15 on: March 11, 2008, 05:00:56 PM » |
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I know this is kinda of old but mynurse told me to lay on the side that hurts when I fill. This really helped me and I haven't had any problems since I started doing that.
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*~Mel~*
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mariannas
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« Reply #16 on: March 11, 2008, 06:17:36 PM » |
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That doesn't really work well for me as my lower back starts spasming. I used to have a job where I did quite a bit of heavy lifting and I'm afraid it really messed my back. For some reason, unless I sit up I can barely get up again after filling.
It's been about a week of back to normal so fingers crossed it's only a rare occurrence.
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