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Mom of Marcus
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« on: January 20, 2008, 05:35:41 PM »
Hi,
I am not even sure I am doing this the right way, but was so glad to find this website.  I am the mother of 19 year old young man on home hemodialysis using NxStage and PureFlow.  Marcus has had 3 transplants, all have failed.  He is doing well on the NxStage.  There are days that I want to throw it all out the window and then use a hammer on it....but it is one way I can keep working and keep health insurance for him.  Looking forward to seeing comments from others.
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petey
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« Reply #1 on: January 20, 2008, 06:03:24 PM »
Welcome, Mom of Marcus!  My husband is on NxStage and PureFlow, too.  Glad you found us!
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paris
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« Reply #2 on: January 20, 2008, 07:31:04 PM »
 :welcomesign; You have found a great source of support and information.  This site has helped me more than I can say the past two years.   It sounds like Marcus has had a rough time and I am sure it has been hard as his mother to watch him go through so much.  We are here for both of you. Looking forward to learning more about Marcus and you. :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #3 on: January 20, 2008, 07:33:00 PM »
Quote from: Mom of Marcus on January 20, 2008, 05:35:41 PM
Hi,
I am not even sure I am doing this the right way, but was so glad to find this website.  I am the mother of 19 year old young man on home hemodialysis using NxStage and PureFlow.  Marcus has had 3 transplants, all have failed.  He is doing well on the NxStage.  There are days that I want to throw it all out the window and then use a hammer on it....but it is one way I can keep working and keep health insurance for him.  Looking forward to seeing comments from others.


Welcome to ihatedialysis Mom of marcus,

This lifestyle can be frustrating at times so feel free to rant whenever you need to, that is what we are here for. I hope you enjoy reading all the topics here and feel free to post as often as you like.

Sluff/ Admin
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donnia
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me and my donor Joyce
« Reply #4 on: January 20, 2008, 07:56:47 PM »
Welcome!  You will get lots of information here.  No question is a stupid question
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
boxman55
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« Reply #5 on: January 20, 2008, 08:31:52 PM »
Welcome to IHD...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Joe Paul
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« Reply #6 on: January 20, 2008, 11:12:41 PM »
Welcome M.O.M. good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MyssAnne
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« Reply #7 on: January 21, 2008, 01:44:58 AM »
 Wlecome, M.O.M.!  :welcomesign;  You'll find lots of support here, just ask us!

We understand how you feel, we're going through the same thing!
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #8 on: January 21, 2008, 03:12:24 AM »
 :welcomesign;
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Ken
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« Reply #9 on: January 21, 2008, 07:05:53 AM »
Hello and  :welcomesign;
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It's not easy being green.
Romona
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« Reply #10 on: January 21, 2008, 08:53:03 AM »
 :welcomesign;
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oswald
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« Reply #11 on: January 21, 2008, 09:22:45 AM »
 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Mimi
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For any who do not like me I use - prayer.
« Reply #12 on: January 21, 2008, 04:05:50 PM »
 :welcomesign; Come right on in.  We are glad to have U.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Ang
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« Reply #13 on: January 21, 2008, 07:34:40 PM »
 :welcomesign;  M.O.M :thumbup;
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live  life  to  the  full  and you won't  die  wondering
willieandwinnie
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« Reply #14 on: January 22, 2008, 03:40:27 AM »
Mom of Marcus  :welcomesign; Hope to hear from you again soon.  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #15 on: January 22, 2008, 08:24:32 AM »
 :waving; Hi Mom--

From one mom to another - welcome to IHD - you have been through so much already! There's lots of good information here, and many nice people.
I am sure we have a great deal we can learn from you and Marcus too!

okarol/moderator  :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......
« Reply #16 on: January 22, 2008, 03:28:27 PM »
Hi Mom of Marcus, Welcome to ihatedialysis.com.  I am not on NxStage but i am on PD.  I know the feeling about the frustrations of "the machine" lol, but i have to admit it beats going in-center :)  I hope to hear from you (and hopefully Marcus too).  :waving;  Take care and remember, you are not alone, we are here for you too.   :grouphug;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #17 on: January 23, 2008, 12:05:38 PM »
welcome to our sharing and caring community.  I am so glad you joined.  It will be a great means of support to you, as well as knowledge of what Marcus is going through.  so keep on reading and keep on posting.    :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kellyt
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« Reply #18 on: January 25, 2008, 01:09:06 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
del
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del and willowtreewren meet
« Reply #19 on: January 25, 2008, 06:50:26 PM »
 :welcomesign; from  :canadaflag;
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Don't take your organs to heaven.  Heaven knows we need them here.
kitkatz
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« Reply #20 on: January 26, 2008, 07:00:45 PM »
Welcome Mom of Marcus.  Life can be hard when it is your child you have to help through illness. It take plenty of courage!


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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