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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 116509 times)
Ohio Buckeye
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« Reply #75 on: March 13, 2008, 04:17:20 PM »

Just wanted to point out that on the list of those going MissAyne is listed twice.
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Ohio Buckeye
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« Reply #76 on: March 13, 2008, 04:22:17 PM »

Sory abnout the wrong spelling Myss Anne.
I knew there was a Y there someplace.
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MyssAnne
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« Reply #77 on: March 13, 2008, 04:25:10 PM »

No problem,  OB!!! As long as you don't spell it A-S-S, I am fine with however it is spelled!!! IT really should read that it's Myssanne AND fiancee (Ran), so that's two of us!!!

 :2thumbsup; :2thumbsup;
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Sluff
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« Reply #78 on: March 13, 2008, 05:06:34 PM »

Just wanted to point out that on the list of those going MissAyne is listed twice.


Thanks for pointing that out OB.  I fixed it. :)
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devlinswife
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« Reply #79 on: March 14, 2008, 04:50:38 PM »

Hubby and I will be there!!! Devlin and Rebecca
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« Reply #80 on: March 14, 2008, 05:00:17 PM »

Hubby and I will be there!!! Devlin and Rebecca

Cool!  :bandance;
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« Reply #81 on: March 14, 2008, 07:14:35 PM »

May have found a taxi service that charges $27 from airport to hotel. I thought I sent an e-mail to them this week, but when I opened Outlook instead of opening my default e-mail program, it just sent it today. I believe they will go to Tinley Park, but making sure they do. So far the have the cheapest rate. I will post their link when I hear a responce so if someone does choose them, they can set up when to be picked up
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #82 on: March 14, 2008, 07:27:39 PM »

What are people in the mood for doing in Chicago? I have gotten a travel guide of Chicago from the state of Illinois. Might as well start planning to have some idea what we are gonna do.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
devlinswife
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« Reply #83 on: March 15, 2008, 03:02:56 PM »

free_in_chicago.aspx I Hope this helps.
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MyssAnne
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« Reply #84 on: March 15, 2008, 03:06:34 PM »

I sent Paris a PM, but I'll spill it here, I'm interested in food, either buying, or eating, and books, especially in independent bookstores, of which I am sure Chicago has some!
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devlinswife
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« Reply #85 on: March 15, 2008, 03:21:14 PM »

Yeah, maybe a farmers market? I am up for about anything, I did read that they have a free zoo, I know we have a lot of animal lovers on here. Are we all going to wear our purple boas on Saturday?? We would be sure to raise eyebrows and hopefully questions. I CAN"T WAIT!!!!!
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Chris
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« Reply #86 on: March 15, 2008, 04:29:09 PM »

Yeah, maybe a farmers market? I am up for about anything, I did read that they have a free zoo, I know we have a lot of animal lovers on here. Are we all going to wear our purple boas on Saturday?? We would be sure to raise eyebrows and hopefully questions. I CAN"T WAIT!!!!!

The free zoo is Lincoln Park zoo. I have been there, just don't know how to get there. The one restaurant I would have reccommended went out of business after  107 years called Berghoffs. They really had great food, but the 3rd generation owner wanted to retire. If you have ever seen the old (1970's) Saturday Night Live sketch with Bill Murray and Dan Akroid (sp?) where they yell Cheeseburger Cheeseburger, no Coke, Pepsi, that's the Billy Goat restaurant. We have the Hershey's Chocolate store on Michigan Ave, no idea about the bookstores downtown though. Gonna have to do some research to find some good restaurants in Chicago. Sure I can find some info from people at school.
« Last Edit: March 15, 2008, 07:03:50 PM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #87 on: March 15, 2008, 06:42:52 PM »

The Hershey's Chocolate store is no big thing on Michigan Avenue. A small store, not so much in it.
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Take it one day, one hour, one minute, one second at a time.

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« Reply #88 on: March 15, 2008, 06:57:01 PM »

I haven't been there yet. Planned to go during trip to docs office downtown till I was interrupted and never made it to either place that day. So all the hype on the local news and on Hershey's website and theres not much there, that's disappointing to me.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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« Reply #89 on: March 15, 2008, 07:00:35 PM »

Chris I appreciate all the information that you are providing.  :beer1;
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mysty
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« Reply #90 on: March 16, 2008, 02:58:49 PM »

I read about the purple boa.. is that ok for everyone to wear?  I don't want to overstep...let me know..
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lola
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« Reply #91 on: March 16, 2008, 03:38:41 PM »

I read about the purple boa.. is that ok for everyone to wear?  I don't want to overstep...let me know..
Everyone should wear there Boa for Susie
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Sluff
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« Reply #92 on: March 16, 2008, 05:11:28 PM »

The restuarant is booked. 
 
Sanfratellas in Tinley Park.
Junction Plaza
17823 South 80th Avenue
Tinley Park, IL 60477
(708) 444-0055


$13.50 plus tax and gratuity/person

Saturday Aug. 2nd 2008 @ 4pm


This will be a very purple weekend. for our Goofynina.
« Last Edit: March 16, 2008, 09:21:47 PM by Sluff » Logged
Adam_W
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Me with Baron von Fresenius

« Reply #93 on: March 16, 2008, 06:45:04 PM »

After looking at all the costs involved, unfortunately it's looking more likely that I will not be able to go. I receive a whooping $700 per month disability pay, and I have bills, and I'm trying to save up to get my own apartment. I know it's still early, but maybe if everyone is going to be having a group-wide activity, maybe I can come up on the bus for just one day and meet up with everyone. Also, I don't have the NxStage aluminum travel case, so it would be pretty much impossible for me to safely take my machine on the bus. I'll still see what I can do, but again maybe I can come just long enough to meet everyone face-to-face.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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« Reply #94 on: March 16, 2008, 09:20:05 PM »

Yes Adam! Please do that! Even one day would be cool!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
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Was on in-center hemodialysis 2003-2007.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
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paris
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« Reply #95 on: March 17, 2008, 07:33:52 AM »

Adam, I hope you can come on Saturday and spend the day with us.  I'll keep thinking positive thoughts that you will be there. :2thumbsup;
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Sluff
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« Reply #96 on: March 17, 2008, 08:34:50 AM »

It would be great to meet you Adam wether it's a day or an hour I would feel honored that you made the trip.

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paris
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« Reply #97 on: March 20, 2008, 04:33:53 PM »

http://www.chicagotours.us/tours/tourDetail.cfm?tour_id=8655   

This is a boat tour leaving the Navy Pier.  I am looking at activities that do not include lots of walking. Some of us don't walk very long distances.  Navy Pier is a good starting point for sightseeing. I am hoping that with several of us having cars, going downtown may not be too difficult. Feedback and input is greatly appreciated!  Dinner is at 4 on Saturday, so we can make plans for Saturday morning, Saturday after dinner or Sunday.  Or we can hang out in Sluff's room all day :sluff;



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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paris
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« Reply #98 on: March 20, 2008, 04:50:35 PM »

http://www.navypier.com/things2do/entertainment/entertain_home.html


This gives a good idea of what is at Navy Pier.  There is always live entertainment, shopping, and fireworks on Saturday night.  Just posting possibilities :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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« Reply #99 on: March 20, 2008, 05:55:01 PM »

Here is a link for "Easy Access Chicago" http://easyaccesschicago.org/
It has a downloadable version of places to go in Chicago for people with varying disabilities, whether wheelchair, blind, or deaf. The book version can be rdered, bu they are out of stock so far. However, other brochures can be ordered from the Illinois Tourism Bureau from that website that will send out a couple books for free of things to do in and around Chicago.
http://www.enjoyillinois.com/brochures/

More stuff about Chicago http://www.choosechicago.com/Pages/default.aspx

Alo from the website,
Free Tours from Chicago Greeter
Get an inside perspective on the Windy City, with more than 40 special interest areas and 25 neighborhoods to choose from. These free 2 to 4-hour tours, guided by local volunteers, all begin at the Visitor Information Center at 77 E. Randolph. For details, call 312-744-8000 or go to www.chicagogreeter.com

Free Accessible Trolleys
Chicago's free trolleys are a friendly, fun and accessible way to get to the city's most popular attractions. They run from late May to early September on five separate routes-Navy Pier, Shopping, Metra/Navy Pier, Metra/Museum Campus and Lincoln Park. A route map with service times is available at Visitor Information Centers and online at www.cityofchicago.org/transportation/trolleys  Only trolleys displaying a sign marked "Free Trolleys" are free of charge.


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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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