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Author Topic: My first and biggest question at this time.  (Read 5068 times)
rookiegirl
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« Reply #25 on: January 25, 2008, 06:40:39 PM »
I was diagnosed with IGA Nephropathy back in 2000.  When my creatinine reached 5.5, I started PD in October 2007.  It took me 7yrs of trying to slow down the progression of my disease.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
stauffenberg
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« Reply #26 on: January 25, 2008, 07:29:02 PM »
Since dialysis usually begins when the patient has around 10% renal function remaining, if you maintain a steady rate of decline of 2% loss every three months, starting at 27% function, then you should start dialysis in about two years.
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Zach
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"Still crazy after all these years."
« Reply #27 on: January 27, 2008, 02:07:43 PM »
The following article from Kidney Times may help:

What Can Patients Do to Delay the Progression to Complete Kidney Failure?
EasyLink Access #: 281

http://www.kidneytimes.com/article.php?id=20080118205153
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
BASSMAN
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« Reply #28 on: January 28, 2008, 05:04:52 PM »
Quote from: Zach on January 27, 2008, 02:07:43 PM
The following article from Kidney Times may help:

What Can Patients Do to Delay the Progression to Complete Kidney Failure?
EasyLink Access #: 281

http://www.kidneytimes.com/article.php?id=20080118205153


Good info there, however this leads me to my next question.  I will post a new thread.
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
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