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| |-+  Tributes For Susie "Goofynina" Trevino (Moderators: Rerun, kitkatz)
| | |-+  GOOFYNINA
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Author Topic: GOOFYNINA  (Read 115909 times)
kellyt
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« Reply #450 on: July 10, 2010, 08:24:39 PM »

I got another Facebook Friend Request from Susie today.    :(
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Meinuk
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« Reply #451 on: September 06, 2010, 07:55:28 AM »

Hey Susie, against all odds, Paris got a transplant.  Did you have anything to do with that?  (I kinda think so!!) I just want to say, "Well Done!!!"
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #452 on: September 06, 2010, 01:24:36 PM »

 :clap;
Her birthday is next month.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
glitter
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« Reply #453 on: September 06, 2010, 09:00:19 PM »

 :cuddle;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Epofriend
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This is what happens in Vegas!

« Reply #454 on: February 14, 2011, 06:57:06 PM »

Susie, thinking of you. I miss you and wish you were here.

Ro
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Sluff
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« Reply #455 on: February 14, 2011, 08:22:28 PM »

Another year passes without our Susie.  What a fantastic person she was to many.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #456 on: February 14, 2011, 11:08:11 PM »

 :cuddle; Lots of love to our girl.  :pray;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #457 on: February 15, 2011, 08:40:33 AM »

Still get teary eyed thinking of her.  She certainly gave such life to this site.  What a privilege to have met her.      :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YouDontKnowCecil
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The more you know ...

« Reply #458 on: April 27, 2011, 01:20:54 PM »

She was the admin that approved my account. I think about her every time I log into IHD.
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1987 summer (age 9), Renal biopsy confirms kidney disease (Alport Syndrome).
2001 January (age 22), Arterio-venous fistula put in left forearm.
2002 March (age 23), Started in-center hemodialysis (12 years!).
2014 April (age 35), Now training for self home hemodialysis with NxStage.
glitter
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« Reply #459 on: April 28, 2011, 08:15:19 AM »

She was a bright spot at IHD for sure.... :flower; :flower;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Sluff
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« Reply #460 on: May 01, 2011, 06:36:11 PM »

To some people Susie was IHD.    :cuddle;
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Meinuk
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« Reply #461 on: May 14, 2011, 06:56:50 AM »

She's still is IHD Sluff.  So is EPOMAN.  They can't post anymore, but they are here.

Sometimes, I go back and read her posts to my training diary and remember how much love and support that she gave to us. I was so freaked out and alone when I was training to do NxStage, some of those days, I posted to my diary thread just to hear Susie's encouragement.  I had so many doors slammed in my face by the time I started training, I thought that the rug would be pulled out from under me at any moment.

Of course it was pulled out, but that was almost a year later - I was ready for a fight then.  And it killed me how all the people who didn't want anything to do with me when I was starting all of a sudden wanted to stand up for me.  I laughed at them, and was happy that IHD was always there for me, and anyone who wanted to anonymously read or be a part of the IHD "family".

Sometimes, I look at the pictures from your wedding and I laugh about the boa and the tequila shots.

And all the time, I am so happy that at one of the lowest points of my life she was there.  IHD was and still is: information when you need it, a cyber hug when you need it, a place to lose your temper when you need it and a place to feel the love and support that helps to drive away the loneliness and isolation that comes with the diagnosis of ESRD.
« Last Edit: May 14, 2011, 07:20:04 AM by Meinuk » Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
kitkatz
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« Reply #462 on: May 14, 2011, 10:19:10 PM »

Susie has been around me all week. I have heard her song on the radio this week at least four times. It's a wonderful world.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #463 on: May 14, 2011, 10:28:38 PM »

Susie has been around me all week. I have heard her song on the radio this week at least four times. It's a wonderful world.
  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #464 on: May 21, 2011, 08:25:14 AM »

I still miss her something awful! :'(
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #465 on: May 21, 2011, 04:49:14 PM »

I love reading her old posts as well...so full of love, life, and light!! RIP Susie...

xo,
R
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Sluff
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« Reply #466 on: May 22, 2011, 05:52:18 PM »

I was thinking of leaving a message on her myspace but I can't remember my password. I used to leave messages every month.  FAIL  ::)
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Wattle
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« Reply #467 on: August 03, 2011, 12:39:39 AM »


I am so happy that at one of the lowest points of my life she was there.  IHD was and still is: information when you need it, a cyber hug when you need it, a place to lose your temper when you need it and a place to feel the love and support that helps to drive away the loneliness and isolation that comes with the diagnosis of ESRD.

 :-* Miss you Susie xox

 :waving;  Really miss your cooking lessons!  :pray;
Logged

PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Sluff
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« Reply #468 on: August 03, 2011, 03:42:41 PM »

She would be so happy to see IHD 6th Birthday.
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kitkatz
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« Reply #469 on: August 06, 2011, 08:35:17 PM »

I have been hearing her song a lot lately. 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Posts: 100874


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #470 on: August 06, 2011, 09:44:28 PM »

She would be so happy to see IHD 6th Birthday.

 :clap;

I have been hearing her song a lot lately. 

 :'( Me too.
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Posts: 7536


Cattitude

« Reply #471 on: August 06, 2011, 11:09:05 PM »

http://www.youtube.com/watch?v=m5TwT69i1lU
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

rsudock
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will of the healthy makes up the fate of the sick.

« Reply #472 on: August 06, 2011, 11:17:13 PM »

http://www.youtube.com/watch?v=m5TwT69i1lU

What a wonderful world...was her song?

That is so sweet!

xo,
R
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
tubes
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Posts: 598


Miss you so much Susie. Will always <3 you!

« Reply #473 on: October 13, 2011, 11:42:07 AM »

Missing you very much my friend. <3

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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
  - on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
paris
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« Reply #474 on: October 13, 2011, 06:20:53 PM »

Tubes, she would be so excited for you right now.   You two shared a special relationship.  She loved you.   :cuddle;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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