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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Spouses and Caregivers
Just sharing
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Topic: Just sharing (Read 86135 times)
Jean
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Re: Just sharing
«
Reply #625 on:
September 06, 2009, 10:28:15 PM »
Oh Boy, Light Lizard, I love your hapi drum and, unfortunately, so does my husband. Now he wants to get one, and they run about $99.00 here. That is not so awful bad. The music is just awesome and so relaxing. I may even give in and let him buy one.
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One day at a time, thats all I can do.
LightLizard
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Re: Just sharing
«
Reply #626 on:
September 07, 2009, 07:17:06 AM »
thanks jean. actually, the true 'hapi drum' costs more than that. beware of cheap imitations, because there are a few out there. if i didn't have a drum set to sell, i never would have been able to afford one at all. they are very therapuetic and it is so easy to get totally lost in the sound for hours at a time.
if your husband does get one, you just might find yourself getting lost in it from time to time, too!
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LightLizard
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Re: Just sharing
«
Reply #627 on:
October 02, 2009, 10:08:32 AM »
http://www.whalesounds.com/home/index.html
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The Wife
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Re: Just sharing
«
Reply #628 on:
October 11, 2009, 11:55:54 AM »
I didn't realize how deeply I was holding my worry inside. Not until the doctor called, that is. He never calls, not even when asked. He'll get his nurse to call or another kidney doctor to call when there's a problem, but never seems to make the call himself. Until two nights ago.
My husband has had one thing after another to deal with since summer, and then all of a sudden, his energy increased. Blood tests showed his iron was too high so his doc told him to stop his iron and go in for an ultrasound. This was to check for a tumor.
As I sat in the rocking chair, I thought "What if it is a tumor? What then?" At that moment the doctor called. My heart sank. Previous experience has taught me that doctors only call when it's bad news. Not this time.
It's Thanksgiving Weekend here in Canada and the doctor knew we'd be waiting for the news. Thanks to him taking the time to ease our worries, I can now share the news that LL doesn't have a tumor at our dinner table with our children.
Happy Thanksgiving to all the Canadians on the board. I know it's already a happy one for us!
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paris
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Re: Just sharing
«
Reply #629 on:
October 11, 2009, 12:38:19 PM »
I hope you have a lovely holiday with your family. And it is great news that there isn't a tumor.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
The Wife
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Re: Just sharing
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Reply #630 on:
October 11, 2009, 12:59:23 PM »
Thanks Paris. October is also the month my husband started dialysis. The first Thanksgiving, he was in the hospital, the second and third, he was too sick to attend, but this one, he has energy and an appetite!
My daughter's husband's mother usually has dinner at her place but this year, my daughter wanted a dinner with just us.
We'll lift our classes for the 'three year mission' as my daughter calls it, news that there is no tumor, and generally a celebration of life. When this dialysis stuff all started, and through so many other things that have taken place, I didn't think my husband would be around today.
Nor did I think it would be so sunny. The roses still bloom.
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The Wife
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Re: Just sharing
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Reply #631 on:
October 11, 2009, 01:03:00 PM »
Oh, and I forgot to mention that his arotic stenosis is progressing slower than expected. So slow, the cardiologist couldn't understand. If this continues to progress slowly enough, maybe he won't ever have to have that open heart surgery.
How I wish.
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monrein
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Re: Just sharing
«
Reply #632 on:
October 11, 2009, 01:04:26 PM »
Happy Thanksgiving to all the Canadians on here and especially (as I think of this as your thread) to LL and The Wife. We had our dinner last night up at the cottage but I did a barbequed butterflied leg of lamb instead of turkey, mint sauce, roasted glazed root veggies and roasted potatoes, sesame sees broccoli, salad and lemon meringue pie.
We have much to be grateful for this year with my transplant and I also celebrate with your family the good news about no tumour and the slowed down stenosis. XO
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
The Wife
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Re: Just sharing
«
Reply #633 on:
October 11, 2009, 01:36:05 PM »
I'm sitting here with tears of gratitude in my eyes thinking of all you've gone through and that you've had a successful transplant again Monrein. We truly do have a lot to be thankful for and your dinner sounds beautiful.
My daughter bought turkey breasts instead of a whole turkey and for pumpkin pie, she used butternut squash instead of pumpkin. As I write these words, a smile comes to my face as I relive the conversation I had with my almost three year old grandson this morning.
"Would you like to come to our house for squash pie Gramma?"
I am so looking forward to Thanksgiving dinner this year. I told my daughter she didn't have to go to to much trouble, that a bowl of soup and a bun would be good enough but she's really getting into it and apparently, so is my grandson. He already ate some pie!
Good thing my daughter made four.
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breezysummerday
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Re: Just sharing
«
Reply #634 on:
October 10, 2011, 11:50:58 PM »
Happy Thanksgiving Joie...debs
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
The Wife
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Re: Just sharing
«
Reply #635 on:
October 31, 2011, 08:45:31 AM »
My heart sank a bit deeper into my stomach when I read a couple of posts up. Thanks Deb for the Thanksgiving wishes...
My husband has been diagnosed with incurable liver cancer, caused from the HEP C, contracted as a child. By the time they discovered it, it had spread to his spine. We were in the process of seeing if he was eligible to get back on the active transplant list after his open heart surgery last year...only to discover the cancer.
We are now doing Palliative Care at Home.
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cariad
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Re: Just sharing
«
Reply #636 on:
October 31, 2011, 09:26:34 AM »
Oh, no.
I am so sorry, Joie.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
breezysummerday
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Re: Just sharing
«
Reply #637 on:
October 31, 2011, 07:28:10 PM »
Your summation of caring and sharing helped me find true meaning, I am so there with you now....
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
The Wife
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Re: Just sharing
«
Reply #638 on:
February 08, 2012, 01:30:44 PM »
He died on January 11/2012
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willowtreewren
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My two beautifull granddaughters
Re: Just sharing
«
Reply #639 on:
February 08, 2012, 01:49:14 PM »
I knew, and I didn't write, and I'm so sorry.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
glitter
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Re: Just sharing
«
Reply #640 on:
February 08, 2012, 04:34:34 PM »
I am sorry-I did not know. you have my deepest sympathy, you are both really sweet and I will remember his love of music and of you.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
monrein
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Might as well smile
Re: Just sharing
«
Reply #641 on:
February 08, 2012, 06:55:49 PM »
Dear Joie...I'm so very sorry to hear this sad news about Wayne. My deepest condolences to you and the rest of your family. May he rest in peace and may you find that peace within yourself also.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
looneytunes
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Wishin' I was Fishin'
Re: Just sharing
«
Reply #642 on:
February 09, 2012, 06:13:26 AM »
Joie, I am so sorry to hear this. My heart aches for you and my prayers will include you daily.
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"The key to being patient is having something to do in the meantime" AU
willowtreewren
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My two beautifull granddaughters
Re: Just sharing
«
Reply #643 on:
February 09, 2012, 06:35:29 PM »
This is a Happy Song....
but it made me cry.
http://www.youtube.com/watch?v=Zx2F0TbaCLU
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
The Wife
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Re: Just sharing
«
Reply #644 on:
February 10, 2012, 06:16:34 AM »
Thank you everyone for your kindness.
And thank you Aleta for posting the Happy Song. Wayne wrote it shortly before his open heart surgery. He wanted to leave something in case he didn't make it. Well, two years later...
I woke up this morning wishing I could see him again. We are fortunate to live in a time where Youtube exists.
I've become rather reclusive. It's probably not good for me but it seems the right way to be these days.
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billybags
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Re: Just sharing
«
Reply #645 on:
February 10, 2012, 06:49:41 AM »
My thoughts are with you and your family. It is so unfair when you have both battled these illnesses for such along time.. My prayers are with you.
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breezysummerday
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Re: Just sharing
«
Reply #646 on:
February 10, 2012, 06:49:52 AM »
...my Ray too, Joie....1/11
still working through the emotions
we'll catch up later.........debs
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
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