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Author Topic: Partner in Massachusett  (Read 3182 times)
Roadrunner
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« on: January 17, 2008, 06:13:06 PM »
Hi,
My husband has been on dialysis for about 1 1/2 years.  We had a wonderful non-profit center.  Caring people, good care and concerned doctors.  We decided to move nearer my daughter since we are both in our 70s and she needs help with her severely handicaped child.  We found a condo which we are very happy with and thought everything was going great.  Well!  All the dialysis centers were full and our social worker had to place my husband in one in the next county.  (about the same distance as the other ones which were in our county) 

The center probably had room since no one wanted to go there.  First they almost ruined his fistula, the doctors didn't seem interested in him.  We were just a number.  They didn't even come round with the charts.  They would come and ask you what medicines you are taking and what dose and then get mad if you didn't know them.  (He on at least a dozen)  They wouldn't take labs except once a month.(protocol)  I had to scream and call everyone to get them to take a hemoglobin reading.  They knew he had to have 4 units of blood in one week in the past.  When they finally took the reading he was 8.1.  The available transportation they said was available turned out to be $80 each way since it crossed county lines.  While trying to find another center and a solution a social worker mentioned home hemodialysis.  We are so happy with this solution.  No more driving in a snow storm or an hour 6 times a week. (1 hour each way)  We now have a good caring doctor and a very helpful nurse. 
This site has been so helpful.  I'm so glad to be a part of it.

Roadrunner
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Romona
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« Reply #1 on: January 17, 2008, 06:23:12 PM »
 :welcomesign;
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Sluff
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« Reply #2 on: January 17, 2008, 06:31:09 PM »
Welcome to ihatedialysis.com Roadrunner,

Glad to see you here, i hope you find plenty of information to read through. If you have any questions just ask.

Sluff/ Admin
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petey
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« Reply #3 on: January 17, 2008, 07:00:54 PM »
Hey, great!  Another dialysis wife and another home hemo partner!  Glad you're here!   :welcomesign;
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boxman55
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« Reply #4 on: January 17, 2008, 07:15:04 PM »
Hi roadrunner welcome to IHD...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
bolta72
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my best friend
« Reply #5 on: January 17, 2008, 07:16:27 PM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
goofynina
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He is the love of my life......
« Reply #6 on: January 17, 2008, 07:30:43 PM »
Hi Roadrunner, Welcome to ihatedialysis.com  :waving;  You've found a great place with great people  :cuddle;  Looking forward to hearing more from you, remember you are not alone, we have several other members that are caregivers to someone with ESRD.  If you have any questions, comments and/or concerns of your own, please do not hesitate to voice yourself ;)



Goofynina/Admin ;)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Joe Paul
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« Reply #7 on: January 17, 2008, 09:45:44 PM »
Welcome  Roadrunner, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Mimi
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For any who do not like me I use - prayer.
« Reply #8 on: January 17, 2008, 10:05:16 PM »

Come right in and make yourself at home. :welcomesign;

Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: January 17, 2008, 11:40:23 PM »
Welcome to our community!  We are so glad that you took the time to join us because of your loved one.  We really appreciate that.  IHD has become a real family and we have room for lots more.  Please take advantage of all the site has to offer.  I am glad to see that you are proactive and that you didn't just sit and accept their less than best treatment.  Good for you!


Bajanne, Moderator
« Last Edit: January 23, 2008, 12:31:22 PM by bajanne2000 » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #10 on: January 18, 2008, 03:06:08 AM »
 :welcomesign; Roadrunner. So glad you found us. I am also a caregiver and we did home hemo. Take care and read lots, there is so much information here.  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MyssAnne
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« Reply #11 on: January 18, 2008, 03:11:26 AM »
Roadrunner, I am so glad you found us, you're going to enjoy it here!

That is just terrible what your husband had to go through.  They need to clear out the
staff from top to bottom and start all over with dedicated TRAINED professionals.

Makes me angry to know people are being treated so poorly, for no valid reason.
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donnia
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me and my donor Joyce
« Reply #12 on: January 18, 2008, 04:37:08 AM »
Welcome Roadrunner.  It is wonderful when you have a good center.  I have a great center.... it makes dialysis bearable.  I'm sorry for your experience in your new center.  I am glad y'all were able to do home hemo.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #13 on: January 18, 2008, 05:35:18 AM »
Welcome Roadrunner sounds like you've had an ordeal.
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Ken
rose1999
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« Reply #14 on: January 18, 2008, 07:50:44 AM »
:welcomesign; glad things are better for you both now.
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paris
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« Reply #15 on: January 18, 2008, 10:24:44 AM »
 :welcomesign; So glad you found us. This is a great place for both patient and caregiver.  We look forward to hearing more from you and your journey.  I am sure your daughter is glad to have you nearby.  Sounds like it will be good for all of you to be near each other.    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Katonsdad
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« Reply #16 on: January 18, 2008, 07:36:24 PM »
 :welcomesign;
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
Ang
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« Reply #17 on: January 18, 2008, 09:54:10 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
kitkatz
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« Reply #18 on: January 26, 2008, 06:48:19 PM »
Welcome. Sometime you really have to fight for good care.  Keep fighting!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Roadrunner
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« Reply #19 on: January 26, 2008, 09:38:42 PM »
Thanks for your welcome and offers of support.

Roadrunner
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