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Author Topic: Greetings from Steve.  (Read 5079 times)
Steve-0
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« on: January 21, 2008, 08:47:42 PM »
Jeez, I registered here forever ago - and now I'm introducing myself.

My name is Steve.  I'm 29, and I've been an ESRD patient since New Years Eve, 2002.   I'd been sick for a while, with random symptoms that got worse and came to a head just before I was to go out and get rowdy on NYE 2002.  Needless to say, when my blood pressure was 220/180 and they rushed me to the hospital, I manged to yawn and say "Can we hurry this up?  Duder's gotta go party."  It really put a crimp in my party when they stuck a perma-cath in my chest, and told me I needed dialysis.  My initial response was, "Okay, just for tonight right?"

Boy, did I learn a lot.

So, after a year of dialysis - my father donated a kidney to me.  Transplant, initially went great.  Dad and I were okay, and I ran around my house with abundant energy, gleefully carrying around a measuring jug of urine just to prove to people that "I could pee again."

A month after my surgery, the surgeons wanted to clear up a lympocele fluid collection that occured when my lymphatic channels didn't heal up right.  In that surgery, which was supposed to be an overnight procedure, they damaged my kidney, almost killing it, me and everything that is cool about me.  So, I spent two months in the hospital recovering and watching lots of bad television.

My kidney sort of recovered, and for three years I had a pretty poor cleareance rate (3.5 creatinine) but enough to keep me off dialysis for three years.  I returned to Hemodialysis last year, to great fanfare, and I'm back on the transplant list now.

I have a HUGH A/V fistula in my right arm - so big and healthy it worries some doctors.  Oh well.

I really hate diaylsis, but I do it - and I try to keep the best outlook I can.  I have the good days and the bad days, but overall - I still lead a semi-charmed kind of life.

When I'm not dialyizing, I play guitar and sing in several bands, and do studio work.  I write and make little films - I hope to make an independent film this year.  I'm also the founder of an independent computer game company - and that's lot's of fun.

I'd like to kick in my two cents around here, and hopefully give and get some great advice.

~Steve
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oswald
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« Reply #1 on: January 21, 2008, 09:38:31 PM »
welcome aboard steve-o.  looking forward to hearing more from you. 
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Joe Paul
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« Reply #2 on: January 21, 2008, 11:20:42 PM »
Welcome Steve, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sluff
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« Reply #3 on: January 22, 2008, 12:25:50 AM »
Welcome Steve to ihatedialysis.com,

Seems you have a pretty good outlook on your situation. So much for new years partying in 2003 for you but I hope you made the best of it anyhow.

It's great to have you here and I hope you learn a lot about ESRD and dialysis. Feel free to share your story and /or experiences at anytime.

Sluff/ Admin
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willieandwinnie
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« Reply #4 on: January 22, 2008, 03:36:21 AM »
:welcomesign; Steve-0. Great introduction. There are a lot of stories like yours here and hopefully we can all benefit from each other. Take care and keep posting.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
bolta72
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my best friend
« Reply #5 on: January 22, 2008, 03:58:36 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Romona
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« Reply #6 on: January 22, 2008, 04:39:25 AM »
 :welcomesign;
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GuyIncognito
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« Reply #7 on: January 22, 2008, 05:25:21 AM »
Great to hear from you Steve,

 It's always nice to hear from some one your own age going thru this... I'm the youngest person at the center by probably about 25 - 30 years so as you can imagine it's been hard relating to anyone.
 Friends have mentioned that I have become crotchety and afraid of change... haha
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MyssAnne
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« Reply #8 on: January 22, 2008, 05:26:07 AM »
Welcome, Steve!   :waving; :waving; :welcomesign;
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Hawkeye
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« Reply #9 on: January 22, 2008, 06:06:12 AM »
Hello and  :welcomesign;
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It's not easy being green.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: January 22, 2008, 08:35:34 AM »
 :waving; Hi Steve-O,

Glad you did your introduction - I love when we get to know more about our members.
Games? Did you say Games? Lots of people around here LOVE games!
Best of luck to you!

okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #11 on: January 22, 2008, 08:47:45 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
LightLizard
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« Reply #12 on: January 22, 2008, 09:07:45 AM »
hey steve-o! i think we should get a dialysis band together. you play guitar, i drum, all we need is a bass player and maybe a keyboard?
the kidney foundation might fund us if we approach it right, and we can tour to bring awareness of the condition to rockers everywhere!  :yahoo;
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goofynina
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He is the love of my life......
« Reply #13 on: January 22, 2008, 03:21:51 PM »
Hey Steve-O,  Welcome to ihatedialysis.com.  Loved your introduction my friend, even though i am sorry for what you have gone through, i smiled the whole time reading your intro. :)  I love your outlook on life and the way you put it into words.  I hope to hear more from you soon.   :2thumbsup;
Party on  :beer1;

Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Wattle
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« Reply #14 on: January 22, 2008, 03:27:06 PM »
 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kellyt
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« Reply #15 on: January 22, 2008, 03:27:48 PM »
 :waving;    Sounds  like you might have a lot of great advice to give!!!   :)   :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kidney4traci
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« Reply #16 on: January 22, 2008, 03:33:36 PM »
 :welcomesign;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
donnia
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me and my donor Joyce
« Reply #17 on: January 22, 2008, 04:15:47 PM »
 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Ang
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« Reply #18 on: January 22, 2008, 05:29:57 PM »
 :welcomesign;  aboard
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live  life  to  the  full  and you won't  die  wondering
Steve-0
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« Reply #19 on: January 23, 2008, 11:05:19 AM »
Hey - thanks for all the kind welcomes.  I'm very excited to have found this resource, and I plan to make frequent stops by.

If anyone needs to get in touch with me, my email address is alexansg @ yahoo dot com - or you can PM me here.

I run a gaming website, as mentioned, at www.infamous-adventures.com - stop by and check it out if you like old school adventure games.  (And by old-school I mean late 80's-early 90's.  I'm ashamed that that era is old school.)

See ya round, kidney-bretheren.

~Steve
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #20 on: January 23, 2008, 12:09:45 PM »
welcome to our community, Steve!  I am bit late on the welcoming (computer problems....),but the welcome is just as warm.  i just loved your intro.  It would have tickled our founder Epoman pink!  So glad you finally decided to show your face in the place.  We have become a real family here, with all that means!  so take advantage of all this site has to offer.  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kitkatz
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« Reply #21 on: January 26, 2008, 06:53:03 PM »
Welcome.  We have several musicians already on the site. There is a song written called the Blood Machine by Ken S. 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
The Wife
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« Reply #22 on: January 28, 2008, 07:05:06 PM »
  ;musicalnote;  :welcomesign;
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Katonsdad
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« Reply #23 on: February 04, 2008, 05:39:58 PM »
 :welcomesign;
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
CW
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Yeah .............That's me!
« Reply #24 on: February 04, 2008, 07:40:10 PM »
Hey Steve - rejection sucks >:(
But IHD Rocks! :yahoo;
 :welcomesign; and enjoy!
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
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