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Author Topic: thank everyone, past and present for sharing...  (Read 4373 times)
breezysummerday
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« on: February 08, 2012, 04:57:15 AM »
Deborah Willow

 ‎...sooo I looked up doctor google for the last 4 years.....and I hate dialysis, to figure out what the hell to fix/make him eat... for my love (diabetes and hyper tension) ....along the way....curry...No!....no starfruit, unload the phosphrus grains and realized after cutting out the potassium my man could eat just about most foods in portions...what I didn't figure into the equation was that there would be a younger, much more "funner" young lass that didn't focus soo much on his diabetes and dialysis....you can still have a drink or two...without counting calories..perhaps order a pizza....so be it after 24 years of caring and repairing, along comes someone else who would not focus on his limits..(fun while it lasted) ..In 2010 my man of 24 years got a transplant...young girl who had migrains...but no one listened to her as migrains are common, so she self medicated, so she was labeled a drug skeeker...37 year old female....went to the emergency department , was given what she requested and became brain lost..her young kidneys were filtered and divided...my man got one...wondering who else got the other one in the pacific northwest triangle....alaska, washington, oregon, Idaho...
 ....oh man, Ray did sooo wonderful at virginia mason with her kidney...our daughter watched after him..Virginia Mason wanted to hire our kid, the pre-nursing student...I was able though IHD to request that Brian Sierk be a back up and answer any questions our daughter might have had...Thank You Brian for being there..you have no idea how thankful I was to aquire your phone number!.
 ....Alas, my love and Karina's dad was taken from us ...5 months after transplant that was doing so well ..we will never understand the wicked thoughts of a derranged punk....I am forever grateful to everyone who shared ....do not think that your trials and tribulations are trivial....if it wasn't for IHD'S past trailblazers we would not have been so comfortable...........thank you
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
amanda100wilson
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« Reply #1 on: February 08, 2012, 06:14:58 AM »
Although I don't know you, I would like to say how sorry I am to here about your husband, and how sad this had to happen so soon after his transplant.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: February 08, 2012, 06:39:38 AM »
Oh, Breezy...

I am so sorry. So sorry.

Does Joie know? She lost Wayne recently, too.

 :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #3 on: February 08, 2012, 09:19:48 AM »
I am so glad that you found IHD to be of so much help and support.  Let us continue to be so.  I am so very sorry for your loss. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
The Wife
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« Reply #4 on: February 08, 2012, 01:26:22 PM »
Debs,

This morning, I felt called to come to this site, and this section.  I now know why.

We speak without having to use words.  We speak from heart to heart.  I sit with you dear heart, sit with feet firmly planted on the ground.  Taking a breath, I think of you -   am at a loss to find meaning in what you have endured. 

Words are not necessary.  What is there to say?

All I can do is take a breath and breathe along with you...
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willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: February 08, 2012, 01:48:23 PM »
Quote from: The Wife on February 08, 2012, 01:26:22 PM
Debs,

This morning, I felt called to come to this site, and this section.  I now know why.

We speak without having to use words.  We speak from heart to heart.  I sit with you dear heart, sit with feet firmly planted on the ground.  Taking a breath, I think of you -   am at a loss to find meaning in what you have endured. 

Words are not necessary.  What is there to say?

All I can do is take a breath and breathe along with you...

 :'(

And I have been at a total loss of words, ever since I heard about Wayne. And I didn't write.... And I feel awful. But I have been thinking of you, your words that filtered into my heart like the sun dancing on the grass under a tree. Knowing that there was nothing that I could do, nothing that I could say, being so far away in space, but so close in caring.

All the hugs in the world will not take away your loss or Debs'.

 :'(
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
glitter
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« Reply #6 on: February 08, 2012, 04:28:16 PM »
I am sorry, it is so breathtakingly sad. I know words are slim consolation, I wish for you peace.  :grouphug; :grouphug; :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
lmunchkin
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"There Is No Place Like Home!"
« Reply #7 on: February 08, 2012, 04:36:16 PM »
Even though I never knew you on here, but I can express my deepest sympathy for your loss.  It is so hard to let go of those we love.  Keep the good memories you both had together, it will help some!

Again sorry to hear this.

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
RichardMEL
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« Reply #8 on: February 08, 2012, 05:36:27 PM »
This is a shock. I really don't have any kind of words (whoever does?) but my thoughts are with you at this difficult and upsetting time.

Sometimes things that happen in life are unfair and seem to have no rhyme or reason.

:(
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
boswife
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us and fam easter 2013
« Reply #9 on: February 08, 2012, 06:31:23 PM »
I hurt for you.  Im so sorry and wish you peace and some comfort.. this is very sad
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
monrein
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Might as well smile
« Reply #10 on: February 08, 2012, 07:00:26 PM »
breezysummerday, I'm very saddened by your loss and have no words to express how unfair  I experience this to be.  I send you a very tight hug and hope that you will take some minor comfort from knowing that others care.   :cuddle; :grouphug; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
galvo
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« Reply #11 on: February 08, 2012, 07:11:50 PM »
I feel for you in your sorrow.
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Galvo
looneytunes
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Wishin' I was Fishin'
« Reply #12 on: February 09, 2012, 06:12:11 AM »
My thoughts and prayers are with you and I am so sorry for your loss.   :cuddle;
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"The key to being patient is having something to do in the meantime" AU
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